Posts - PMRGCAuk | HealthUnlocked

PMRGCAuk

20,320 members • 38,060 posts

All posts for February 2020

Slow tapering

Question for Dorsetlady. I like the idea of your slow tapering, but is it relevant for pmr, I know you were a GCA sufferer?

Question for Dorsetlady. I like the idea of your slow tapering, but is it relev...

Dorsetgirl17

•4 years ago

11 Replies

Gout??

Do any of you suffer with gout? It started when I was in my early 40s. For months I was in terrible pain (typical left toe) then nothing for years. I've had...

Do any of you suffer with gout? It started when I was in my early 40s. For mon...

Constance13

•4 years ago

23 Replies

This might be a silly question but..

Is it a stupid question to ask if there is any chance of regaining any sight. Even a teeny weeny bit? My mum was diagnosed too late despite lots of visits to...

Is it a stupid question to ask if there is any chance of regaining any sight. Ev...

Daughters2

•4 years ago

41 Replies

Want to take advantage of all our features? Just log in!

Looking for others with PMR living in London’s Royal Borough

Any PMRGCA people lining in the Royal Borough of K and C? Sorry, living in RBKC? And interested in meeting up?

Any PMRGCA people lining in the Royal Borough of K and C? Sorry, living in RBKC?...

Bennijax

•4 years ago

4 Replies

'SUDDEN DEAFNESS' - TREAT WITH CORTICOSTEROIDS OR RISK A RAPID LOSS OF HEARING !!

Hi All Because of the similarity of needing rapid treatment like with GCA I thought some forum members would find this interesting ... [An extract from a radio...

Hi All Because of the similarity of needing rapid treatment like with GCA I thou...

Rimmy

•4 years ago

21 Replies

Ocular Hypertension

Hi , l have never posted before but have found this site so helpful. I was wondering if anyone else has suffered from ocular hypertension due to the streroids...

Hi , l have never posted before but have found this site so helpful. I was wonde...

sallie1804

•4 years ago

7 Replies

Consultation today

So I went in for my consultation with the rheumatologist today but when I got there I was told she's gone off sick & will be seen by the new registrar She...

So I went in for my consultation with the rheumatologist today but when I got th...

Poppy1647

•4 years ago

13 Replies

Having a cold with PMR

Having PMR for 6 month now I wonder when you get a common cold how do you feel. Do have all the normal cold effects? I think i have caught a cold but feel a...

Having PMR for 6 month now I wonder when you get a common cold how do you feel. ...

Yogurt55

•4 years ago

8 Replies

A Health related Friday funny aside from Aunty Bleary-eyed.Guess what I am doing next week on Valentine's Day ?

💏💑💓💕💕💕💕💕💕💕💕💕💕💕💕💕💕💕💕💕💕💕💕💕💕💕💕💕💕💑💏 If you are planning any PMR/ GCA Friendly Romantic Encounters next Friday Forum Folk perhaps...

💏💑💓💕💕💕💕💕💕💕💕💕💕💕💕💕💕💕💕💕💕💕💕💕💕💕💕💕💕💑💏 If you are plann...

Blearyeyed

•4 years ago

98 Replies

Doctor wants me to start Alendronic Acid.

Hi all, had a bad couple of weeks, started when I tried to reduce my Pred for the first time down to 12.5mg from 15mg, after the first week I was feeling...

Hi all, had a bad couple of weeks, started when I tried to reduce my Pred for th...

Rebel21

•4 years ago

18 Replies

CRP / ESR - the % that ‘never raise’

Sorry to raise an old topic that I know PMRPro in particular has answered many times, but I haven’t been able to find the link I need in a search I’m one of...

Sorry to raise an old topic that I know PMRPro in particular has answered many t...

Mai45

•4 years ago

11 Replies

Travelling

I’m now on 2 mg Pred, doing reasonably well. I’m hoping to visit and travel around New Zealand 🙏🏼the end of the month. If I get a flare up, what dose should...

I’m now on 2 mg Pred, doing reasonably well. I’m hoping to visit and travel arou...

Breconblue

•4 years ago

7 Replies

Harlow Meet-Up Group

Our next meeting is on Monday 10th February at 1230 at the Redeemer Lutheran Church, Bush Fair, Harlow, Essex. We are a small, happy Group and the only Meet-Up...

Our next meeting is on Monday 10th February at 1230 at the Redeemer Lutheran Chu...

Roy46

•4 years ago

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GCA & Osteoporosis changed me

GCA DX May 2019. I've changed from a workaholic carpenter to relaxing, observing stars, and art work. I was a strong chubby person of short stature. Now, I'm...

GCA DX May 2019. I've changed from a workaholic carpenter to relaxing, observin...

Spanky2019

•4 years ago

14 Replies

Cold tingling feet with Prednisone and Actemra? (GCA)

Hello, has anyone experienced tingling feet while on prednisone? I mentioned the tingling to my rheumatologist last July, but he didn’t think it was prednisone...

Hello, has anyone experienced tingling feet while on prednisone? I mentioned the...

GratefulBailey

•4 years ago

32 Replies

Aching wrists and forearms

Just when I thought things had gone back to normal (well, symptoms back under control via preds) . This evening both wrists and forearms are aching like mad...

Just when I thought things had gone back to normal (well, symptoms back under co...

Leepeelee

•4 years ago

8 Replies

Bad emotional day.

Yesterday was the worst day of the past five months of my PMR journey. I forgot my morning medicine when I left for work. My brain was not up to making any...

Yesterday was the worst day of the past five months of my PMR journey. I forgot ...

singingloud

•4 years ago

16 Replies

Medication

Excuse if this has been asked before (by me 🙈). Since this PMR/Fibro episode started I’ve gone from being predominantly freezing to sweaty Betty. I shower...

Excuse if this has been asked before (by me 🙈). Since this PMR/Fibro episode st...

Singr

•4 years ago

10 Replies

HU survey

Some of you have received an email purporting to be from HU regarding a survey. At the moment we are checking if this is genuine and in the meantime please...

Some of you have received an email purporting to be from HU regarding a survey. ...

Yellowbluebell

•4 years ago

15 Replies

Tapering down at standstill

I was doing well every month with one less mg. Started 7mg January 1. Have alot of pain and stiffness again. Thought as the month wore on i could catch up and...

I was doing well every month with one less mg. Started 7mg January 1. Have alot ...

Paperroses

•4 years ago

5 Replies

Research Project

I have participated in research projects to do with aspects of our condition as a small contribution. When one dropped int my in - box, headed Health Unlocked,...

I have participated in research projects to do with aspects of our condition as ...

SheffieldJane

•4 years ago

20 Replies

Previously mentioned study - about weight related dosage of Prednisolone

I saw a mention on here (I think it was by someone called Navion?) about a study done that was recommending 0.19mg Prednisolone per kg body weight as a...

I saw a mention on here (I think it was by someone called Navion?) about a study...

Lookingforideas

•4 years ago

8 Replies

Diarrhoea

Does anyone suffer from episodes of diarrhoea with prednisolone ? I been getting it every few days .

Does anyone suffer from episodes of diarrhoea with prednisolone ? I been getti...

Caradomben

•4 years ago

12 Replies

Weight gain

I have been on prednisone 5mg at the moment, for nearly 8 years and really struggle to loose any weight. Has anyone ever lost the weight gained on prednisone I...

I have been on prednisone 5mg at the moment, for nearly 8 years and really strug...

Mkirby1

•4 years ago

5 Replies

Rheumy suspects CIPD

I had my first appointment with Rheumatologist last week. Unlike my doctor , he doesn’t think I have PMR but CIPD ( chronic inflammatory demyelinating...

I had my first appointment with Rheumatologist last week. Unlike my doctor , he ...

Denis61

•4 years ago

14 Replies

Headache

i was diagnosed with PMR on May 26, 2019 and started in prednisone. Currently at 7.5mg/day. I had left TKR on January 24, 2020. I’ve developed pretty severe...

i was diagnosed with PMR on May 26, 2019 and started in prednisone. Currently at...

Pmrat60

•4 years ago

15 Replies

A Huge thank you to all!

I would just like to thank all you amazing and wonderful people for your incredibly useful, brilliant, interesting and indeed original solutions to my hair...

I would just like to thank all you amazing and wonderful people for your incredi...

Smokygirl

•4 years ago

2 Replies

Upcoming surgery

I'm not sure if this an appropriate post but am facing a situation that is worrying about. I was first treated for PMR in Jan 2018 and started with various...

I'm not sure if this an appropriate post but am facing a situation that is worry...

Hidden

•4 years ago

12 Replies

Update, week three

Feb.04th, blood work ESR at 14, CRP at .7, down to 30 mg prednisone. I feel good no pain. Not sleeping but all is good

Feb.04th, blood work ESR at 14, CRP at .7, down to 30 mg prednisone. I feel goo...

Chevypickup

•4 years ago

2 Replies

Methotrexate with GCA

Hi everyone I have just got back from seeing rhumy and had my pred put up to 40mg and wants me to start on methotrexate, just wondered how people get on with...

Hi everyone I have just got back from seeing rhumy and had my pred put up to 40m...

Willow33

•4 years ago

2 Replies

Posts - PMRGCAuk | HealthUnlocked

PMRGCAuk

All posts for February 2020

Slow tapering

Gout??

This might be a silly question but..

Looking for others with PMR living in London’s Royal Borough

'SUDDEN DEAFNESS' - TREAT WITH CORTICOSTEROIDS OR RISK A RAPID LOSS OF HEARING !!

Ocular Hypertension

Consultation today

Having a cold with PMR

A Health related Friday funny aside from Aunty Bleary-eyed.Guess what I am doing next week on Valentine's Day ?

Doctor wants me to start Alendronic Acid.

CRP / ESR - the % that ‘never raise’

Travelling

Harlow Meet-Up Group

GCA & Osteoporosis changed me

Cold tingling feet with Prednisone and Actemra? (GCA)

Aching wrists and forearms

Bad emotional day.

Medication

HU survey

Tapering down at standstill

Research Project

Previously mentioned study - about weight related dosage of Prednisolone

Diarrhoea

Weight gain

Rheumy suspects CIPD

Headache

A Huge thank you to all!

Upcoming surgery

Update, week three

Methotrexate with GCA

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