Posts - PMRGCAuk | HealthUnlocked

PMRGCAuk

20,627 members • 38,767 posts

All posts for October 2020

Flare up

Can anyone tell me? If inflammation is shown in blood test but only slightly raised when on 5mg would the level be higher without the steriod I cannot get a...

Can anyone tell me? If inflammation is shown in blood test but only slightly rai...

Lindafrancis

•4 years ago

3 Replies

Losing the moon shape face, swollen neck and shoulders

Hi. At what dose did any of you notice a reduction in these side effects of Prednisone pls? I know we r all different, but I’d like to think I’m not to far of....

Hi. At what dose did any of you notice a reduction in these side effects of Pred...

Wraysbury

•4 years ago

88 Replies

Dr John Campbell on YouTube

Does anyone else watch Dr Campbell on YouTube? Updates on covid.

alvertta

•4 years ago

3 Replies

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GCA and Myocarditis

I've had GCA since 2016. I have had 4 heart attacks since then one this year. I've been to guys and st Thomas in London twice now. My heart is now damaged and...

I've had GCA since 2016. I have had 4 heart attacks since then one this year. I'...

Karendoz205

•4 years ago

8 Replies

Possible GCA flare and Pred dosage advice please!

Hello everyone, I’m looking for a bit of guidance - I have tapered very steadily and two weeks ago, I got down to a dose of 15 mg Pred. I’m also on 12.5 mg...

Hello everyone, I’m looking for a bit of guidance - I have tapered very steadily...

Horsewhisper

•4 years ago

8 Replies

? Osteoporosis

I fell off my e bike the other day, I cycle a lot and it’s the first time that has happened, and I think I have cracked a rib. I spoke to the surgery nurse but...

I fell off my e bike the other day, I cycle a lot and it’s the first time that h...

Bubble56

•4 years ago

14 Replies

Hydrocortisone!!!

Can I ask a question about hydrocortisone! I've read a lot that's been on here about it, I have to get injections for pain which as far as i know is...

Can I ask a question about hydrocortisone! I've read a lot that's been on here...

powerwalk

•4 years ago

12 Replies

Tapering query

Following the exceedingly helpful replies to my previous posts I realised I had tapered too fast for me from 8mg to 5mg and in steps that were too big. Had...

Following the exceedingly helpful replies to my previous posts I realised I had...

Queenie1901

•4 years ago

11 Replies

Adrenals ...

Just wondering ... at what point do the adrenals start to kick in? How does one know? Thanks.

Just wondering ... at what point do the adrenals start to kick in? How does one...

LemonZest11

•4 years ago

38 Replies

Chronic pain and covid-19

Just heard a fascinating item describing how the coronavirus appears to confer pain relief for chronic pain sufferers. Early days yet, but still.......

Just heard a fascinating item describing how the coronavirus appears to confer p...

HeronNS

•4 years ago

9 Replies

Muscle spasm

I developed a very painful muscle spasm in my right thigh and hip just as I got out of bed this morning. Is this a side effect of Actemra?

I developed a very painful muscle spasm in my right thigh and hip just as I got ...

alvertta

•4 years ago

3 Replies

Stupid is that stupid does

So, after committing myself to an xtra 5mg later in the day to see if it lessens the pain, right ! Alarm goes off 3am get the routine going get the 5mg ready...

So, after committing myself to an xtra 5mg later in the day to see if it lessen...

Shandkydd

•4 years ago

5 Replies

I Want My Holidays Back

Anyone else going nuts staying at home? I have a nice home and wife along with loads of tech gadgets but am getting tired of no foreign holidays :/

Anyone else going nuts staying at home? I have a nice home and wife along with l...

Hidden

•4 years ago

75 Replies

Flare up

I’m been on 2mg of Pred for 5 months and have recently very stressed due to family health problems and have suffered extreme left shoulder and neck pain which...

I’m been on 2mg of Pred for 5 months and have recently very stressed due to fami...

Pinkpepper

•4 years ago

7 Replies

Reducing to 5.5 mg of pred on dsos method and have new pain is this withdrawal of pred or flare

Diagnosed Oct 2018

Daffodilia

•4 years ago

14 Replies

do folks on an abnormal sleep schedule have their cytokine release at 4 AM or some other time?

I've learned from this forum that there is a release of cytokines around 4 AM, and these are the cause of the pain/stiffness we experience early in the day....

I've learned from this forum that there is a release of cytokines around 4 AM, a...

benhemp

•4 years ago

2 Replies

Mid Morning loss of energy

I was diagnosed with PMR in August was was initially on 20mg Pred, but now on 15mg. With the Doc's agreement I take the Pred after my evening meal and not in...

I was diagnosed with PMR in August was was initially on 20mg Pred, but now on 15...

Lauterbach

•4 years ago

7 Replies

Fed up and limping around trying to walk my dog on a crutch!

Barnaby2 Hi there-well I am still not completely diagnosed. In January the GP thought that I had PMR and was put on Prednisolone. The pain got a lot better...

Barnaby2 Hi there-well I am still not completely diagnosed. In January the GP ...

Barnaby2

•4 years ago

11 Replies

T2 Diabetes

Hi everyone. I hope you are all keeping well Well, I had pre Diabetes and then T2 and now it's all gone! I'm not diabetic anymore and am on 8mg of Pred these...

Hi everyone. I hope you are all keeping well Well, I had pre Diabetes and then T...

Hidden

•4 years ago

10 Replies

Prednisolone dose

Hi Taking my pred this morning and I miscalculated the tabs . I think I have taken 11.5 mg instead if 9 mg Will this be ok

Hi Taking my pred this morning and I miscalculated the tabs . I think I have ta...

Caradomben

•4 years ago

7 Replies

** no PMR !!!*

***UPDATE*** So I refused pred after last blood test showed PMR markers had dropped to just above normal. Changed HRT , which has been the best thing since...

***UPDATE*** So I refused pred after last blood test showed PMR markers had dr...

Aries789

•4 years ago

14 Replies

How Covid-19 spreads indoors - especially restaurants/pubs or at home with friends round for dinner

This appeared in our local online paper yesterday - so I have translated the article for you to read if you are interested....

This appeared in our local online paper yesterday - so I have translated the art...

PMRpro

Ambassador•4 years ago

65 Replies

THE ROCKY ROAD UNDER 5mg ?

Hello, this is my first post on this site. I've had PMR for 5 years. I am finally getting down to 2.5mg, but for the last few months , my health has been...

Hello, this is my first post on this site. I've had PMR for 5 years. I am final...

Flutterbies57

•4 years ago

37 Replies

No Actemra...No new issues😊

When I arrived in Indiana with a staph infection in my leg, the infectious disease specialist sent me to a rheumatologist who told me to stop taking Actemra...

When I arrived in Indiana with a staph infection in my leg, the infectious disea...

Grammy80

•4 years ago

9 Replies

Is drinking a lot of milk good for us? Or are other dairy products better ...

https://www.womenshealthnetwork.com/community/osteoblast/post/does-milk-increase-risk-of-fracture.aspx?utm_source=osteoblast&utm_medium=email&utm_campaign=bette

https://www.womenshealthnetwork.com/community/osteoblast/post/does-milk-increase...

PMRpro

Ambassador•4 years ago

65 Replies

COVID Shielding

Has anyone been told to shield with PMR? I have had it for two years now and my GP ( who is amazing by the way) told me I didn’t need to shield - just...

Has anyone been told to shield with PMR? I have had it for two years now and my...

Abbey17

•4 years ago

24 Replies

Symptoms of GCA / migraine

Hi, I was diagnosed with PMR in June and have since become aware of the possibility of developing GCA, and the importance of quick action on 'visual...

Hi, I was diagnosed with PMR in June and have since become aware of the possibil...

Ann1A

•4 years ago

18 Replies

Still no gastro-resistant 1mg pred!

As my pharmacy has still been unable to get hold of 1mg gastro resistant prednisolone tabs. (Unless they have an expiry date of Nov 2020) I decided to try and...

As my pharmacy has still been unable to get hold of 1mg gastro resistant prednis...

Kendrew

•4 years ago

21 Replies

Rapid reduction similar to Jancorb

I wrote a few weeks ago that my rheumatologist (first visit) had told me to reduce from 10mg down to 5mg in a month, dropping 2.5 every two weeks so he could...

I wrote a few weeks ago that my rheumatologist (first visit) had told me to redu...

Gunflash

•4 years ago

7 Replies

Getting face to face medical appointments

I'm wondering if those of us who are being'diagnosed and treated' remotely should just record the fact with our local Health Watch. Certainly now I can...

I'm wondering if those of us who are being'diagnosed and treated' remotely shoul...

Italy2

•4 years ago

16 Replies

Posts - PMRGCAuk | HealthUnlocked

PMRGCAuk

All posts for October 2020

Flare up

Losing the moon shape face, swollen neck and shoulders

Dr John Campbell on YouTube

GCA and Myocarditis

Possible GCA flare and Pred dosage advice please!

? Osteoporosis

Hydrocortisone!!!

Tapering query

Adrenals ...

Chronic pain and covid-19

Muscle spasm

Stupid is that stupid does

I Want My Holidays Back

Flare up

Reducing to 5.5 mg of pred on dsos method and have new pain is this withdrawal of pred or flare

do folks on an abnormal sleep schedule have their cytokine release at 4 AM or some other time?

Mid Morning loss of energy

Fed up and limping around trying to walk my dog on a crutch!

T2 Diabetes

Prednisolone dose

** no PMR !!!*

How Covid-19 spreads indoors - especially restaurants/pubs or at home with friends round for dinner

THE ROCKY ROAD UNDER 5mg ?

No Actemra...No new issues😊

Is drinking a lot of milk good for us? Or are other dairy products better ...

COVID Shielding

Symptoms of GCA / migraine

Still no gastro-resistant 1mg pred!

Rapid reduction similar to Jancorb

Getting face to face medical appointments

Search posts

Pinned Posts

Latest poll

A quick SURVEY on COVID-19 & PMR/GCA/LVV Since the start of the COVID-19 pandemic have you experienced any of the following? Part 2

Topics

Archive

Posts - PMRGCAuk | HealthUnlocked

PMRGCAuk

All posts for October 2020

Flare up

Losing the moon shape face, swollen neck and shoulders

Dr John Campbell on YouTube

GCA and Myocarditis

Possible GCA flare and Pred dosage advice please!

? Osteoporosis

Hydrocortisone!!!

Tapering query

Adrenals ...

Chronic pain and covid-19

Muscle spasm

Stupid is that stupid does

I Want My Holidays Back

Flare up

Reducing to 5.5 mg of pred on dsos method and have new pain is this withdrawal of pred or flare

do folks on an abnormal sleep schedule have their cytokine release at 4 AM or some other time?

Mid Morning loss of energy

Fed up and limping around trying to walk my dog on a crutch!

T2 Diabetes

Prednisolone dose

**** no PMR !!!***

How Covid-19 spreads indoors - especially restaurants/pubs or at home with friends round for dinner

THE ROCKY ROAD UNDER 5mg ?

No Actemra...No new issues😊

Is drinking a lot of milk good for us? Or are other dairy products better ...

COVID Shielding

Symptoms of GCA / migraine

Still no gastro-resistant 1mg pred!

Rapid reduction similar to Jancorb

Getting face to face medical appointments

Search posts

Pinned Posts

Latest poll

A quick SURVEY on COVID-19 & PMR/GCA/LVV Since the start of the COVID-19 pandemic have you experienced any of the following? Part 2

Topics

Archive

** no PMR !!!*