Posts - PMRGCAuk | HealthUnlocked

PMRGCAuk

20,432 members • 38,319 posts

All posts for December 2020

Some up-to-date information about the Covid vaccine for patients with autoimmune diseases

LupusUK have consulted with experts to provide information regarding the Covid vaccine and patients with autoimmine disorders. Obviously their focus is on...

LupusUK have consulted with experts to provide information regarding the Covid v...

PMRpro

Ambassador•3 years ago

12 Replies

Should have known better

Would love some advice after thinking I could reduce from 10 to 8 without a problem! Since diagnosis in May ( after starting at 12 and ending up at 32 ) my...

Would love some advice after thinking I could reduce from 10 to 8 without a prob...

kimsaunsc

•3 years ago

11 Replies

Cushing Syndrome.

I have been taking Prednisolone for over two years and after a failed initial reduction am now down to 30mg. Besides the drawbacks associated with long term...

I have been taking Prednisolone for over two years and after a failed initial re...

AncientMariner

•3 years ago

6 Replies

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MRI

Doc sent me for an MRI when The pains in my legs were getting worse, just got the results. It seems there are two disc issues and the report mentions stenosis...

Doc sent me for an MRI when The pains in my legs were getting worse, just got th...

Fimckenz

•3 years ago

4 Replies

PRM or not

Having had GCA and a positive biopsy four years ago,got down to 1mg steroids in September 2019 and started having aching arms,legs and buttocks and...

Having had GCA and a positive biopsy four years ago,got down to 1mg steroids in...

Gran6

•3 years ago

5 Replies

How much credence is given to your bio markers ( ESR & CRP) in relation to how you’re feeling, when working out when to reduce doses?

Tapering Guidelines

Siral

•3 years ago

20 Replies

Pains

Hi all things are getting better except bad headaches. Dr said to try 19mgs and then 18 mgs on alternate days. Coming down from 20 to 15 mgs was too...

Hi all things are getting better except bad headaches. Dr said to try 19mg...

Cosmos22Marigold

•3 years ago

11 Replies

Feeling pleased

After having the prediabetes diagnosis at the end of the summer, results today reading of 39 , good to know the hard work on the low carb diet has paid off 😊

After having the prediabetes diagnosis at the end of the summer, results today r...

Devoid

•3 years ago

12 Replies

Pmr relapse

Hi all blood test on Monday ESR up from 20 to 39, doctor rang thinks I'm having a flare. Been having ache in shoulder and arms headache but not too bad. Was...

Hi all blood test on Monday ESR up from 20 to 39, doctor rang thinks I'm having ...

Snnib

•3 years ago

2 Replies

Disappointed

After feeling very pleased yesterday I was deflated today to hear that two people vaccinated against Covid-19 yesterday, had allergic reactions. As I have...

After feeling very pleased yesterday I was deflated today to hear that two peopl...

maria40

•3 years ago

38 Replies

Second talk on Covid Vaccine

https://www.youtube.com/channel/UCa09am-cOsC-FSgr_nLkFFA/

piglette

•3 years ago

8 Replies

Tips on how to deal with fatigue

What tips do people recommend for dealing with fatigue. I have uped my Prenisolone and have stopped feeling weepy but. I am still feeling absolutely wiped out....

What tips do people recommend for dealing with fatigue. I have uped my Prenisolo...

Hiibilly

•3 years ago

19 Replies

Prednisone reduction

After reducing prednisone how long does it take for the reduction to take affect.

After reducing prednisone how long does it take for the reduction to take affect...

Athena2020

•3 years ago

5 Replies

Free Yoga tomorrow

HI! Yoga tomorrow for those of you who want to do it again or for the first time. The zoom link SHOULD still be in your message... but if not you can message...

HI! Yoga tomorrow for those of you who want to do it again or for the first time...

yogabonnie

•3 years ago

22 Replies

My dental experience

Thank you to all the replies I had about needing dental treatment. Well this morning I was very anxious shaking and generally not in a good place. But I can...

Thank you to all the replies I had about needing dental treatment. Well this mor...

Reddev

•3 years ago

16 Replies

ESR/CA markers?

Has anyone had raised markers and then on most recent test showed them within normal range? Still puzzled by this.

Has anyone had raised markers and then on most recent test showed them within no...

merril

•3 years ago

6 Replies

Not feeling good after prednisone reduction

Can tapering prednisone slowly such as last month i went from 12.5mg in October to 10 mg in November after that I started feeling malaise, achy, and fatigue,...

Can tapering prednisone slowly such as last month i went from 12.5mg in October...

Athena2020

•3 years ago

17 Replies

Addison’s with PMR

I believe I have PMR, I can’t move my neck in the morning and both shoulders are very stiff with pain. Had an ultrasound on both shoulders at my orthopedic and...

I believe I have PMR, I can’t move my neck in the morning and both shoulders are...

Annie-lee2

•3 years ago

4 Replies

Raised platelets

Hi all. I just had the results of my blood test. I have had about a stone in weight loss over six months, my job has changed, I worry a lot, and I have tried...

Hi all. I just had the results of my blood test. I have had about a stone in wei...

Alee1

•3 years ago

8 Replies

Rheumatologist and feeling positive

I hope you are all ok and feeling more positive now there is light at the end of the tunnel, and looking to be a better year following this one!!! I saw the...

I hope you are all ok and feeling more positive now there is light at the end of...

Hidden

•3 years ago

5 Replies

always good advice!

Thank you for all the replies, advice and interesting insights into other people's experiences, it all helps !

Thank you for all the replies, advice and interesting insights into other people...

polyputthekettleon

•3 years ago

1 Reply

ACTH and adrenal glands awakening in GCA

Why is synthetic ACTH not used to trigger the adrenal glands into reawakening after a long suppression due to steroid treatment in GCA . At levels of around 4...

Why is synthetic ACTH not used to trigger the adrenal glands into reawakening af...

Iwillwin123

•3 years ago

1 Reply

Shorter Journey?

Diagnosed in April with ESR at 18 in March then 37 in April I've tapered down easily from 20 to now 5mg. ESR now at 2! My CRP reading was 46.8 in April now...

Diagnosed in April with ESR at 18 in March then 37 in April I've tapered down ea...

Underpars

•3 years ago

9 Replies

Movement for Good - 12 Days of Giving Christmas Award

I am delighted to let you know that we have been successful our and your application for the Ecclesiastical, Movement for Good - 12 Days of Giving Christmas...

I am delighted to let you know that we have been successful our and your applica...

Hidden

•3 years ago

16 Replies

Tapering Pred

Shame GPs insist on 2.5mg reduction every three weeks (this is what the guidelines say) as the side effects are too dangerous and ignore you’re in pain hence...

Shame GPs insist on 2.5mg reduction every three weeks (this is what the guideli...

madhouse1

•3 years ago

48 Replies

VitaminD levels & magnesium

I was just wondering if many of you have checked your Vit D levels. I assumed that taking Vitcal D for the last 6 years my levels would be good. When I’ve had...

I was just wondering if many of you have checked your Vit D levels. I assumed th...

Griggser

•3 years ago

25 Replies

Covid-Actemra- PMR- GCA- I survived!

First diagnosed PMR-GCA-Aug. 2017, Actemra & pred free July 2018....GCA flare- Nov. 2018. Put back on 60 pred and weekly self- injected Actemra. Off pred....

First diagnosed PMR-GCA-Aug. 2017, Actemra & pred free July 2018....GCA flare- ...

Kentucky5

•3 years ago

12 Replies

Dexamethasone instead of Prednisone for PMR????

Hi All! Been through some things with esophagus - had dilation and polyps removed. Acid reflux is bad and gastro thinks prednisone has had an impact after 2...

Hi All! Been through some things with esophagus - had dilation and polyps remov...

bluegirl7

•3 years ago

6 Replies

Does this sound familiar?

To all who have responded to me since I joined here is the result of my phone call with GP. ESR and CPR results lower than previous two blood tests. ESR17...

To all who have responded to me since I joined here is the result of my phone ca...

merril

•3 years ago

15 Replies

PMR Decreasing My Dose of Prednisone. Anyone Have Slight Aches In Ankles?

I'm am on a taper of 1 mg a month. Just finished my 4 weeks at 7mg. Getting slight aches in wrist and arm but also in my ankles. My Rheumatologist told me...

I'm am on a taper of 1 mg a month. Just finished my 4 weeks at 7mg. Getting sl...

SARose

•3 years ago

15 Replies

Posts - PMRGCAuk | HealthUnlocked

PMRGCAuk

All posts for December 2020

Some up-to-date information about the Covid vaccine for patients with autoimmune diseases

Should have known better

Cushing Syndrome.

MRI

PRM or not

How much credence is given to your bio markers ( ESR & CRP) in relation to how you’re feeling, when working out when to reduce doses?

Pains

Feeling pleased

Pmr relapse

Disappointed

Second talk on Covid Vaccine

Tips on how to deal with fatigue

Prednisone reduction

Free Yoga tomorrow

My dental experience

ESR/CA markers?

Not feeling good after prednisone reduction

Addison’s with PMR

Raised platelets

Rheumatologist and feeling positive

always good advice!

ACTH and adrenal glands awakening in GCA

Shorter Journey?

Movement for Good - 12 Days of Giving Christmas Award

Tapering Pred

VitaminD levels & magnesium

Covid-Actemra- PMR- GCA- I survived!

Dexamethasone instead of Prednisone for PMR????

Does this sound familiar?

PMR Decreasing My Dose of Prednisone. Anyone Have Slight Aches In Ankles?

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