Does this sound familiar?: To all who have... - PMRGCAuk

PMRGCAuk

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Does this sound familiar?

merril profile image
15 Replies

To all who have responded to me since I joined here is the result of my phone call with GP. ESR and CPR results lower than previous two blood tests. ESR17 CRP2. So despite giving all the new symptoms GP decided I did not have PMR/GCA. However, I asked her if she had read the Springer study but she hadn't, and rightly enumerated all the problems for ME with steroid meds. I like her, and she would always be my first choice of doctors to see and I can usually say anything to her, so I changed tack and asked her what she would do if in my position. Without waiting for an answer, I said I would like to see a rheumatologist. She agreed with me and is willing to write a referral. Gave me the name of two private Consultants and I now have an appointment for the 16th December.

Of course, still no pain relief, but maybe one step further than I was.

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merril
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15 Replies
SheffieldJane profile image
SheffieldJane

Well that does sound like progress. Can your appointment be made urgent, in view of your pain? I did not pick up that you have ME or know that steroids are contra-indicated with it. Could this be a clue to the dreadful fatigue so many of us experience, I wonder.A good relationship with your doctor is a precious thing.

merril profile image
merril in reply to SheffieldJane

Perhaps typing" myself"would have been enough emphasise lol

SheffieldJane profile image
SheffieldJane in reply to merril

Of course! 🤭😉

merril profile image
merril in reply to SheffieldJane

Has anyone else's spelling gone down the tubes? lol

SheffieldJane profile image
SheffieldJane in reply to merril

My sentences get in a twist and I can’t remember anyone’s name.

yorkieme profile image
yorkieme in reply to SheffieldJane

If I try to remember a name or answer to a question I/we go through the alphabet,it really does work Fred. lol.xx

merril profile image
merril in reply to yorkieme

Ditto👍

SheffieldJane profile image
SheffieldJane in reply to yorkieme

I will try that! 😀

123-go profile image
123-go in reply to merril

ESY

merril profile image
merril in reply to 123-go

😸😀😀

yorkieme profile image
yorkieme in reply to merril

If it was simply a case of spelling going down the tube I would be delighted,however I am taking morphine 24/7 at the moment so no surprises really.Looking back my wife,(bless her,) did her best to point out there might be issues with connectivity on all levels but I disagreed. Nine months on I can see that she was spot on.

All the best for a pain free future.

merril profile image
merril in reply to yorkieme

Thank you Yorkie. I am still having withdrawal symptoms from Morphine and Ora Morph. Cardiologist advised me to make that one of my goals.

Constance13 profile image
Constance13 in reply to merril

Join the club!😂

123-go profile image
123-go

Really proud of you, Merril for standing up for yourself.

merril profile image
merril in reply to 123-go

Me too. lol

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