Grateful

[Dewdrop456]

I eventually got diagnosed 4 years ago.Luckly I found this site at the beginning of my ‘sentence ‘.It’s been invaluable.I definitely appreciate all the advice and patience that the regular experts contribute.I like being part of this supportive group very much.When I see posts from regular contributors answering questions from new members or from the rest of us I feel safe.It’s lovely to see familiar names pop up too so we can keep an eye on each other’s progress.

I was just answering a post from Longtimer who called PMR The Beast,such a good name.

Take care everyone.

[YuliK]

Good evening Dewdrop

How are you feeling now after four years ?.

I hope at last , that things have improved for you. 👍

YuliK 😷

🌹🌹🌹🌹

[Dewdrop456 in reply to YuliK]

Hello Yupik,well the PMR has been up and down .I eventually decided to expect it to last for the average of 5 years and 9 months , this is only my 4th year so I am resigned to another possible couple of years.This stops me being impatient!( for now).I am currently trying not to worry too much about what happens when the Prednisone is insufficient for my body’s needs.I have thankfully been given some good advice .I just try to be guided by my symptoms . I have learnt so much from the kind people here. The main one being “that it’s not a race to zero prednisone “! This has helped me very much.

Actually the PMR is the least of my problems at the moment so my new ‘keeping calm’ practice is helping me to control the stress.

How about you?How many years in are you now?I am fairly sure that I remember seeing your name and reading your posts for as long as I’ve been on here.

Thanks for your kind wishes and good luck to you.

[Grammy80]

I just wanted to say how moved and touched I was when I read your post....because you echo the words in my heart. I've been just terrible about posting of late...moving and everything...but I read faithfully and am always impressed by the knowledge here as well as the empathy and compassion.

My very best to all of you with heartfelt wishes for what I know will be a 'unique' Thanksgiving as it will be here in the States~!

💖💖💖

[Dewdrop456 in reply to Grammy80]

Dear Grammy80,thank you very much. I do hope that you are feeling much better now.I think this year has been hard for you.Take care,very best wishes

[Grammy80 in reply to Dewdrop456]

I thank you! I do feel better and think most of it is due to less stress...there were just certain 'bumps' not driving, sometimes not seeing too well....enough to be a bit anxious about being alone. Now, I look forward to tomorrow and I certainly have many things to be thankful for....even with the virus~!💖

[Dewdrop456 in reply to Grammy80]

I am so pleased Grammy80. Well done for being so brave and positive! Take care.

[Snnib]

Could, not agree more great site great people and fantastic information. Read it every day with my morning cuppa.😀

[Dewdrop456 in reply to Snnib]

Dear Snnib, thank you.I usually don’t get a chance to read this until I go to bed which means that I miss my bedtime!There is always something interesting to read on here though so it’s worth it.We are so lucky. Hope all is well with you,best wishes.

[Ullswater]

Hi, I don't often comment on this site, but I read alot of the comments. I cannot contribute with advice as I'm still working my through PMR. However can I say, thank you to all of the amazing people who give their time to help and support others. Especially, after a long journey....those who now are free of the disease . Your knowledge and experience has made a great difference to my personal understanding and management of this condition . Hugging you all!! x

[Dewdrop456 in reply to Ullswater]

Hello,Ullswater,I completely agree.Everyone’s experience is very different.Actually many people often give support and not advice which is equally welcome I think.Very best wishes,