COVID Vaccine question: Hello. I've been following... - PMRGCAuk

PMRGCAuk

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COVID Vaccine question

colmarin profile image

Hello. I've been following a thread here from people who have experienced flares after getting their COVID vaccinations. I'm scheduled to get my first shot in about 2 weeks. Just wondering if any of you with PMR have been vaccinated and haven't experienced any nasty PMR flares afterwards?

49 Replies

No flare at all. Felt a bit unwell for two days and a sore arm.

colmarin profile image
colmarin in reply to Mary63

Good to hear. Thanks Mary63

I had side effects from the vaccine but no flares..

colmarin profile image
colmarin in reply to piglette

Glad to hear you didn't have any flares. Thanks piglette.

Nothing at all x

colmarin profile image
colmarin in reply to Rosbud

Very good. Thanks Rosbud.

No problem with phyzir vaccine, very slight sore arm, tired the next day, that was it!

Thanks Fifegran. Happy to hear that you didn't have any problems.

After first Pfizer dose, only a couple of hours of total exhaustion the following day (much more than usual)

Second dose this Wednesday.

Thanks. Good luck with the second shot.

I had one dose of Oxford Astra Zeneca and I felt tired and a bit achy but no flare so far. Good luck.

Thanks whitefishbay. Good to know.

I’ve had both of my vaccinations with no side effects at all (Pifzer)

That's so good to hear. How long ago was your second shot?

2nd March

Nothing at all , cannot wait for the second jab and a more social world

colmarin profile image
colmarin in reply to Mondelo

Very good Mondelo. Yes....will be great to get back to things being more normal.

Like Fifegran, I had a sore arm (around the injection site) for 2 days - like I'd been punched. I had Pfizer. And like Mondelo, can't wait for the second dose.

colmarin profile image
colmarin in reply to rosie_jones

Thanks rosie_jones. Hope all continues to go well.

Had both Pfizer jabs, bit of a sore arm but otherwise fine. I'm slow tapering from 7mg so am ready for problems like flare or adrinals - but nothing from the jabs. Good to have had them.

colmarin profile image
colmarin in reply to ChinaWuntoo

Glad to hear all has gone smoothly for you ChinaWuntoo.

Had my first Astra Zeneca jab in early February. Injection site a bit tender and had a mild headache for 24 hours, no flare. So glad to have had it.

colmarin profile image
colmarin in reply to Rache

Glad you haven't had any adverse reactions. Thanks Rache.

No side effects, no flare up...1st Astra Zeneca.

colmarin profile image
colmarin in reply to Pixix

Very good to know. Thanks Pixix.

Oxford Astra Seneca. Bit "off"for a few days but then OK and no flare

colmarin profile image
colmarin in reply to borednow

Awesome that you haven't had a flare borednow. Thanks.

No, no flare at all have had first dose of pfizer and expect 2nd fairly soon.

colmarin profile image
colmarin in reply to Millipede01

Good luck with second. Thanks Millipede01

I've had my first shot and been fine, apart from a sore arm for a couple of days.

colmarin profile image
colmarin in reply to Horizon12

Thanks for letting me know Horizon12.

I had my second vaccine shot after being diagnosed am with PMR and have not had any side effects from the shot

colmarin profile image
colmarin in reply to janipmr

Very good. Thanks janipmr.

No flare from 1st and 2nd vaccinations of Moderna. Some fatigue the following am after the 2nd shot but water and rest helped greatly.

colmarin profile image
colmarin in reply to Fark

That's excellent. Thanks Fark.

My doctor said to wait. I have PMR, celiac, PCOS and multiple myeloma. I got PMR following a flu shot. She said that there isn't enough data. Studies on our group are looking to see how many antibodies we make in response and are talking about strengthening the shot or extra boosters. They are not looking at how it affects our autoimmune problems. We need that data.

colmarin profile image
colmarin in reply to Bodmor

Yes, definitely a concern isn't it Bodmor. Sorry to hear about all of the challenges you are dealing with.

PMRpro profile image
PMRproAmbassador in reply to Bodmor

There is the point that if all of us with an autoimmune disorder did the same, they will never get the data you want.

It is not uncommon for PMR to surface soon after a flu shot. But what has to be borne in mind is that that may have been the final straw that broke the immune system's back - and if it hadn't been the flu shot it would have been the next stress on the immune system that did it. Possibly the flu you caught because you hadn't had the shot. My husband missed one year, caught flu and was ill with pneumonia and fluid on his lung for 6 months.

colmarin profile image
colmarin in reply to PMRpro

Good points to consider. Thanks PMRpro.

My pmr started after a flu shot too and my doctor is holding on approving me for a vaccine until they have more data.

colmarin profile image
colmarin in reply to Toryvanv

I can understand why your doctor is reluctant to approve given your circumstances. Thanks for your reply Toryvanv.

Glad you asked the question colmarin - I have my first one booked for next Saturday and am a bit worried. Very reassuring seeing so many the positive comments. Good luck with yours!

colmarin profile image
colmarin in reply to MaltedMilk

Thanks Malted Milk. And good luck with yours as well.

Pfizer jag. 25 days ago. No Ill effects whatsoever.

colmarin profile image
colmarin in reply to Weegie51

Excellent. So happy to hear this Weegie51. Thanks for getting back to me with this info.

PMR started October 20 following a flue jab, I decided to go alone without GP no Pred. then ( just about to start) so was aware of the raw effects. I would describe it as if pain was rated 100% a few weeks after PMR started it had then decreased to about 60% at the time of the Covid jab February 21. The Jab flared this up to about 80% for 2-3 weeks, it's then gone back to 60%. Symptoms didn't change their type but increased in intensity. Decided that pain wasn't going away by itself so I have decided to involve GP and give Pred. a go. I suspect that any vaccination which by definition modifies the immune system is going to stir things up, hopefully temporarily. Some vaccines have substances called adjuvants incorporated who's job is to do just that to accelerate the production of new antibodies etc.

PMRpro profile image
PMRproAmbassador in reply to OldAl

There are no adjuvants in the Pfizer and Moderna shots - I don't know about the AStra Zeneca vaccine

colmarin profile image
colmarin in reply to PMRpro

Good to know. Thanks PMRpro.

colmarin profile image
colmarin in reply to OldAl

Thanks for this OldAl

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