Fatigue

[Gary1310]

Felt good, went to lunch with friends, picked up new glasses, gassed my car. Next

Day, picked up groceries....Wham! I was on the couch napping, bed at 8 pm. 10 hours sleep......

[SheffieldJane]

For us, that is a good day!

[Gary1310 in reply to SheffieldJane]

......for me, too. I just figured out I can do two things, max! I was so tired when I crashed on the couch, thought..” hope the house doesn’t catch fire because I am too tired to get off this couch!”

[SheffieldJane in reply to Gary1310]

I know that feeling!

[Blearyeyed in reply to Gary1310]

Been there 😂😂😂😂

[Fireleigh]

It takes a good while to realise that socialising with people you like is ‘ work’. Very odd to think something you love is nevertheless taxing and counts as ‘work’. And we all know work leads to fatigue. You’ve reminded me. Thank you.

[georgedog]

Oh my Gary, That sounds so familiar, I did get a chuckle and thought the same thing..."I hope the house doesn't blow up" as I am to tired to move." We, here in the U.S. are much more skiddish to not do exactly the Docs instructions...being a Nurse, I have to be more open to the way you are willing to experiment with options....wish their were something close to me here in Maine in the U S..hang in there...George-Dog

[MsDirecto]

Gary- That feeling is so familiar and your descriptionalso gave me a chuckle.

I am in the US. I have GCA, and before diagnosis, I was flattened by fatigue and brain fog. (My sister's first symptoms of MS were fatigue, which was hard to understand for such a lively woman. That was 25 years ago and it took a long time to diagnose MS.)

I found I had to sit down after doing the dishes-and wouldinvariably fall asleep.

I started on 40 mg prednsione in February, and very gradually have tapered to 15. I was part way through the month of 30 mg,when I had a flare, and it happened again after 10 days on 15 mg. The fatigue came with the flare.I had to tell myself not to sit down, because i would always fall asleep. My taper also now includes Actmera infusions (2 so far). I feel much better, but still fall asleep if I sit down for long. It's humbling to accept that I have to plan my days around this situation, but this group has helped me so much. I like your description of deciding which 2 things to do each day. It's so much better than beating mysef up because I cant do what was at one time "normal" high energy for me.