why dont they believe us?: Had to see a different... - PMRGCAuk

PMRGCAuk

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why dont they believe us?

LisaMun profile image
17 Replies

Had to see a different GP this morning as needed updated meds and my doctor was off sick. I had blood tests a couple of weeks back and asked for the results. He just completely looked at me blankly and said they are normal. I mentioned that i was suffering stiffness and pain in my shoulders etc and my hips plus had concrete legs. He just looked at me and said nothing. He said my ESR was 5. I told him i have Polymyalgia and he asked who had diagnosed me! I said i had i had seen a Rheumatologist and he just huffed.

So frustrating and upsetting, was feeling low anyway so it hasnt helped.

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LisaMun profile image
LisaMun
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17 Replies

I presume you are on pred.... That means your markers should be controlled... What a way to treat someone. I hope he didn't.

If you are not on pred then inform the total ignoramus that up to 20 per cent if people with pmr don't have raised markers.

Even way he needs some lessons on how to treat patients. Have a scream then start again. Not an ideal way to start the week! 🌻

Constance13 profile image
Constance13

Refuse to see that doctor again and tell the receptionist/nurse why?

Disgusting way to treat a patient. I'd have stared hard at him, said nothing and just walk out.

Yellowbluebell profile image
Yellowbluebell

Unfortunately there are some real morons disguised as doctors!! If possible i would see another gp in your practice if possible. It may be worth complaining about his attitude to the practice manager if you feel up to it. Either way try not to let his inappropriate behaviour get you down. Concentrate on youxYBB

Longtimer profile image
Longtimer

Been there, experienced that....when you are already in pain and feeling low...well, won`t say what I think...but my advice if it`s possible, find a doctor that will listen, and if you have to go back to the Rheumie, tell them his reaction. I now just see a GP, who leaves me to it....

Good luck....

SheffieldJane profile image
SheffieldJane

Well he’s in the wrong job or overdue for retirement. Keep calm and carry on, the man is an ignoramous.

Marilyn1959 profile image
Marilyn1959

Bed side manner is so important and makes such a difference.. Some have it, others do not. My old GP used to have me laughing within seconds of entering the consultation room. Then, and only then, would he ask how I was feeling! Good ploy methinks. Thought the world of him. Changed surgeries and had to get used to a totally different breed / species??????

As I see it you have two options;

a) to make it known that he upset you so much you do not want to see him again

b) Take a deep breath and let it go over your head.

Whilst there is a third option please do not allow yourself to follow its course which is letting it to continue to upset you, and worrying whether you will get him again, since stress is a known aggravator of PMR symptoms and you could well do without it.

Hopefully you came away with the meds you needed?

PMRpro profile image
PMRproAmbassador

Nothing to add to what's been said - just put him down as an ignorant idiot who needs some education. Though not by you just yet ...

Pongo13 profile image
Pongo13

I had a good few rotten months prior to diagnosis. My neighbour (a nurse) saw my struggles and told me I looked awful. We chatted and swapped ‘horror stories’ re the older dr (who didn’t have a magic wand)! Her advice? ‘See one of the new young things’. I did and here I am! X

PMRpro profile image
PMRproAmbassador in reply toPongo13

I had a young one (not for PMR, renal, years ago as a student) who told me there was nothing wrong - I just fancied him as my marriage had problems! The old man got the right answer in 5 minutes! We are still married after 46 years ...

Pongo13 profile image
Pongo13 in reply toPMRpro

Love it! Am giggling as I feed dogs before yet another wet walk! X

TM1970 profile image
TM1970 in reply toPMRpro

Brilliant!

Sallyaches profile image
Sallyaches

I do sympathise, there is one similar G.P. at my practice who oddly enough always seems to have appointments available. After trying to avoid her the rather officious Receptionist asked me why implying that was the only appointment on offer. I said that we no longer had a therapeutic relationship and would only discuss this with the practice manager. Suddenly an appointment with a competent G.P. Was found for me.

in reply toSallyaches

Interesting Response..........

Maybe, you weren’t the first to decline to see her!

PMRpro profile image
PMRproAmbassador in reply toSallyaches

We had someone who just couldn't relate to the patients - at least, the ones who didn't work in the NHS! I asked could I see someone else to discuss something he'd insisted on having done first and was told no, she knew what I meant but he'd signed off on it. The first time he never even looked at me and was brusque to the point of rudeness. The second time he was fine. The difference? He had seen me in my white coat at the Wednesday lunchtime lecture. OH often took an appointment with him - to tell him what he wanted and it worked OK. I would see him if desperate if I needed something urgently. But when he discovered we had a flat just down the road from where he spent his summer holidays walking in the Dolomites and climbing the via ferrata it was a whole new relationship. He was very clever - but he should have been a pathologist ...

MamaBeagle profile image
MamaBeagle in reply toPMRpro

I love your career advice!!!!

zabzab12 profile image
zabzab12

Hi my husband having same problem he had pmr 8 years ago it has come back , he told doc its exactly same as before they done bloods doc said they were normal so they gave him nothing so he has been in agony with shoulders for 9 weeks he gets 3/4 hrs sleep as he keeps waking up with pain and he keeps going back to docs and gets nothing but a blank face staring back at him it takes 2 days for anyone to even phone you back now at local docs an you have to fill in a form online which takes 30 mins then 2 days later you get a phone consultation.

PMRpro profile image
PMRproAmbassador in reply tozabzab12

Up to 20% of PMR cases have blood markers within normal range - not that that means they are normal for the patient. I had PMR for over 5 years that my GP didn't recognise because my markers were low. I don;t know what they were then - but I do know that here the ESR ran at 16-18 for weeks during a really bad flare but no-one remarked on it because that was still under 20 so "normal". My personal normal is low single figures so that sort of level is very raised for me.

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