To all who have responded to me since I joined here is the result of my phone call with GP. ESR and CPR results lower than previous two blood tests. ESR17 CRP2. So despite giving all the new symptoms GP decided I did not have PMR/GCA. However, I asked her if she had read the Springer study but she hadn't, and rightly enumerated all the problems for ME with steroid meds. I like her, and she would always be my first choice of doctors to see and I can usually say anything to her, so I changed tack and asked her what she would do if in my position. Without waiting for an answer, I said I would like to see a rheumatologist. She agreed with me and is willing to write a referral. Gave me the name of two private Consultants and I now have an appointment for the 16th December.
Of course, still no pain relief, but maybe one step further than I was.
Written by
merril
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Well that does sound like progress. Can your appointment be made urgent, in view of your pain? I did not pick up that you have ME or know that steroids are contra-indicated with it. Could this be a clue to the dreadful fatigue so many of us experience, I wonder.A good relationship with your doctor is a precious thing.
If it was simply a case of spelling going down the tube I would be delighted,however I am taking morphine 24/7 at the moment so no surprises really.Looking back my wife,(bless her,) did her best to point out there might be issues with connectivity on all levels but I disagreed. Nine months on I can see that she was spot on.
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Update- showing articles to rheumy
Update on progress
Does this sound like I've hit the wall?
Alendronic acid & DEXA scan
