Posts - PMRGCAuk | HealthUnlocked

PMRGCAuk

20,267 members • 37,932 posts

All posts for December 2020

Side Effect of TCZ

Just spoke with my GP and my "cough cough" (unproductive one) is indeed a side effect of Tocilizimab. Don't know how long my Rheumy plans to have me on it the...

Just spoke with my GP and my "cough cough" (unproductive one) is indeed a side e...

jarn

•3 years ago

4 Replies

why so much muscle mass loss?

Why have I lost so much muscle mass in my arms, and now see the start in my legs?? Any advice that will help? I am waiting on results of blood tests but...

Why have I lost so much muscle mass in my arms, and now see the start in my legs...

merril

•3 years ago

28 Replies

PMR and Joint Degeneration

Hi, I am new to this forum, diagnosed with PMR January 2020. I had pain and stiffness in arms and shoulders, along with elevated CRP and SED , and the blood...

Hi, I am new to this forum, diagnosed with PMR January 2020. I had pain and sti...

Orchid732

•3 years ago

4 Replies

Want to take advantage of all our features? Just log in!

DSNS Taper Question

PMR started 3 years ago. DSNS taper staying at low dose for 4 weeks. At 2.5 now for 2 weeks. When waking pain in shoulders and hips which quickly go away after...

PMR started 3 years ago. DSNS taper staying at low dose for 4 weeks. At 2.5 now ...

skipspmr

•3 years ago

14 Replies

Information on the Pfizer-BioNtech vaccine - facts from scientists with no media hype

https://www.newscientist.com/article/2261805-everything-you-need-to-know-about-the-pfizer-biontech-covid-19-vaccine/?utm_campaign=onesignal&utm_medium=alert&utm

https://www.newscientist.com/article/2261805-everything-you-need-to-know-about-t...

PMRpro

Ambassador•3 years ago

62 Replies

Dry mouth and other sensations

Hi Further to yest's post re itching on scalp, now random from feet, abdomen to neck and scalp. Also, notwithstanding drinking, mouth is very dry. Yest....

Hi Further to yest's post re itching on scalp, now random from feet, abdomen to...

Sefu

•3 years ago

7 Replies

Anyone out there who has multiple autoimmune conditions

Hi I have just join and have been reading some of the posts and have found comfort already in nowing that I am not alone. I was diagnosed with PMR in February...

Hi I have just join and have been reading some of the posts and have found comfo...

Hiibilly

•3 years ago

31 Replies

Covid Vacine and Autoimmune

Professor Van-Tam MBE, Deputy Chief Medical Officer for England stated quite categorically on BBC Breakfast this morning that the Covid vaccine had been tested...

Professor Van-Tam MBE, Deputy Chief Medical Officer for England stated quite cat...

Bcol

•3 years ago

12 Replies

Flu jab and Covid vaccine

I'm due to have my flu jab (delayed as I needed a latex free jab ) on Friday and wonder whether I should cancel as I'm over 80 and therefore as far as I can...

I'm due to have my flu jab (delayed as I needed a latex free jab ) on Friday and...

maria40

•3 years ago

19 Replies

Reducing prednisone and pain levels

Really love this forum thanks so much. I have PMG and have reduced from 20mg to 11mg each time I reduce I am sure and tired for a well even doing it slow and...

Really love this forum thanks so much. I have PMG and have reduced from 20mg to ...

Renesch

•3 years ago

6 Replies

Tocilizimab (TCZ) side effects?

Have been on injections since May and did find that swelling in ankles/fingers occurred; but also wondering about DRY COUGH? Just get the dryness in back of...

Have been on injections since May and did find that swelling in ankles/fingers o...

jarn

•3 years ago

26 Replies

PMA and Vaccines

How do people tapering from PMA stand with regard to Covid vaccines? Are there differences between vaccines in respect of their suitability for pred users?

How do people tapering from PMA stand with regard to Covid vaccines? Are there ...

Montplo

•3 years ago

30 Replies

Anyone only taking Actemra

I’ve been on Actemra injections over 3 seems like there is no light at the end of the tunnel. I really am against using Prednisone

I’ve been on Actemra injections over 3 seems like there is no light at the end ...

mpl615

•3 years ago

10 Replies

Unwell.

Hi me again woke up this morning head spinning feeling sick get a feeling in my head like a wave moving through it, sounds strange but it's the only way I...

Hi me again woke up this morning head spinning feeling sick get a feeling in my...

Snnib

•3 years ago

10 Replies

Debilitating acid reflux, sleep deprivation, end of my tether!

Been suffering dreadful acid reflux even though I'm on the maximum Omeprazole dose while taking Prednisolone. It's got so bad I can't lie down, the acid is...

Been suffering dreadful acid reflux even though I'm on the maximum Omeprazole do...

strawclutching

•3 years ago

140 Replies

Itchiness

Mum was diagnosed with GCA last June and is reducing Methylpred. having been switched to TCZ circa 7 weeks ago. In last couple of days random itching has come...

Mum was diagnosed with GCA last June and is reducing Methylpred. having been swi...

Sefu

•3 years ago

5 Replies

Dexa Scan

Just in case anyone has a 2 yearly dexa scan like me, you need to book it well in advance. I was due one in May but left it till July because of covid. It's...

Just in case anyone has a 2 yearly dexa scan like me, you need to book it well i...

diana1998

•3 years ago

5 Replies

Prednisone and Methotrexate

I saw a new Rhematologist today for a second opinion on whether I really have PMR and if so is my treatment correct. My current Rhematologist started me on 20...

I saw a new Rhematologist today for a second opinion on whether I really have PM...

jer3jen

•3 years ago

15 Replies

Çardiac response to Steroids

What effect does Pred have on the heart. I have Aortic Stenosis and LBBB.

Beachcomber2

•3 years ago

3 Replies

Lansoprazole

Does anybody know if long term use of Lansoprazole reduces B12 levels? Not vegetarian or vegan but wondering if a supplement is advisable.

Does anybody know if long term use of Lansoprazole reduces B12 levels? Not vege...

ConstanceD

•3 years ago

4 Replies

Vaccine query

Does anyone have any idea if the COVID vaccines which may soon be approved will be compatible with taking pred?

Does anyone have any idea if the COVID vaccines which may soon be approved will ...

Trewirgey

•3 years ago

6 Replies

Red cheeks?

I was diagnosed with PMR very recently and started on 20mg for 2 weeks. The pred took a good few days to get on top of the pains but I felt much better. I had...

I was diagnosed with PMR very recently and started on 20mg for 2 weeks. The pred...

Lyndalou62

•3 years ago

31 Replies

No energy

Hi everyone, once again lowered to 31/2mg predisolone but feel absolutely shattered walk round too shops and I have had enough. Think it must be my adrenalin...

Hi everyone, once again lowered to 31/2mg predisolone but feel absolutely shat...

Snnib

•3 years ago

39 Replies

Just had first phone consultation with rheumatologist

I have to have a face to face consultation with him but before this can happen he is sending me some blood tests to have done, which I assume I have done at my...

I have to have a face to face consultation with him but before this can happen h...

jaybee58

•3 years ago

2 Replies

Trying to help to newly diagnosed PMR

I was 54 when it first hit from nowhere. I was in absolute agony and nobody got it. I struggled with the idea of PMR at my age and simply couldn’t bear the...

I was 54 when it first hit from nowhere. I was in absolute agony and nobody got ...

Crackers1964

•3 years ago

13 Replies

PMR and adrenals waking up.....

I've had PMR for 20 months now and for the first year the inflammation was all through my body, but now it is only in my neck, feels kind of like whiplash and...

I've had PMR for 20 months now and for the first year the inflammation was all t...

remission

•3 years ago

17 Replies

need help.

hi,i just need some help,been waking most morning with a sore throat,once up it goes,also get a tingling in on my tough,sorry about spelling.have not been...

hi,i just need some help,been waking most morning with a sore throat,once up it ...

Flosy

•3 years ago

5 Replies

Fitbit Sense

Hi everyone, I just bought a Fitbit Sense watch and it has a ton of features that are useful to me and probably you too. It looks great and gives so much...

Hi everyone, I just bought a Fitbit Sense watch and it has a ton of features tha...

discoballs

•3 years ago

13 Replies

Re changing Pred Dosage

Hi, Still relatively new to all this and I am currently on 12.5Mg/day for 2 weeks with the Doc then dropping me to 10Mg for a month after that. Now I see the...

Hi, Still relatively new to all this and I am currently on 12.5Mg/day for 2 week...

Lauterbach

•3 years ago

8 Replies

An update ...

I reported a suspected flare about a week ago and followed the usual advice of returning to the dose I last felt well on. That was 5mgs, so stayed there for a...

I reported a suspected flare about a week ago and followed the usual advice of r...

LemonZest11

•3 years ago

27 Replies

Posts - PMRGCAuk | HealthUnlocked

PMRGCAuk

All posts for December 2020

Side Effect of TCZ

why so much muscle mass loss?

PMR and Joint Degeneration

DSNS Taper Question

Information on the Pfizer-BioNtech vaccine - facts from scientists with no media hype

Dry mouth and other sensations

Anyone out there who has multiple autoimmune conditions

Covid Vacine and Autoimmune

Flu jab and Covid vaccine

Reducing prednisone and pain levels

Tocilizimab (TCZ) side effects?

PMA and Vaccines

Anyone only taking Actemra

Unwell.

Debilitating acid reflux, sleep deprivation, end of my tether!

Itchiness

Dexa Scan

Prednisone and Methotrexate

Çardiac response to Steroids

Lansoprazole

Vaccine query

Red cheeks?

No energy

Just had first phone consultation with rheumatologist

Trying to help to newly diagnosed PMR

PMR and adrenals waking up.....

need help.

Fitbit Sense

Re changing Pred Dosage

An update ...

Search posts

Pinned Posts

Latest poll

A quick SURVEY on COVID-19 & PMR/GCA/LVV Since the start of the COVID-19 pandemic have you experienced any of the following? Part 2

Topics

Archive