To all who have responded to me since I joined here is the result of my phone call with GP. ESR and CPR results lower than previous two blood tests. ESR17 CRP2. So despite giving all the new symptoms GP decided I did not have PMR/GCA. However, I asked her if she had read the Springer study but she hadn't, and rightly enumerated all the problems for ME with steroid meds. I like her, and she would always be my first choice of doctors to see and I can usually say anything to her, so I changed tack and asked her what she would do if in my position. Without waiting for an answer, I said I would like to see a rheumatologist. She agreed with me and is willing to write a referral. Gave me the name of two private Consultants and I now have an appointment for the 16th December.
Of course, still no pain relief, but maybe one step further than I was.