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[carolBF]

Hi all

I am 50 I have two grown up children and one beautiful grandson whom is my little pain killer, and I am self employed caring for children in my own home, i have a disabled husband therefore my work is the only income, apart from DLA that pays the bills.

I and have had PMR for around 5 years, I was only diagnosed last October. I was on Steroids but I have had muscle ruptures from them so come off them, I am in so much pain everywhere it’s easier to say what I can do not what I can’t,

I have a positive attitude go swimming/walking in the pool most days,

I don’t take pain killers as they hurt my stomach and keep me awake at night,

[Rose54]

Bless you I dont know how you are coping without Preds

But welcome to the Group

I was without for some time before diagnoses in Sept 2015 and was almost bedbound and totally dependant on others

Please Take Care

[carolBF in reply to Rose54]

That’s me now really, I have resided to try a low dose of prednisone but not sure how they will effect me, any ideas are welcome

[Rose54 in reply to carolBF]

I really dont know but I am sure thier will be someone on later with helpful advice

[PMRpro Ambassador in reply to carolBF]

You won't know until you try. They have next to no effect on me - even at 15mg.

You can try them - my first experience was 6 weeks with 2 weeks each at 15, 10 and 5mg and stop (which is a normal taper for some things, doesn't work for long for PMR). Within 6 hours I had a miracle, 6 hours after missing the first 5mg dose I was in bed in tears and in worse pain than before.

[PMRpro Ambassador]

I don't know how you cope without pred - I had 5 years of it and I really couldn't face the thought of going back to that. Painkillers never even took the edge of my pain - so never missed them!

[SheffieldJane]

Like others I just don’t know how you cope. Has any doctor explained the link between taking steroids and your ruptured muscles?

Prednisalone was a blessing to me but I still had to do my part with PMR like pacing my activities and resting. This is a rock and a hard place that you are in. A good doctor should be able to advise you on the use of Prednisalone in your circumstances.

[carolBF in reply to SheffieldJane]

Thank you, my doctor is lovely but has very limited knowledge of PMR

My specialist was rubbish he told me to go swimming and how to come of the steroids and said goodbye he didn’t want to see me again

[PMRpro Ambassador in reply to carolBF]

At least he did the right thing there!

[piglette]

My gosh, I could not have got to the pool, let alone got into it when I was first diagnosed with PMR. I would have bought a one way ticket to Switzerland by now.

[carolBF in reply to piglette]

I have a stick to help me, it is the only time I can think about something else instead of the pain, my husband and son are amazing