Posts - PMRGCAuk | HealthUnlocked

PMRGCAuk

20,342 members • 38,113 posts

All posts for February 2020

Does anyone have a diagnosis of aortic stenosis at the same time as pmr?

I was told about 8 years ago that my heart murmur suggested a problem with my Aorta. About 18 months ago an echocardiograph showed aorta not to be functioning...

I was told about 8 years ago that my heart murmur suggested a problem with my Ao...

janimaths

•4 years ago

9 Replies

General info on Prednisone and Prednisolone

I stumbled across this while Googling, it's easy to read and answers a lot of questions people have about this medicine including how it works, side effects...

I stumbled across this while Googling, it's easy to read and answers a lot of qu...

tangocharlie

•4 years ago

6 Replies

Not gca tapering?? Hurting today.

Where to start. Latest clinic appointment indicates inflammation markers not high enough for a diagnosis of Cga😔 So signed off and moved back to the care...

Where to start. Latest clinic appointment indicates inflammation markers not ...

Hoobabes

•4 years ago

30 Replies

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Medical professionals can join PMRGCAuk as a professional member for free

Did you know that Professional membership is offered free of charge to consultants, registrars, GPs, registered nurses, pharmacists, chartered...

Did you know that Professional membership is offered free of charge to consultan...

tangocharlie

•4 years ago

2 Replies

Advice re Short Term Pred

OH has been coughing and wheezing for a few days. GP has prescribed 25mg pred twice a day for three days, then stop. Will it be ok to come off 50mg just like...

OH has been coughing and wheezing for a few days. GP has prescribed 25mg pred tw...

Meggsy

•4 years ago

25 Replies

Interesting GP appt (update to ESR/CRP post)

A couple of days ago I asked for a link to the research on the 20% or so of us who develop PMR without raised ESR or CRP levels. Thanks to PMRPro and the...

A couple of days ago I asked for a link to the research on the 20% or so of us w...

Mai45

•4 years ago

3 Replies

PMR Shingles and tapering pred

Hello all. Just emerging from the fog of shingles and wondering when I should start tapering the pred again. I had an aborted attempt, I'm on 10mg. I reduced...

Hello all. Just emerging from the fog of shingles and wondering when I should st...

Seraphina56

•4 years ago

15 Replies

DL

Wishing my awesome Mother, Dorset Lady, a speedy recovery from her shoulder replacement today. I know she should be sleeping as I type but my bet is she is...

Wishing my awesome Mother, Dorset Lady, a speedy recovery from her shoulder repl...

MotherGCA2017

•4 years ago

90 Replies

PMR-GCA Scotland has a new website

PMR-GCA Scotland has a new website: As the NHS Scotland is a different organisation to NHS UK with different rules and practices so PMR-GCA Scotland is a...

PMR-GCA Scotland has a new website: As the NHS Scotland is a different organisat...

mbenneworth

•4 years ago

3 Replies

will i ever understand this and feel better?

hi,i am a few hours away from being 55 and i was diagnosed last week and still struggling to find out much information about why, how, and when etc. i was...

hi,i am a few hours away from being 55 and i was diagnosed last week and still ...

candy28

•4 years ago

27 Replies

Compromised immune system on Pred?

Is there any infomation/data on how much our immune system is compromised while on Prednisolone? Thinking about travel plans for the future with the new Corona...

Is there any infomation/data on how much our immune system is compromised while ...

Roltuba

•4 years ago

39 Replies

Struggling to get below 2 mg prednisolone

Last summer I tried the dead slow and nearly stop reduction program. When I got to 1.5 I started to feel tired and have muscle aches in my legs. It’s difficult...

Last summer I tried the dead slow and nearly stop reduction program. When I got ...

Bobbikins

•4 years ago

18 Replies

Oil of oregano

Do you know if it’s okay to take oil of oregano with prednisone? Years before having PMR I used it to get over the flu. My cough was gone in two days. I have a...

Do you know if it’s okay to take oil of oregano with prednisone? Years before ha...

singingloud

•4 years ago

14 Replies

My Pharmacist

My pharmacist brightened my day today by actively listening as we did a review of my meds. I think I may recruit her! She hadn’t heard of the condition even...

My pharmacist brightened my day today by actively listening as we did a review o...

Estellemac

•4 years ago

6 Replies

remaining scrap of vision blackening

My mum just called me to tell me that the tiny scrap of outlines in the top right of her right eye, which was her only "vision" left after going blind from...

My mum just called me to tell me that the tiny scrap of outlines in the top righ...

Jeromekjerome

•4 years ago

30 Replies

Normal Vitamin D level?

After the posts last week about Vitamin D, I thought I would get my levels checked as they haven't been tested for quite a while. I have just been told the...

After the posts last week about Vitamin D, I thought I would get my levels check...

suzy1959

•4 years ago

7 Replies

Breast cancer and PMR

I am 64 and have had PMR for about six years. I went for a routine mammogram at the beginning of the year and a tumour was found, I am having it removed in a...

I am 64 and have had PMR for about six years. I went for a routine mammogram at ...

Loco99

•4 years ago

12 Replies

groovy guy

Have been on pred for over 7 yrs. have been hovering from 10-12 mgs since Christmas but as of today I really cant tolerate the pain. I also have asbestosis and...

Have been on pred for over 7 yrs. have been hovering from 10-12 mgs since Christ...

groovyguy

•4 years ago

10 Replies

Is PMR and GCA a first world thing?

Is there any data showing if PMR GCA is seen in some countries more than others?

Is there any data showing if PMR GCA is seen in some countries more than others?...

rick518

•4 years ago

20 Replies

Homeopathic Cortisone

In response to the person who could not find 'Homeocortisone' on Google: look under Homeopathic Cortisone. Also sold by Amazon.

In response to the person who could not find 'Homeocortisone' on Google: look un...

km5yx7

•4 years ago

6 Replies

Update on Homeopathic remedy success.

I have now been off Prednisone for 4 month. I started with 20 mg Pred. in March 2019. Beginning of August I was still taking 20mg and on the advise of my...

I have now been off Prednisone for 4 month. I started with 20 mg Pred. in March ...

km5yx7

•4 years ago

28 Replies

So confused....

Ok so I am still on 10 mgs. Which I plan to stay for awhile. I awake each morning with shoulder and leg pains. After my prednisone kicks in I am finally able...

Ok so I am still on 10 mgs. Which I plan to stay for awhile. I awake each morni...

Hidden

•4 years ago

50 Replies

Advice if you can please

Hi was diagnosed pmr 6 years ago and have been on 2 mg Prednisolone last 18 months then tried very slow taper down to 1 over 5 weeks then started bad shoulder...

Hi was diagnosed pmr 6 years ago and have been on 2 mg Prednisolone last 18 mont...

figtree2

•4 years ago

2 Replies

Alcohol!!

When I was told that my condition was PMR, I spent hours googling it to find out more about it. That’s how I stumbled across HealthUnlocked. I have found that...

When I was told that my condition was PMR, I spent hours googling it to find out...

Leepeelee

•4 years ago

52 Replies

Anybody tried Sambucol?

I'm in the throes of my second heavy cold/cough since Christmas and feel very low-spirited as a result. A friend has advised me to take Sambucol, which is made...

I'm in the throes of my second heavy cold/cough since Christmas and feel very lo...

Marijo1951

•4 years ago

48 Replies

PMR and Antartica

In December I posted that I was going on a once in a lifetime trip/cruise to South America and Antarctica. I took advice from this group and paced my activity,...

In December I posted that I was going on a once in a lifetime trip/cruise to Sou...

Janet57

•4 years ago

29 Replies

Newly diagnosed PMR

Having had bad hip pain since before Christmas I then developed bad pains down the backs of my arms and wrists so made an appointment with GP. I wanted to know...

Having had bad hip pain since before Christmas I then developed bad pains down t...

Barnaby2

•4 years ago

18 Replies

RESEARCH Best studies regarding GCA and PMR

I wish I knew more. I found out yesterday that an uncle had GCA. (Not related by blood), unaware if he also had PMR. I will discuss with my cousins who...

I wish I knew more. I found out yesterday that an uncle had GCA. (Not related ...

shazstep

•4 years ago

6 Replies

Blotches...Splotches...?

I used to get these spots often on arms and legs when I was on lots of methylprednisolone, I mean like 120mg to 60mg per day. I have been tapering and am now...

I used to get these spots often on arms and legs when I was on lots of methylpre...

Grammy80

•4 years ago

24 Replies

COULD PMR BE A PHENOMENA OF THE GUT?

Hi. I have posted messages here in the past and want to offer a personal opinion on PMR and a possible explanation for how it may be caused. Let me say up...

Hi. I have posted messages here in the past and want to offer a personal opinion...

Pmrsurvivor1

•4 years ago

118 Replies

Posts - PMRGCAuk | HealthUnlocked

PMRGCAuk

All posts for February 2020

Does anyone have a diagnosis of aortic stenosis at the same time as pmr?

General info on Prednisone and Prednisolone

Not gca tapering?? Hurting today.

Medical professionals can join PMRGCAuk as a professional member for free

Advice re Short Term Pred

Interesting GP appt (update to ESR/CRP post)

PMR Shingles and tapering pred

DL

PMR-GCA Scotland has a new website

will i ever understand this and feel better?

Compromised immune system on Pred?

Struggling to get below 2 mg prednisolone

Oil of oregano

My Pharmacist

remaining scrap of vision blackening

Normal Vitamin D level?

Breast cancer and PMR

groovy guy

Is PMR and GCA a first world thing?

Homeopathic Cortisone

Update on Homeopathic remedy success.

So confused....

Advice if you can please

Alcohol!!

Anybody tried Sambucol?

PMR and Antartica

Newly diagnosed PMR

RESEARCH Best studies regarding GCA and PMR

Blotches...Splotches...?

COULD PMR BE A PHENOMENA OF THE GUT?

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