Posts - PMRGCAuk | HealthUnlocked

PMRGCAuk

20,342 members • 38,113 posts

All posts for June 2021

Prednisolone possible reduction

I have been reducing slowly from 15mg in feb to only 11.25 now. I tried to reduce to 10 but felt lots of aches etc returning. I Went back to 11.25 one and a...

I have been reducing slowly from 15mg in feb to only 11.25 now. I tried to reduc...

Clucket

•3 years ago

9 Replies

Recovering from gastro

So my Mum has had a bad dose of gastroenteritis. The prednisone pretty much has depleted all her reserves so bouncing back is not easy. Any tips

So my Mum has had a bad dose of gastroenteritis. The prednisone pretty much has ...

Ferbow

•3 years ago

3 Replies

Greetings from Georgia (USA), y'all!

I found this group online and was very heartened to know I'm not the only one who has ever experienced this awful affliction. I'm just looking for...

I found this group online and was very heartened to know I'm not the only one wh...

CrazyRunner

•3 years ago

18 Replies

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connection between covid and PMR?

I was interested to see that Long Covid could be an autoimmune disease. I am almost certain I caught covid early in 2020 (people in Plymouth near where we...

I was interested to see that Long Covid could be an autoimmune disease. I am alm...

humlies

•3 years ago

19 Replies

A reminder about Covid and our behaviour and why ...

I know, you are all thinking "Misery guts is back!" But two articles in the Guardian today underline why we need to be just as careful as we were this time...

I know, you are all thinking "Misery guts is back!" But two articles in the Guar...

PMRpro

Ambassador•3 years ago

69 Replies

PMR Journey with New Aches and Pains

Diagnosed with PMR back in 2014 and been dealing with it since then - 69yo male. Over the past two years been successfully using the very slow reduction...

Diagnosed with PMR back in 2014 and been dealing with it since then - 69yo male....

Vawils

•3 years ago

7 Replies

Acid reflux or something else? Feeling really down.

Hello everyone, I am an acid reflux patient. I have reflux issues for nearly 4 years now. The first time was really stressful as I suddenly started having...

Hello everyone, I am an acid reflux patient. I have reflux issues for nearly 4 ...

dsgnramit

•3 years ago

2 Replies

Increase in Pred

Diagnosed in 2017, started on 7mg prednisone. Stayed on that amount for over 2.5 years that with a few increases to 8mg then back down to 7mg. Had a couple...

Diagnosed in 2017, started on 7mg prednisone. Stayed on that amount for over 2....

Sunnyd7

•3 years ago

17 Replies

Aching feet, ankles and legs with swelling

Two days ago my feet started to hurt and shoes felt tight, yesterday ankles joined in and today my legs ache up to and a bit above knees. This afternoon my...

Two days ago my feet started to hurt and shoes felt tight, yesterday ankles join...

HappyDiamonds

•3 years ago

12 Replies

LONG COVID AND PMR/GCA

I was interested to see in this week’s BMJ that long Covid patients are struggling to get their voice heard above doctors a situation that risks “structural...

I was interested to see in this week’s BMJ that long Covid patients are struggli...

piglette

•3 years ago

30 Replies

Anyone suffering from PMR and Meunière (dissinness)?

I suffer since 6 weeks from Meunière (dizziness when coming upright after laying). Anyone has experience with this? I had sometimes Meunière in the past...

I suffer since 6 weeks from Meunière (dizziness when coming upright after layin...

GrandmaPirate

•3 years ago

7 Replies

New to PMR

I’ve recently been diagnosed with PMR with question mark as I’m still waking up feeling stiffness and pain despite medication 20 mg prednisolone. I take the...

I’ve recently been diagnosed with PMR with question mark as I’m still waking up ...

Ana-16

•3 years ago

21 Replies

AZ second jab - preparation

Hi all, Im waiting on my second AZ jab. It should be soon. I had my fiirst jab on a Sat, had a flare on the Sunday, felt like I never had a pain in my life...

Hi all, Im waiting on my second AZ jab. It should be soon. I had my fiirst ja...

lkcreedon

•3 years ago

46 Replies

My first few days on prednisilone was great and all pain and stiffness was gone, but

My first few days on prednisilone I was completely pain free but over the past few nights the neck and shoulder stiffness is starting to come back…,, it passes...

My first few days on prednisilone I was completely pain free but over the past f...

Joneskye

•3 years ago

6 Replies

Depressed

feeling so very down the last few days is this a side effect of Pred please?

Hidden

•3 years ago

6 Replies

Fatigue and very hot flushes

On 5th June I reduced to 7mg but since then I have found the basics of life a massive struggle and I’m normally a few miles a day person. Various limbs have...

On 5th June I reduced to 7mg but since then I have found the basics of life a ma...

AnniesRyder5

•3 years ago

18 Replies

Update on Meds and Head...

Before I go to bed in the US....I wanted to let you know the 20mg has made a difference. It feels like my head is 'opening' up to air, some temple/jaw...

Before I go to bed in the US....I wanted to let you know the 20mg has made a dif...

Grammy80

•3 years ago

40 Replies

Sacro iliac pain and stiffness

Has anyone had sacro iliac pain and stiffness whilst tapering

Caradomben

•3 years ago

8 Replies

Actemra approved for Covid?

Just heard about this: Genentech’s Actemra Receives FDA Emergency Use Authorization for the Treatment of COVID-19 In Hospitalized Adults and Children...

Just heard about this: Genentech’s Actemra Receives FDA Emergency Use Authorizat...

winfong

•3 years ago

5 Replies

The last lap? Advice please.

Diagnosed in April 2019, with excruciating pain, classic very high inflammatory markers, no response to prescribed NSAID's, and a "miraculous" 8 hour response...

Diagnosed in April 2019, with excruciating pain, classic very high inflammatory ...

Cross-stitcher

•3 years ago

13 Replies

Contracting GCA after being vaccinated

Î’m new to this site & happy to have discovered it. I would like to know if there is a link, or data on people who contracted GCA after their Astra Zeneca jab...

Î’m new to this site & happy to have discovered it. I would like to know if ther...

Shanghi

•3 years ago

46 Replies

Hello everyone

I was diagnosed with temporal arteritis in April 2021 after experiencing temporal headaches, visual disturbances and jaw claudication for quite a while but...

I was diagnosed with temporal arteritis in April 2021 after experiencing tempora...

Avon14

•3 years ago

26 Replies

Symptoms improved. Plan of action going forward. Do’s and Dont’s

Hi All. Increased Pred from 20 to 25 mg six days ago. Symptoms have improved markedly. Blood test results from yesterday also going in the right direction....

Hi All. Increased Pred from 20 to 25 mg six days ago. Symptoms have improved m...

LBM1953

•3 years ago

3 Replies

Could this have been aFlare?

Hi People. Quick question pls. Originally diagnosed Sept 2018 . I remember my early pain days , and my frequent questions to you “experts”…I recall being...

Hi People. Quick question pls. Originally diagnosed Sept 2018 . I remember my e...

Stifffingers

•3 years ago

14 Replies

GCA biopsy while on prednisone

I started on 20gm prednisone a year ago. Now reduced to 6.5 but have developed sore scalp and temples. Doctor wants me to go back up to 8mg until I get a...

I started on 20gm prednisone a year ago. Now reduced to 6.5 but have developed s...

Renesch

•3 years ago

12 Replies

Having major flare here ...

I'll start from the bottom up - Feet & toes - excruciating Outside of knees Front of thighs Hands and fingers Jaw (although now seems to have eased) and...

I'll start from the bottom up - Feet & toes - excruciating Outside of knees Fron...

BiteyDelano

•3 years ago

3 Replies

Fractured vertebrae

I think the pain that is excruciating is confusing me. I can’t always work out is it pmr or back or both. If back psin were easier I might cope better it’s...

I think the pain that is excruciating is confusing me. I can’t always work out i...

Uglow

•3 years ago

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Headache, some jaw pain.... Phooey!! # &#@%^

I had written I'd been in the hospital with a bad infection and it seems to be taking me a long time to bounce back. PLUS, for the last 4-5 days I've been...

I had written I'd been in the hospital with a bad infection and it seems to be t...

Grammy80

•3 years ago

15 Replies

Crying

I find myself so down at moment anyone else! I feel overwhelmed and so worried this is my life now. is this prednisone or me. I’m tired and feel so fed up not...

I find myself so down at moment anyone else! I feel overwhelmed and so worried t...

Uglow

•3 years ago

44 Replies

Wondering if anyone else has experienced this possible start to GCA?

I have not posted on here for a long time as things have proceeded fairly uneventfully: - Onset of PMR two and a half years ago -...

I have not posted on here for a long time as things have proc...

WelshSmallholder

•3 years ago

23 Replies

Posts - PMRGCAuk | HealthUnlocked

PMRGCAuk

All posts for June 2021

Prednisolone possible reduction

Recovering from gastro

Greetings from Georgia (USA), y'all!

connection between covid and PMR?

A reminder about Covid and our behaviour and why ...

PMR Journey with New Aches and Pains

Acid reflux or something else? Feeling really down.

Increase in Pred

Aching feet, ankles and legs with swelling

LONG COVID AND PMR/GCA

Anyone suffering from PMR and Meunière (dissinness)?

New to PMR

AZ second jab - preparation

My first few days on prednisilone was great and all pain and stiffness was gone, but

Depressed

Fatigue and very hot flushes

Update on Meds and Head...

Sacro iliac pain and stiffness

Actemra approved for Covid?

The last lap? Advice please.

Contracting GCA after being vaccinated

Hello everyone

Symptoms improved. Plan of action going forward. Do’s and Dont’s

Could this have been aFlare?

GCA biopsy while on prednisone

Having major flare here ...

Fractured vertebrae

Headache, some jaw pain.... Phooey!! # &#@%^

Crying

Wondering if anyone else has experienced this possible start to GCA?

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