Posts - PMRGCAuk | HealthUnlocked

PMRGCAuk

20,598 members • 38,707 posts

All posts for October 2019

I'm 48 today! Why this is a sign of Birthday ' Brain Fog' and is this just another unwelcome gift of GCA/PMR?

I know we don't usually discuss our birthdays on the Forum but I thought this milestone in my Life might be worth mentioning to All you understanding folks...

I know we don't usually discuss our birthdays on the Forum but I thought this mi...

Blearyeyed

•5 years ago

100 Replies

Changed diabetic meds and now feeling PMRy

Hello ladies and gents. I am tired and achy. My fatigue levels are up and I am back to needing to pace myself more. Why I hear you ask. I am wondering (and am...

Hello ladies and gents. I am tired and achy. My fatigue levels are up and I am ...

IdasMum

•5 years ago

19 Replies

How can 1/2mg make such a difference?

Hi everyone. On Pred since 2014 and with many ups and downs got down to 1/2mg. I startled to feel symptoms when I got down to 1mg but carried on doing the dead...

Hi everyone. On Pred since 2014 and with many ups and downs got down to 1/2mg. I...

Attic

•5 years ago

11 Replies

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Cyclophosamide

Anyone else here get put on cyclophosamide ( chemotherapy) for severe GCA? My relative was put on high steroids, which didn’t help, then tried methotrexate...

Anyone else here get put on cyclophosamide ( chemotherapy) for severe GCA? My re...

Relative

•5 years ago

5 Replies

Adrenals awakening? /Enough Prednisone?/Sleeplessness.

It’s now 02.45 am. I was at work all day and will have to get up in 3 hours for work.Its been another restless sleepless night. A couple of days ago I started...

It’s now 02.45 am. I was at work all day and will have to get up in 3 hours for ...

Dewdrop456

•5 years ago

8 Replies

Biologics

Maybe I just haven't found the right section, but I don't see any mention of anyone taking a biologic drug in addition to prednisone. Is anyone taking Actemra...

Maybe I just haven't found the right section, but I don't see any mention of any...

valb232

•5 years ago

64 Replies

Are GCA symptoms the same each time it returns?

Background ..... started treatment for GCA in Apr 2015. PMR started in Oct 2017. I have been off steroids for 3 1/2 months but struggling with pain which seems...

Background ..... started treatment for GCA in Apr 2015. PMR started in Oct 2017....

allykat

•5 years ago

24 Replies

Help with tapering

Help please. I have not posted for a while as I have had a very traumatic year and did not know how to express myself. In March one of my granddaughters...

Help please. I have not posted for a while as I have had a very traumatic year ...

Sorop

•5 years ago

24 Replies

New GP

Thought I would post an update as today I had a meeting with my new GP. She was very knowledgeable about PMR, had done a thesis on PMR while working in...

Thought I would post an update as today I had a meeting with my new GP. She was...

Billswife

•5 years ago

19 Replies

What to do next.

My cough seems better. I used the sinus rinse and took the antibiotics but on reading up on it I think raising the head of my bed and not eating a few hours...

My cough seems better. I used the sinus rinse and took the antibiotics but on re...

Lanakay

•5 years ago

26 Replies

The immune system

Book recommendation: Matt Richtel. An Elegant Defense: the extraordinary new science of the immune system, A Tale in Four Lives.

Book recommendation: Matt Richtel. An Elegant Defense: the extraordinary new sc...

HeronNS

•5 years ago

6 Replies

Temporal Arteritis

I was led to believe that I am being treated for PMR. Because I have a very sore skull and very limited neck movement, and it’s been ongoing, my GP sent me...

I was led to believe that I am being treated for PMR. Because I have a very sor...

Wayfair

•5 years ago

11 Replies

Into

Hi all I am 50 I have two grown up children and one beautiful grandson whom is my little pain killer, and I am self employed caring for children in my own...

Hi all I am 50 I have two grown up children and one beautiful grandson whom is m...

carolBF

•5 years ago

10 Replies

Is this a Pred side effect??

I have a niggling pain in my sternum area when stretching/ reaching and bending forward.Is this a side effect of taking pred ? I currently take 9 mg Dx May......

I have a niggling pain in my sternum area when stretching/ reaching and bending ...

Croft9232

•5 years ago

13 Replies

Back off the horse ...

I have had a complete relapse. Some of you might know that I have struggled since getting down to 5mg and then 4. Attempted a taper from 4.5 to 4...

I have had a complete relapse. Some of you might know that I have struggled sin...

LemonZest11

•5 years ago

15 Replies

GP suspects PMR

Hi, I’m new to this site although I’d joined HU to view the hysterectomy & Endometriosis sites. Having had endometriosis & fibroid problems for several years i...

Hi, I’m new to this site although I’d joined HU to view the hysterectomy & Endom...

Bowdenambleside

•5 years ago

8 Replies

why dont they believe us?

Had to see a different GP this morning as needed updated meds and my doctor was off sick. I had blood tests a couple of weeks back and asked for the results....

Had to see a different GP this morning as needed updated meds and my doctor was ...

LisaMun

•5 years ago

17 Replies

5x1 mg or 1x5 mg that is the question

Hi I am wondering if it makes any difference if I take 1x 5 mg or 5x1 mg. Silly question perhaps, but I’ve had to increase from 2 to 5 mg of prednisone due to...

Hi I am wondering if it makes any difference if I take 1x 5 mg or 5x1 mg. Silly ...

9lives

•5 years ago

11 Replies

Should I increase Prednisolone

Hi all, Been on my short pmr journey since beginning of September, I have been taking 15mg Prednisolone for 2 and a half weeks , initially symptoms eased...

Hi all, Been on my short pmr journey since beginning of September, I have been t...

firesetter

•5 years ago

7 Replies

Embarrassing

This weekend gone went out with husband and had a short walk round shops after a light lunch. On way back to car park I suddenly needed to go to the toilet...

This weekend gone went out with husband and had a short walk round shops after a...

Libs66

•5 years ago

18 Replies

4 o'clock here in UK anyone out there?

4 o'clock in the morning, and I've been awake and in pain for hours. Last Tuesday had surgery in neck to remove half thyroid and very large goitre, very...

4 o'clock in the morning, and I've been awake and in pain for hours. Last Tuesda...

Hidden

•5 years ago

15 Replies

Enteric coated prednisone

My insurance will no longer pay for Rayos. What is the name of an enteric coated prednisone other than Rayos? I can't find one. Thanks

My insurance will no longer pay for Rayos. What is the name of an enteric coated...

Linny3

•5 years ago

3 Replies

Taking Prednisone with cbd oil?

This is the highlights of an article I was reading on taking cbd oil with prednisone. https://www.marijuanabreak.com/does-cbd-oil-interact-with-prednisone If...

This is the highlights of an article I was reading on taking cbd oil with predni...

Linny3

•5 years ago

26 Replies

Post Move in one month GCA back

Some days I just want to stay in bed but I don't.. My eye physician who is very good on tapering slowly has bumped me from 20 mgs to 40 mgs due to jaw pain....

Some days I just want to stay in bed but I don't.. My eye physician who is very...

Hidden

•5 years ago

14 Replies

I'm new here

Diagnosed May. Decreasing Pred from 15mg now at 11. 3 months for appointment with rheumatologist, who prescribed Azathioprine. I feel to soon to go down this...

Diagnosed May. Decreasing Pred from 15mg now at 11. 3 months for appointment wit...

Turbert

•5 years ago

4 Replies

Laser help please

Have been using Monopost drops for glaucoma, Opthalmologist has now given me the option to have laser treatment , apparently I would not need any drops...

Have been using Monopost drops for glaucoma, Opthalmologist has now given me the...

Lancashirelass07

•5 years ago

5 Replies

Common or Rare

Read that PMR is rare, read that PMR is common. I am confused.

Gary1310

•5 years ago

49 Replies

CBD oil and PMR

I have pain in my big toe and wonder if CBD oil would help or would it create problem with prednisone

I have pain in my big toe and wonder if CBD oil would help or would it create pr...

barbthy

•5 years ago

2 Replies

How good/bad would be be to have tooth implant with GCA and on Pred?

Can anyone advise on having a tooth implant whilst having GCA (12 months in and down to 12 mg of Pred). I have had one other implant so know the pain but I...

Can anyone advise on having a tooth implant whilst having GCA (12 months in and ...

Fieldofdreams

•5 years ago

12 Replies

How long to stay on 10mg prednisolone?

Hello, I have been on 10mg pred for a month (managed to reduce down from starting dose of 15mg) and it barely keeps the symptoms at bay. No pain but muscle...

Hello, I have been on 10mg pred for a month (managed to reduce down from startin...

selkie2019

•5 years ago

14 Replies

Posts - PMRGCAuk | HealthUnlocked

PMRGCAuk

All posts for October 2019

I'm 48 today! Why this is a sign of Birthday ' Brain Fog' and is this just another unwelcome gift of GCA/PMR?

Changed diabetic meds and now feeling PMRy

How can 1/2mg make such a difference?

Cyclophosamide

Adrenals awakening? /Enough Prednisone?/Sleeplessness.

Biologics

Are GCA symptoms the same each time it returns?

Help with tapering

New GP

What to do next.

The immune system

Temporal Arteritis

Into

Is this a Pred side effect??

Back off the horse ...

GP suspects PMR

why dont they believe us?

5x1 mg or 1x5 mg that is the question

Should I increase Prednisolone

Embarrassing

4 o'clock here in UK anyone out there?

Enteric coated prednisone

Taking Prednisone with cbd oil?

Post Move in one month GCA back

I'm new here

Laser help please

Common or Rare

CBD oil and PMR

How good/bad would be be to have tooth implant with GCA and on Pred?

How long to stay on 10mg prednisolone?

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