Posts - PMRGCAuk | HealthUnlocked

PMRGCAuk

20,306 members • 38,038 posts

All posts for November 2020

Adrenal Gland production

Morning At what dose of prednisolone does the adrenal gland start producing cortisol and is there a test to tell whether the glands are working.

Morning At what dose of prednisolone does the adrenal gland start producing cort...

Creamtea

•3 years ago

3 Replies

PMR

Is there any member who is taking methotextate in addition to Pred ? If so how are you managing and with what side effects? Anyone on Amitriptyline ?

Is there any member who is taking methotextate in addition to Pred ? If so how a...

choirsinger1986

•3 years ago

21 Replies

Results of 48 hours or 24 hours synacthen test

Thank you to SnazzyD.. Jinasc.. Sheffield Jane.. Songbird69, When I was told to stop prednisolone for 48 hours I came straight to this site as you are the...

Thank you to SnazzyD.. Jinasc.. Sheffield Jane.. Songbird69, When I was told to...

Digon7215

•3 years ago

4 Replies

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Just diagnosed

Have had aches and pains in my buttocks, hips, shoulders and arms since March and was beginning to think I was going mad when finally I got a diagnosis 2 days...

Have had aches and pains in my buttocks, hips, shoulders and arms since March an...

KatiePr

•3 years ago

12 Replies

Flare with normal blood results

I’ve had neck and shoulder pain for the last nine weeks, blood tests have been normal. Can you have a flare with normal readings please?

I’ve had neck and shoulder pain for the last nine weeks, blood tests have been n...

Pinkpepper

•3 years ago

11 Replies

Synacthen test and Prednisolone

Hi, I have been on prednisolone for 5.5 years. Now on 4.5 mgs. I have a short synacthen test next Tuesday 1st Dec. Have been told by the Medical...

Hi, I have been on prednisolone for 5.5 years. Now on 4.5 mgs. I have a shor...

Digon7215

•3 years ago

14 Replies

Extremely low fasting blood sugar reading.

I’ve always tended to low blood sugar readings 54-66 fasting. Non fasting it’s about 70. Even on prednisone the condition persists. My sister has the same...

I’ve always tended to low blood sugar readings 54-66 fasting. Non fasting it’s a...

Karenjaninaz

•3 years ago

9 Replies

Happy holidays

I’ve been pretty sick the past few weeks, move out of my house In to my son partners, ( my house is two flight) I couldn’t go down to get anything to eat I...

I’ve been pretty sick the past few weeks, move out of my house In to my son par...

MaryA_

•3 years ago

31 Replies

Ask the Experts: Covid Vaccine

This afternoon I joined a Webinar on the Covid vaccines run by by Prof. Tim Spector of the Zoe Project. He was joined by Prof. Peter Openshaw, a virus expert...

This afternoon I joined a Webinar on the Covid vaccines run by by Prof. Tim Spec...

piglette

•3 years ago

40 Replies

Waterworks 2

Apologies if this is a tired subject for the experienced on this forum, but I should really like to collate as much anecdotal evidence/ experience as possible...

Apologies if this is a tired subject for the experienced on this forum, but I s...

Frewen1

•3 years ago

92 Replies

Steroid alert card

Hi, because I am taking steroids should I be carrying a steroid alert card stating what dose I am on? Thanks

Hi, because I am taking steroids should I be carrying a steroid alert card stati...

Lico

•3 years ago

22 Replies

Fibromyalgia and PMR?

Hi there, I am 55 and was diagnosed with PMR in January 2019, put on 20mg pred as 15 didn’t do the trick. Added Alendronic acid due to a poor Dexa scan result...

Hi there, I am 55 and was diagnosed with PMR in January 2019, put on 20mg pred a...

Birdyloo

•3 years ago

9 Replies

Between a Rock and a Hard Place!

Hi there. I could really do with some counsel again please. Having suffered a flare at 2.5mg after returning to work, I eventually had to increase to 12.5mg...

Hi there. I could really do with some counsel again please. Having suffered a f...

Kendrew

•3 years ago

67 Replies

PMR evolving to RA?

Is there any experience of PMR changing to RA.? I’ve been told by my physician he feels this may be occurring with me Jer3jen

Is there any experience of PMR changing to RA.? I’ve been told by my physician...

jer3jen

•3 years ago

5 Replies

Some advice please ...

Once again I’m not sure what is going on. I’m still on the tocilizumab journey but only having it fortnightly due to low white cell count. This hasn’t seemed...

Once again I’m not sure what is going on. I’m still on the tocilizumab journey ...

LemonZest11

•3 years ago

17 Replies

Does GCA ever go away??

New to forum. I have had GCA forover 4 years. I have permanent retna damage to left eye. I was off predisone for 7 mo. Still with headaches. Did biopsy 2 weeks...

New to forum. I have had GCA forover 4 years. I have permanent retna damage to l...

winebag

•3 years ago

16 Replies

Omeprazole

Is anybody else taking Omeprazole as a matter of course. My doctor been in touch saying it protects stomach whilst taking Prednisolone and I should be taking...

Is anybody else taking Omeprazole as a matter of course. My doctor been in touc...

Dorsetgirl17

•3 years ago

43 Replies

Shoulders to thighs!

Hello I’ve had PMR for 6 years. Started on 15mg pred, which did the trick. Got down to 5mg with a few flares and increases in preds along the way, but never...

Hello I’ve had PMR for 6 years. Started on 15mg pred, which did the trick. Got d...

Zhenya

•3 years ago

12 Replies

Covid Vaccine information

Hi everyone , A fellow sufferer of PMR (who has been on steroids for 3 years and still on 10mgs due to ongoing symptoms ) recently heard that people with auto...

Hi everyone , A fellow sufferer of PMR (who has been on steroids for 3 years and...

larkthebark

•3 years ago

18 Replies

Hi. I'm new to forums and new to PMR and slightly shell shocked with my diagnosis.

I'm a healthy active 58yr old nurse and I work in a GP practice full time. I have had a very stressful few years. My eldest daughter has ulcerative colitis...

I'm a healthy active 58yr old nurse and I work in a GP practice full time. I ha...

Labrador3

•3 years ago

17 Replies

Left arm BP consistently higher than right arm BP

Hello everyone, just wondered if anyone has had anything similar? A review appointment at the GCA clinic last week picked up a 20 mm Hg difference in left arm...

Hello everyone, just wondered if anyone has had anything similar? A review appoi...

Horsewhisper

•3 years ago

19 Replies

Recurring Shingles

I have had PMR for almost 3 years and I’m currently taking 8.5mg prednisone. Around 2 years ago I developed shingles for the first time. A few month later my...

I have had PMR for almost 3 years and I’m currently taking 8.5mg prednisone. Aro...

Rudilynda

•3 years ago

22 Replies

what age did you get pmr

Hi i would be very grateful if anyone who was diagnosed with pmr either in their 40s or early 50s could let me know , as 3 doctors now have said my husband is...

Hi i would be very grateful if anyone who was diagnosed with pmr either in their...

zabzab12

•3 years ago

50 Replies

why dont specialists listen

Hi all my husband Ian went to see rheummy specialist today , she said he hasnt got pmr now and he didnt have it 8 years ago even though he had pmr symptoms for...

Hi all my husband Ian went to see rheummy specialist today , she said he hasnt g...

zabzab12

•3 years ago

30 Replies

Non-temporal GCA?

Just diagnosed with GCA, but have no issues with my temporal arteries (just all my large ones - aorta, thoracic, etc.). How common is that?

Just diagnosed with GCA, but have no issues with my temporal arteries (just all ...

winfong

•3 years ago

18 Replies

Update on Leeds referral

Hi all Getting used to uncertainty this year.. Had my second opinion referral with Leeds today. Super pleased I did although in for a tough few weeks again....

Hi all Getting used to uncertainty this year.. Had my second opinion referral wi...

Coffeebeans

•3 years ago

10 Replies

Shifting location of GCA pain during eating

I am a 76 yr old man, adequately fit and usually very healthy. One month ago, I phoned my doctor who had me in within two hours, put me on 60mg steroids,...

I am a 76 yr old man, adequately fit and usually very healthy. One month ago, I ...

Matt_Finish

•3 years ago

33 Replies

Vit D levels

Afternoon all Had some of my blood tests back and the only abnormal one at the moment is the Vit D, which I had thought might be low, but is this an AdCal job...

Afternoon all Had some of my blood tests back and the only abnormal one at the m...

Bcol

•3 years ago

47 Replies

Covid 19 vaccine

Wondering if anybody knows whether people on prednisolone for PMR will be protected by the Covid 19 vaccine? I’m on quite a low dose (3 mg). The information...

Wondering if anybody knows whether people on prednisolone for PMR will be prote...

Bobbikins

•3 years ago

4 Replies

Tapering - just checking

I have posted before about tapering too fast. Recap - Nov 2019. 15mg prescribed Total relief. Then 15, 15/12.5, 12.5, 12.5/10, 9 over 6 months. Started 8 and...

I have posted before about tapering too fast. Recap - Nov 2019. 15mg prescribed...

Queenie1901

•3 years ago

12 Replies

Posts - PMRGCAuk | HealthUnlocked

PMRGCAuk

All posts for November 2020

Adrenal Gland production

PMR

Results of 48 hours or 24 hours synacthen test

Just diagnosed

Flare with normal blood results

Synacthen test and Prednisolone

Extremely low fasting blood sugar reading.

Happy holidays

Ask the Experts: Covid Vaccine

Waterworks 2

Steroid alert card

Fibromyalgia and PMR?

Between a Rock and a Hard Place!

PMR evolving to RA?

Some advice please ...

Does GCA ever go away??

Omeprazole

Shoulders to thighs!

Covid Vaccine information

Hi. I'm new to forums and new to PMR and slightly shell shocked with my diagnosis.

Left arm BP consistently higher than right arm BP

Recurring Shingles

what age did you get pmr

why dont specialists listen

Non-temporal GCA?

Update on Leeds referral

Shifting location of GCA pain during eating

Vit D levels

Covid 19 vaccine

Tapering - just checking

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