Loss of Taste??: Before I was diagnosed in December... - PMRGCAuk

PMRGCAuk

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Loss of Taste??

jarn profile image
jarn
13 Replies

Before I was diagnosed in December but had been suffering with jaw/shoulder pain since Oct, my taste buds stopped working. Smell is still okay. Some days I think it is improving, then next day things taste sour/sweet/bitter. Just curious if others have experienced this. Think GCA was lurking but not diagnosed and I did lose vision in one eye.

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jarn
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13 Replies
ignatz profile image
ignatz

I lost much of my sense of taste about a year ago after about 12 months on Prednisolone and about 6 months on Prednisolone & Methotrexate- prescribed for PMR. A horrible metallic cheese taste all the time, and unable to taste anything sweet. Can still smell everything.

Doctors have no idea why it has happened.

Good luck. I recommend chillies, fresh black pepper, raw onions, soy sauce.

jarn profile image
jarn in reply to ignatz

😒 Tx for responding as my doctors have n0 answers either. Love your advice tho....do love the spicy bits

ignatz profile image
ignatz in reply to jarn

..and ginger! Makes stir fry vegetables much more amusing.

jarn profile image
jarn in reply to ignatz

You are making me hungry now! HaHa Love ginger too & can actually taste some of it. I am a huge bread lover, and all tastes like sawdust now. Keep hoping!

ignatz profile image
ignatz in reply to jarn

Might I recommend Scottish gingerbread?

eg. google.com/search?q=mcvitie...

jarn profile image
jarn in reply to ignatz

Hmmmmmmmm. Sounds wonderful. Will check out our local shops here in B.C. Thank you for that.

PMRpro profile image
PMRproAmbassador in reply to ignatz

With butter on ... ;)

ignatz profile image
ignatz in reply to PMRpro

Ooops...almost hit 'Report' by mistake. Is butter 'self harm'?

PMRpro profile image
PMRproAmbassador in reply to ignatz

I don't think so! No doubt some wouldn't agree ;) Margarine is self-harm ...

SheffieldJane profile image
SheffieldJane

This is a key COVID symptom. Have you had a test?

jarn profile image
jarn in reply to SheffieldJane

Think the COVID is primarily "no smell"; but this occurred last October months before the pandemic. Thanks anyway

PMRpro profile image
PMRproAmbassador in reply to jarn

Smell and taste are closely allied ...

jarn profile image
jarn in reply to PMRpro

You're right; have no other symptoms and doc said "negative" but guess it doesn't hurt to do it. Thanks

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