Posts - PMRGCAuk | HealthUnlocked

PMRGCAuk

21,219 members•40,234 posts

All posts for February 2020

Do I stop prednisolone?

I have been on prednisolone for 11 years, tapering down then up again. Now on 5mgs. I have had a new knee, a plate and screws in my left foot and 2 new hips...

I have been on prednisolone for 11 years, tapering down then up again. Now on 5m...

albatross

•5 years ago

9 Replies

Severe pain for 5 months

Is it normal to have continuous severe pain with PMR? I've had severe pain since Sept. 2019. Sometimes I have a few good days when the pain is more bearable...

Is it normal to have continuous severe pain with PMR? I've had severe pain since...

librarylulu24

•5 years ago

20 Replies

Timing of Pred dose and adrenal recovery

PMR diagnosed March 2019. I had successfully tapered down to 7.5mg by October, but then seemed to get stuck for 3 months. Every time I tried 7.00, pains...

PMR diagnosed March 2019. I had successfully tapered down to 7.5mg by October, ...

Cross-stitcher

•5 years ago

3 Replies

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Increasing the Pred.

After about 10 days of self-pity regarding my increased CRP and ESR, and after all our encouraging and kind words of support, I have bitten the bullet and...

After about 10 days of self-pity regarding my increased CRP and ESR, and after a...

LemonZest11

•5 years ago

12 Replies

Overactive thyroid and PMR

Looking for help again please. I was diagnosed with an overactive thyroid in April 2018 by a routine blood test despite having no symptoms at all and was...

Looking for help again please. I was diagnosed with an overactive thyroid in Apr...

Ndnd

•5 years ago

7 Replies

Dorset lady's tapering plan

I've just found an alternative reducing plan that might help some folk. With PMR one size does not fit everyone so my advice is to try, try, try again until...

I've just found an alternative reducing plan that might help some folk. With PMR...

poppetpain

•5 years ago

6 Replies

Prickly numb feeling

Hi does anyone else get a numb prickly feeling in their face? I'm back on 40mg prednisolone which had affected my blood sugar & now have to take metformin ,...

Hi does anyone else get a numb prickly feeling in their face? I'm back on 40mg p...

Stradbroke13

•5 years ago

7 Replies

Patches

Hello, Have PMR and now experience reduced symptons; after tapering off medication. As I enjoy cycling I have tried patches to relieve...

Hello, Have PMR and now experience reduced symptons; after tapering...

DN-CTL

•5 years ago

6 Replies

Vitamins and supplements advise

Hi there, I haven taking the following tablets daily alongside the daily preds at different times of the day, I just wanted to ask if anybody can advise on...

Hi there, I haven taking the following tablets daily alongside the daily preds a...

Leepeelee

•5 years ago

7 Replies

Vitamin D: why you probably need rather more than you are taking!

https://www.womenshealthnetwork.com/blog/why-your-doctor-is-wrong-about-vitamin-d.aspx?utm_source=osteoblast&utm_medium=email&utm_campaign=betterbonesblogwhn200

https://www.womenshealthnetwork.com/blog/why-your-doctor-is-wrong-about-vitamin-...

PMRpro

Ambassador•5 years ago

81 Replies

Help please! Huge hair loss 😩😩😩

Oh my dear friends, I am so so unhappy! I’ve lost more than half of my hair in the last six weeks. I have only been on Pred for 6 months —- ( 15 tapering to...

Oh my dear friends, I am so so unhappy! I’ve lost more than half of my hair in ...

Smokygirl

•5 years ago

84 Replies

Flares

What a fantastic support this forum is! Thank you so much to everyone that has replied to my question. 😘

What a fantastic support this forum is! Thank you so much to everyone that has r...

Bubble56

•5 years ago

Be the first to reply

First post - Esomeprazole (Nexium)?

Firstly, I am so grateful to have found you all. I am going through this completely alone. I don't even have confidence in my rheumatologist. I need some...

Firstly, I am so grateful to have found you all. I am going through this comple...

agingfeminist

•5 years ago

29 Replies

Mycophenilate and other issues

Just asking - does anyone else have intolerable itching in feet. Especially if slightly warm. The sort where you want to rip off your skin. I do have diabetes...

Just asking - does anyone else have intolerable itching in feet. Especially if s...

Bfp1

•5 years ago

5 Replies

Still concerned about statins

I know this has been talked about quite recently but........! My cholesterol levels were 364, the doctor put me on statins about 2 years ago. I have never had...

I know this has been talked about quite recently but........! My cholesterol lev...

Constance13

•5 years ago

10 Replies

Restless legs/body, lack of sleep

Please can anyone recommend anything to help me sleep. I do lots of the self help stuff, magnesium tabs/baths, chamomile, meditation etc but I've had the worst...

Please can anyone recommend anything to help me sleep. I do lots of the self hel...

Artnmusiclover

•5 years ago

61 Replies

Low glucose, due to low cortisol?

I am low in Pred tapering between 1.25/0.625. My bloods are fine, taking them once a month, but my GP is concerned with the low level of glucose in my blood....

I am low in Pred tapering between 1.25/0.625. My bloods are fine, taking them on...

Pirnilla

•5 years ago

16 Replies

GCA , prednisone tapering and psychosis

I am GCA diagnosed. Am on pred taper and at 7/8 mg . My wife insists that I am exhibiting psychosis like symptoms such as Sudden agitation Sudden aggression...

I am GCA diagnosed. Am on pred taper and at 7/8 mg . My wife insists that I am e...

Iwillwin123

•5 years ago

14 Replies

Taper

What is the dead slow and stop method. I am new to this site. I have had P M R for three years with four flares. Now on 4mg of Actemra and wonder how I taper....

What is the dead slow and stop method. I am new to this site. I have had P M R f...

Blackcatlover

•5 years ago

14 Replies

When to take your pred

Just another thought from my journey with PMR. I would be in pain when I woke until my morning pred kicked in abetween 10 and 11am ☹️. So I started taking my...

Just another thought from my journey with PMR. I would be in pain when I woke un...

poppetpain

•5 years ago

5 Replies

How long to increase pred

I know I’ve seen it written before but just checking. How long can I stay on a 5mg increase and then drop back to previous dose? Thank you in anticipation. 🌻

I know I’ve seen it written before but just checking. How long can I stay on a 5...

Meggsy

•5 years ago

8 Replies

Dead slow and nearly stop

I had pmr for just over 2 years but took 3 years to taper off 15 mg of pred. I've been pain free for over 3years now but am still grateful for the help and...

I had pmr for just over 2 years but took 3 years to taper off 15 mg of pred. I'v...

poppetpain

•5 years ago

2 Replies

Nine... again!

Last year, approximately 8 months ago, I had reduced my Pred from, 10 mg to 9 mg! I remember the feeling of utter joy, when I realised that I had finally...

Last year, approximately 8 months ago, I had reduced my Pred from, 10 mg to 9 mg...

Hidden

•5 years ago

61 Replies

Tapering or jumping off !

Following my last post at the end of December I have followed my rheumatologists instructions and decreased the press by 5mg per week from a 20mg platform ,...

Following my last post at the end of December I have followed my rheumatologists...

jura19

•5 years ago

12 Replies

PMR or Fibromyalgia

I was diagnosed with PMR 5.5 years ago. My rheumatologist has never believed it was PMR even though I responded to steroids and had all the classic symptoms. I...

I was diagnosed with PMR 5.5 years ago. My rheumatologist has never believed it ...

Wenhaz

•5 years ago

29 Replies

Side effects

I'm new to this website having been diagnosed with PMR in December. Am concerned about possible side effects of taking Prednisalone, on tapering dose now on...

I'm new to this website having been diagnosed with PMR in December. Am concerne...

granofthewest

•5 years ago

13 Replies

Major Flare

I have had PMR for 5 years. After managing to reduce to 5 mgs from 6 mgs over two months, I developed severe pain in my arms and hands although my ESR is quite...

I have had PMR for 5 years. After managing to reduce to 5 mgs from 6 mgs over tw...

PMRSUE

•5 years ago

19 Replies

Update from bp

HI everyone. I have been quieter lately and have not been admitted for 6 months to a hospital. Now at point where I have been accepted to the Rheumy at uch. I...

HI everyone. I have been quieter lately and have not been admitted for 6 months ...

Bfp1

•5 years ago

1 Reply

Carpel tunnel

Recently diagnosed with pmr. My fingers pre Pred ballooned like sausages and hands and wrists very painful. All that has gone but having had it before when I...

Recently diagnosed with pmr. My fingers pre Pred ballooned like sausages and han...

Hidden

•5 years ago

10 Replies

Pred Taper probs

Ian 50 yrs old, I have been diagnosed with PMR, my doctor started me off on 20mg pred daily which worked well on managing my symptoms. After 2 weeks I tried...

Ian 50 yrs old, I have been diagnosed with PMR, my doctor started me off on 20m...

Leepeelee

•5 years ago

17 Replies

Posts - PMRGCAuk | HealthUnlocked

PMRGCAuk

All posts for February 2020

Do I stop prednisolone?

Severe pain for 5 months

Timing of Pred dose and adrenal recovery

Increasing the Pred.

Overactive thyroid and PMR

Dorset lady's tapering plan

Prickly numb feeling

Patches

Vitamins and supplements advise

Vitamin D: why you probably need rather more than you are taking!

Help please! Huge hair loss 😩😩😩

Flares

First post - Esomeprazole (Nexium)?

Mycophenilate and other issues

Still concerned about statins

Restless legs/body, lack of sleep

Low glucose, due to low cortisol?

GCA , prednisone tapering and psychosis

Taper

When to take your pred

How long to increase pred

Dead slow and nearly stop

Nine... again!

Tapering or jumping off !

PMR or Fibromyalgia

Side effects

Major Flare

Update from bp

Carpel tunnel

Pred Taper probs

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