Mycophenilate and other issues : Just asking - does... - PMRGCAuk

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Mycophenilate and other issues

Bfp1 profile image
Bfp1
5 Replies

Just asking - does anyone else have intolerable itching in feet. Especially if slightly warm. The sort where you want to rip off your skin. I do have diabetes and variable sugars. But mostly less than 10 now.

Trying to taper but many increasing pain spots. Arms neck back shoulders. So tired.

Last question mycophenolate. I am on 1g a day. Effects? Anyone have any tips or experience? Ears hurt and jaws now also. Not quite as strong as I was.

Love to you all. You are a great community xx

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Bfp1
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DorsetLady profile image
DorsetLadyPMRGCAuk volunteer

Would suggest feet problems issues are down to diabetes.

Hi, itchy feet prob very dry skin from high blood sugar and pred. Whenever I itch now I slap double base gel on. The top of my right foot used to drive me nuts!!!

Mycophenolate.... I found it made me feel yuck until I got to 750mg but once above that I have no effects I am aware of. On 2g a day for 3 years now more or less.

Bfp1 profile image
Bfp1 in reply to

Thanks will keep slapping on the cream. Taking anti histamene twice a day and at night. So sleepy a lot. Anything is better than the itching xx

in reply to Bfp1

It does drive you mad! I started massaging my calves and feet to try and get the blood circulating. You may be better trying an anti itch cream too.

SheffieldJane profile image
SheffieldJane

My feet really burn, I bet it is from the same family of complaint. I find that thoroughly moisturising them with E45 base cream eases it - they do one for itchy skin.

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