Posts - PMRGCAuk | HealthUnlocked

PMRGCAuk

20,598 members • 38,707 posts

All posts for October 2019

Cardiff Meeting

The next meeting is on Thursday 24th Oct at 11.30 in the Central Library, Creative Suite on the top floor.

The next meeting is on Thursday 24th Oct at 11.30 in the Central Library, Creati...

slewis

•5 years ago

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Biopsy confirmed

So my rheumatologist had had my biopsy looked at by her major hospital and they confirmed also the giant cell arteritis diagnosis. However after being on 80 mg...

So my rheumatologist had had my biopsy looked at by her major hospital and they ...

twriller

•5 years ago

18 Replies

Raised Blood levels

Was at nurse today getting flu jab was asking for results for bone scan and also asked if the had blood results from Rumy appointment few months ago and was...

Was at nurse today getting flu jab was asking for results for bone scan and also...

ali5son

•5 years ago

26 Replies

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Pred affecting my temper !

Gosh! I don’t normally go crazy over an old tennis ball ( dogs) .. but another dog pinched my dogs ball .. owner thought it was hilarious, couldn’t persuade...

Gosh! I don’t normally go crazy over an old tennis ball ( dogs) .. but another d...

Breconblue

•5 years ago

61 Replies

Arteries: should I be seeing them?

Hi all! GCA since Feb 2018 .... Currently on the dsns taper at 19/18.5 mg. Here's the thing; I'm seeing arteries on my forehead I've never seen before....

Hi all! GCA since Feb 2018 .... Currently on the dsns taper at 19/18.5 mg. He...

Blurry62

•5 years ago

17 Replies

Safety of low dose glucocorticoids

Wandering through the internet looking for something else I found this interesting and encouraging summary of recent research:...

Wandering through the internet looking for something else I found this interesti...

HeronNS

•5 years ago

9 Replies

LIVE VACCINES

A friend of mine with PMR is travelling to Colombia and Brazil at end of October. and has had spectacularly unhelpful non advice from GPS and practice nurses...

A friend of mine with PMR is travelling to Colombia and Brazil at end of October...

Mary63

•5 years ago

17 Replies

A Hello and a thank you!

This site has been a true God send for me over the past year, since I was diagnosed with Giant Cell Arteritis. Thanks to all the helpful people on here, I've...

This site has been a true God send for me over the past year, since I was diagno...

justbreathing

•5 years ago

8 Replies

Turmeric supplement

Has anyone tried a turmeric supplement. If so did it help and is it recommended to use it. Are there any contraindications? Thanks for any help

Has anyone tried a turmeric supplement. If so did it help and is it recommended ...

Koalajane

•5 years ago

19 Replies

Which Calcium/VitD?

Just wanted to ask which brand of calcium or calcium + vitamin D most people are taking? I have always felt quite unwell taking calcium supplements although...

Just wanted to ask which brand of calcium or calcium + vitamin D most people are...

Danda99

•5 years ago

30 Replies

Advice on meds that are prescribed with Pred

I’m now on my third week of 25mg Pred as a recently diagnosed PMR sufferer, and likely to be on it for some time, so Consultant has also prescribed me...

I’m now on my third week of 25mg Pred as a recently diagnosed PMR sufferer, and ...

Andypan

•5 years ago

19 Replies

Pred Doses before and after a flare.

May I have some advice please.I am approaching my three year anniversary(🍾) with PMR. I tried to decrease from 4 mg to 3.5 three weeks ago using the DSNS...

May I have some advice please.I am approaching my three year anniversary(🍾) wit...

Mellow-Yellow

•5 years ago

9 Replies

Excercising

Having been a fan of keeping active and having been diagnosed with PMR . I was wondering how long it took most of to get back into a normal active routine....

Having been a fan of keeping active and having been diagnosed with PMR . I was ...

susieq051

•5 years ago

38 Replies

GCA Flare

I’ve had GCA and PMR for almost 2 years now. A few months ago I had a flare (PMR symptoms at 3.5) so my rhumy instructed to go up to 10mg for 2 days, 9mg for...

I’ve had GCA and PMR for almost 2 years now. A few months ago I had a flare (PM...

Pamk1949

•5 years ago

11 Replies

Does one stop Methotrexate when you reach one or zero of prednisone?

or do you continue with the metho for some time --or for life

Celebrant

•5 years ago

11 Replies

MRI update on left knee

Results of my MRI came in and show swelling and inflammation with a couple of small meniscus tears probably attributable to my squash playing and running...

Results of my MRI came in and show swelling and inflammation with a couple of sm...

Lochy

•5 years ago

9 Replies

Difficulty in Tapering

I was diagnosed with PMR and suspected GCA in April 2017 and reduced from 40mg Pred to 15mg fairly easily in first few months. I have had several ups and downs...

I was diagnosed with PMR and suspected GCA in April 2017 and reduced from 40mg P...

PatB1948

•5 years ago

4 Replies

Following a person with similar problems

I’ve been trying to follow a person with similar problems but find that I have to enter my Username. I thought my email address was my Username but this was...

I’ve been trying to follow a person with similar problems but find that I have t...

fields3

•5 years ago

1 Reply

PMR-GCA Support Group East Anglia

Meeting on Thursday, 24th October, at Needham Market Community Centre, School St, Needham Market, IP6 8BB at 10.30 for 11. The speaker will be Dr Lauren Steel,...

Meeting on Thursday, 24th October, at Needham Market Community Centre, School St...

Needhamite

•5 years ago

1 Reply

Children’s nasal flu vaccine precautions

Hello all, My dear grandchildren are having their annual nasal flu vaccine soon and I remember reading that those of us who are on pred and immuno suppressed...

Hello all, My dear grandchildren are having their annual nasal flu vaccine soon ...

Rache

•5 years ago

12 Replies

Doctors knowledge

Writing to all I don't know much about where other people live or how their doctors great but my doctor just seem to blow me off when I presented him with...

Writing to all I don't know much about where other people live or how their doct...

susieq051

•5 years ago

11 Replies

Excercise for old ladies

I did say "old"! Struggle to edge of bed - swing your legs, wiggle your toes, wait a couple of minutes then stand up, wait a couple of minutes, stretch what...

I did say "old"! Struggle to edge of bed - swing your legs, wiggle your toes, wa...

Constance13

•5 years ago

15 Replies

Humming to sudden deafness in left ear

Last week I mentioned that I’m hearing a humming noise in my left ear...three days ago I couldn’t hear anything but a terrible echo Yesterday I did a hearing...

Last week I mentioned that I’m hearing a humming noise in my left ear...three da...

YuliK

•5 years ago

15 Replies

Discontinuing Alendronic Ac

I am now, after 18 months, down to 3mg Prednisolone daily and I am tempted to come off AA which I have been on since my treatment started. If I discontinue,...

I am now, after 18 months, down to 3mg Prednisolone daily and I am tempted to co...

HamishPMR

•5 years ago

7 Replies

Tapering pred

Hi all, I started tapering my pred on 10th as per instructions from the rheumatologist dropping 5mg then another 5mg on 13th, so down to 30mg, but since doing...

Hi all, I started tapering my pred on 10th as per instructions from the rheumato...

Poppylop

•5 years ago

11 Replies

PMR

Hi My name is Margaret I have had PMR for about 5 years now? Started on a high dose, have come down to 2 mg tried to come down last week to 1mg but had to go...

Hi My name is Margaret I have had PMR for about 5 years now? Started on a high d...

foster123

•5 years ago

19 Replies

Atrial Fibrillation!

Hi everyone I have PMR, have recently been diagnosed with Atrial Fibrillation and am now on Beta Blockers and Blood Thinners as well as Pred. I was just...

Hi everyone I have PMR, have recently been diagnosed with Atrial Fibrillation an...

Attic

•5 years ago

6 Replies

High Blood Pressure and Adrenaline System

Diagnosed in August 2018 with GCA and PMR in March 2017 . Now down to 5 mgs Pred from 45. However in the last few days my BP has gone so high - more than 200...

Diagnosed in August 2018 with GCA and PMR in March 2017 . Now down to 5 mgs Pred...

casca312

•5 years ago

6 Replies

Confusing Rheumatology Appointment Today

Went to Rheumy today, for 6 month routine appt.... I have had 3 flares in 4 months. ☹️ She specifically said she was not "recommending" a Chinese herb or...

Went to Rheumy today, for 6 month routine appt.... I have had 3 flares in 4 mont...

Hidden

•5 years ago

49 Replies

Rheumatoid Arthritis

New on this site. Confused with so many abbreviations but hope to learn. I have Rheumatoid Arthritis and suffering severe neck and head pain. I’m on...

New on this site. Confused with so many abbreviations but hope to learn. I have...

fields3

•5 years ago

3 Replies

Posts - PMRGCAuk | HealthUnlocked

PMRGCAuk

All posts for October 2019

Cardiff Meeting

Biopsy confirmed

Raised Blood levels

Pred affecting my temper !

Arteries: should I be seeing them?

Safety of low dose glucocorticoids

LIVE VACCINES

A Hello and a thank you!

Turmeric supplement

Which Calcium/VitD?

Advice on meds that are prescribed with Pred

Pred Doses before and after a flare.

Excercising

GCA Flare

Does one stop Methotrexate when you reach one or zero of prednisone?

MRI update on left knee

Difficulty in Tapering

Following a person with similar problems

PMR-GCA Support Group East Anglia

Children’s nasal flu vaccine precautions

Doctors knowledge

Excercise for old ladies

Humming to sudden deafness in left ear

Discontinuing Alendronic Ac

Tapering pred

PMR

Atrial Fibrillation!

High Blood Pressure and Adrenaline System

Confusing Rheumatology Appointment Today

Rheumatoid Arthritis

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