Advice if you can please

[figtree2]

Hi was diagnosed pmr 6 years ago and have been on 2 mg Prednisolone last 18 months then tried very slow taper down to 1 over 5 weeks then started bad shoulder ache, top of arms and difficulty lifting arms and then scalp feeling sore. Over 4 days went from 2 to 5 then 7 then 10mg and last Sunday really worried GCA took 15mg. Spent 6 hours in A and E who confirmed test cleared not GCA. Drs app Tuesday last said to stay on 15mg for 2 to 4 weeks etc. As far as I know BT normal as surgery would phone if not. Have lost neck pain mainly but am very dizzy taccy and weird very wobbly and wondering if this was a pmr flare or not. Should also mention have Parkinson’s 9 years and on more medication Sinemet than 6 years ago. I just can’t function at all like this, so grateful advice please.

[PMRpro Ambassador]

On what grounds did they say it was not GCA? What you are describing now isn't really typical of GCA - but there is obviously something amiss and they need to look into it.

I have to say - if I ever get to 2mg I shall stay there!!!

[Blearyeyed]

Have they checked you for a Flare in your Parkinson's as well as checking for signs if PMR or GCA?

This can also cause these symptoms.