Alcohol!!: When I was told that my condition was... - PMRGCAuk

PMRGCAuk

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Alcohol!!

Leepeelee profile image
52 Replies

When I was told that my condition was PMR, I spent hours googling it to find out more about it.

That’s how I stumbled across HealthUnlocked. I have found that being a part of a group of people who are all dealing with the same or similar health issues is really good, some of the advise that I have had from some of you has been really helpful and reassuring 😊. my partner is very caring and brilliant at looking after any of my family that are unwell so I am in safe hands!

One thing that I have stopped since PMR began, is alcohol 🍷! I used to have a drink nearly every evening which I know isn’t healthy, I was planning to cut back anyway!

It has been 6 weeks now since I had a glass 🥃 of rum! I’m really missing it now. I have read that alcohol is not good with PMR. Does this mean that I can’t have a little one occasionally!!??

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Leepeelee profile image
Leepeelee
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52 Replies
Yellowbluebell profile image
Yellowbluebell

I dont think you necessarily need to give up completely. I have an occasional drink of cider or lager when i fancy one. I havent over indulged since pmr but during my first christmas i didnt deprive myself either and didnt suffer any sude effects. Maybe just try o e drink at home and see how you feel. YBB

in reply toYellowbluebell

Errrm.... Races

Highlandtiger profile image
Highlandtiger

I specifically asked the GP about alcohol when I was prescribed pred (he did look a bit taken aback but I took the view it’s always best to know about these things). He said I didn’t need to stop but only to take it in moderation, which is what I do. I’d miss wine but equally if he’d told me I couldn’t have any I’d have complied without too much difficulty. I've not had any problems with the odd glass or two.

PMRpro profile image
PMRproAmbassador

I found my tastes changed but I haven't stopped drinking.wine (except in naff pubs in the UK but I'm not sure that what they sell is wine ;) ) although I have had periods of no alcohol - which made not the slightest difference. In fact, during the first 5 years of PMR without pred it was a glass of wine in the evening that was the most effective pain relief I found!

Joanbill13 profile image
Joanbill13 in reply toPMRpro

So pleased you said that. I’ve cut down as I don’t fancy it so much now but it certainly cheers me up to have a small glass before dinner

GOOD_GRIEF profile image
GOOD_GRIEF

Everything in moderation including abstinence.

But I would leave a time gap of a couple of hours between a pred dose and alcohol.

PMRpro profile image
PMRproAmbassador in reply toGOOD_GRIEF

Blimey - when do you start? Morning pred should fit ok with a cocktail hour at 5pm ...

GOOD_GRIEF profile image
GOOD_GRIEF in reply toPMRpro

When I was on a split dose, if I wanted to drink in the evening, I had to look at the clock.

Dinner at 8 or 9 PM here, so it matters.

PMRpro profile image
PMRproAmbassador in reply toGOOD_GRIEF

Ah so ...

powerwalk profile image
powerwalk

I dont think its any harm, If you can tolerate it. I cannot, i feel like hell if i have it. Pmr brought my system very low. I used to like a glass of wine occasionally but even one now has its payback for me. I mean i still very occasionally have some but its more for an occasion. I battle fibro too so that doesnt help!!! Certainly if i didnt have such a bad tolerance i would have it within reason!!

tangocharlie profile image
tangocharlie in reply topowerwalk

Bad reaction to wine was one of the things that eventually led me to discover I have histamine intolerance - wine is the biggest culprit. It could also be the sulphites of course. I now can't drink any alcohol except fizzy stuff like champagne/prosecco or the odd glass of Guinness.

powerwalk profile image
powerwalk in reply totangocharlie

Oh really? Yeah im not too good with any of it, unfortunately!!! I do miss my glass of wine on Saturday night!!

Mary63 profile image
Mary63

I still drink in the same pattern as before PMR. None during the week and too much at the weekends! I get no pain symptoms when on the right dose of pred for me. Alcohol makes no difference to that.

Leepeelee profile image
Leepeelee

Do you think that alcohol may effect the recovery time? It’s just that from what I have read online and on toys of posts on here, a healthy diet can speed up recovery?

PMRpro profile image
PMRproAmbassador in reply toLeepeelee

I doubt it speeds up recovery - my diet is pretty healthy and it makes no difference. What it does seem to me to do is minimise a lot of the complaints people have about PMR and pred.

Yellowbluebell profile image
Yellowbluebell in reply toLeepeelee

A healthy diet low in carbs stops you putting on weight but doesnt cure or speed up the recovery from pmr although eating healthily usually makes you feel better anyway even if just psychologically.YBB

Highlandtiger profile image
Highlandtiger in reply toYellowbluebell

Oh, a new profile pic! You've got the puppy!! What’s her name? Is she a collie? 🐶 👏🏼

Yellowbluebell profile image
Yellowbluebell in reply toHighlandtiger

Shes a welsh corgi and is absolutely adorable. Shes called milly

in reply toYellowbluebell

A I would be stealing her if she lived closer😊🌻

PMRpro profile image
PMRproAmbassador in reply to

The thought of you two getting together ... ;)

Yellowbluebell profile image
Yellowbluebell in reply toPMRpro

Was going to suggest meeting when we head up to my mums near easter!! Is the north ready for me and scoops together though.!!

PMRpro profile image
PMRproAmbassador in reply toYellowbluebell

The mind boggles!!

Yellowbluebell profile image
Yellowbluebell in reply toPMRpro

Its a very scary thought even for me and i already know how mad we both are!!

in reply toYellowbluebell

😈 - there's a nice lake area half way between.

PMRpro profile image
PMRproAmbassador in reply to

Have you drowned yet this time?????

in reply toPMRpro

Just about. I was unblocking leaves from drains then it started storming.... There the first lull since last night.

PMRpro profile image
PMRproAmbassador in reply to

My nephew put up a picture of a very wet road along the Tay in Dundee with a few cars floating in it. I have never seen that before!!!

Yellowbluebell profile image
Yellowbluebell in reply toPMRpro

It happens regularly down here in bosham because idiots refuse to read the sign that says the tide will come right up the slipway and you often see a car sail past the cafe!!

Yellowbluebell profile image
Yellowbluebell in reply to

We can definitely meet there if you are up for it? It will be around easter time probably.

in reply toYellowbluebell

Talk nearer... Only family stuff o get in the way.

Yellowbluebell profile image
Yellowbluebell in reply to

My family just go out of their way to annoy me no matter what i plan or say!!

in reply toYellowbluebell

Now the kids adults I don't spend the Easter with them all as much while mum and dad at work. They live in London and birmingham now.

Yellowbluebell profile image
Yellowbluebell in reply to

Bit of a trek to either really for youx

Lookingforideas profile image
Lookingforideas in reply toYellowbluebell

Are there any groups in the north of England who ever meet up? I’m in Lancashire between Manchester and Preston ...

tangocharlie profile image
tangocharlie in reply toLookingforideas

We have a thriving group in Leeds and Ilkley. We are meeting up this Thursday in Leeds. Contact ilkley@pmrgca.org.uk for more info

Lookingforideas profile image
Lookingforideas in reply totangocharlie

Thanks so much for letting me know. Unfortunately I can’t make it this Thursday but I would really appreciate being added to your group so I get notified of the next one please? Cheers!

Estellemac profile image
Estellemac in reply toLookingforideas

We have one in Ilkley soon too it’s just a short train ride from Leeds lovely day out. Send your email to Ilkley as tangocharlie said and I’ll send you details.

Lookingforideas profile image
Lookingforideas in reply toEstellemac

Thanks, I did realised I should have done that after I asked to be asses so I looked on the website. I’ll send my email address

Thanks again 👍

ParsnipSoup profile image
ParsnipSoup

Everything in moderation is my motto.

Leepeelee profile image
Leepeelee

Well, based on your advise, I am back on the alcohol!

Just a lot less than before !!

Blearyeyed profile image
Blearyeyed

It actually depends on the other medication that you may be on for other illnesses or the side effects and you as an individual.

If you are eventually put on certain Steroid Sparers like Methotrexate or Azathioprine alcohol should be avoided , as these put more burden on you liver and kidney function.

If you take other Pain Medications like Tramadol , Anticonvulsants and some Antidepressants alcohol is best avoided because it can make you very drowsy and can cause accidents.

If you have Digestive issues , it suffer from GERD and have stomach side effects from taking steroids it is better not to drink alcohol .

If you have no other issues , the odd glass of rum at the weekend may well be fine , you can try it and see how you feel.

I find I can't manage a drink , but that's Me , everybody's different .

So , if your OK with it you could raise a glass for me

IslandRN profile image
IslandRN

I enjoy a Scotch, Guinness or lovely glass of red wine a few times a week without issue. 🍷🥃🍻

Lookingforideas profile image
Lookingforideas in reply toIslandRN

Thats good to hear 😃. Having been on dry January anyway, and then thinking I couldn’t drink at all on Pred, I was thinking I was in for a long tee total period. It’s nice to know I will be able to join in on social occasions now as I think I’d be missing it🥂

Maisiek profile image
Maisiek

I’ve not found the odd glass of wine a problem: mixes ok with Naproxen.

Constance13 profile image
Constance13

My coffee and liqueur every evening cheers me up and makes my pain endurable. Can't be bad!🍸💥

diana1998 profile image
diana1998

Gave up alcohol when diagnosed. Now even a sip to try my OH's goes straight to my head. So think I will be on tap water till I snuff it. Very boring when everyone else is drinking but I can get really merry on water!! 😂

Daffodilia profile image
Daffodilia

I think alcohol is not good with pred so I have avoided since Oct 18 - can upset stomach

Bridge31 profile image
Bridge31

I haven’t really changed my drinking pattern, ( above the government guidelines 🙈) and it has made no difference to me unless it contributes to the night sweats.

LemonZest11 profile image
LemonZest11

The only vice I have left! I have continued to enjoy vino every night and I think it has helped!! I don't go overboard but certainly drink regularly and it hasn't had a negative impact ... doc said it was ok, but I am not on any other medications. Hic 🥂, you know what they say about Aussies, but then I think we were taught by the Brits! 😜💃

Bubble56 profile image
Bubble56

I agree, it’s the only pleasure I have left and I’ll have a glass or two of red wine most evenings and I look forward to it!!!!It helps me get through the hunger and agitation of night times. 🍷

Noosat profile image
Noosat

I occasionally have a glass of wine with dinner, and sometime more than that when I am in a social gathering.

Whitner profile image
Whitner

I hadn’t been drinking then went on vacation and enjoyed a beer or glass of wine with dinner with no ill effects except weight gain which also could be because we ate out often 😊

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