Hi went to see a rheumatologist today and got a young arrogant arse who totally dismissed that I had either PMR or giant cell as I’m too young and my markers are normal and basically told me to start getting down the prednisolone as it’s masking everything and they do not know what I have but definitely not giant cell . I was so angry and frustrated I could cry I honestly I feel I’m getting nowhere , so I said and if I do lose my eyesight who’s fault is that going to be then when I drop down and ignore the symptoms basically.
My husband got so angry with him and asked him what he thought it was then and he said don’t know and welcome to rheumatologi .
So his advice is to come down from 30 to 20 to 171/2 and so on till we get see what happens .
any advice would be appreciated x