Would love some advice after thinking I could reduce from 10 to 8 without a problem! Since diagnosis in May ( after starting at 12 and ending up at 32 ) my tapering has gone very nicely. Each reduction was followed by a few days of fatigue but no new pains. Had been splitting my dose between am and pm. When I reduced to 8 I started taking at 2 am. A week or so later my PMR pain is starting back in shoulders. I know I know- should have listened to all the advice I have read here and not made the last reduction of 20%! Following the Rheumatologist advice has set me back. (Why do I think the Dr knows best? My hubby is a Dr and he he doesn’t always know best 😁) Have taken an additional 2 this morning to get me to 10 today.
Do you think I should try the ten for a week and see if that is enough? Or do I need to go up further to nip the inflammation more quickly?
Thank you!!!
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kimsaunsc
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Difficult to say - you may have caught it quickly enough but all you probably need is 13mg for a few days and drop back to 10mg. Even the reduction schedules you find in the medical literature say 1mg at a time from 10mg!!! Not just us ...
Well perhaps she has not read all the current literature. She still says I am atypical be use of my age !!! Hope the medical community will catch up with the real community soon.
As you're in US, does that mean you can only get 2mg tablets? or can you get 1mg on prescription?
If so I would request them, and then reduce by only 1mg in future...if not available then so long as the tablets are the plain white variety they can be cut - pill cutters available in pharmacies or online.
Just as an aside - 12mg is a low dose to start on - which is probably why you had to increase.
Yes, I tapered by .5 from 10mg. It was mostly monthly till I got to 5. I stayed there for about 3 months as I had family staying, followed by a 450km drive there and back to visit my youngest son’s family, came home and picked up a nasty coughing virus which hung around for a month. From 5mg I have tapered by .5mg but have stayed for 6 or 7 weeks each time. Presently on 3 for 7 weeks and thinking about dropping down again soon. The lower I go, the slower I go.
It’s not really a definite plan, I just go by how I feel. I’m feeling quite comfortable on 3mg at the moment and have always been a little apprehensive about dropping down once I was under 5mg. I guess I will have to take the plunge soon with 🤞.
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I'd like your thoughts on this one...
so what is better???
PMR Flare
Things are looking up
Rheum says I may have PMR 3 yrs after GCA diag.
