Today I feel that I am walking like a normal person. I am so happy to feel I can navigate without bumping into walls and hanging on to furniture. At least for today, I feel well. I started 4 mg Prednisone for the month of Oct. I also quit taking my statin after 15 yrs. I was diagnosed with PMR last January. I still have a couple more months of taper. Not sure why I am able to navigate but hope it continues..
Walking normally: Today I feel that I am walking... - PMRGCAuk
Walking normally
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Gary1310
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•
I’m happy for you! Do you think that quitting the Statin has contributed to this? They have been linked with PMR I believe.
Thank you, I think it may contribute to my well being...just not sure. I just hope it continues.
Well done Gary. It's great to hear 'good news' on here. It gives everyone hope.
Thank you, “I can see the light at the end of this tunnel”.....
Funny you should mention bumping into wall. I cannot for the life of me walk in a straight line. Maybe I never could be definitely worse now. I always worry this is linked to Alzheimers in later life so if this is pred and PMR related I would be happier.
You aren't the only person to say they struggle to walk in a straight line! One lady was stopped in the street by a policeperson!!!
LOL
Have you tried Nordic walking poles? They're the only thing that keep me on track. Doorways are my main problem, I keep bashing my arms on door frames, my arms are a picture sometimes!
Great idea but I don't even like the idea of an umbrella.
I haven't yet got beyond the garden gate, (feel that I ought to be in lycra and walking boots or it looks odd) but I will do. They are useful as they exercise the arms as well. My physio thinks they're a good idea too.
Loads of older people use them here with ordinary clothing - though most local people do wear trainer-type footwear even in town. You can identify the Italian tourists ...
But you walk a lot steadier with them. Even bending down for the conkers didnt faze you today so they obviously workx
• in reply towhitefishbay
I would never deny myself a walking aid. My mantra is use ANYTHING that allows me to remain mobile without falling or stumbling. Mobility does not take account of pride. Moreover, I have retained muscle memory that would be lost or impacted by a stumbling gait that goes on for a while.
whitefishbay• in reply to
Well you are right. Gotta keep moving. Most important thing.
• in reply towhitefishbay
Exactly and for pmr people it's not forever.
Be careful with an umbrella too, they slip and are not as strong as a stick!
Well tomorrow I will be sleeping with an umbrella perched over my head (unless Lorenzo take it away).
But they are brill for prodding annoying people or doctors
• in reply towhitefishbay
I use what they call trekking poles when I'm on dirt hiking/walking trails. Got them from my daughter when she heard I was having a hard time with balance and muscle weakness a couple months back. It only lasted a few days (no idea why!). Still, the poles are great on trails. Not expensive either. I can look around at the scenery much more, rather than looking at the ground for uneven spots, tree roots to trip over, and other hazards. Reminds me...haven't been moving enough with all of this crappy weather. Gotta get going! 😁
whitefishbay• in reply to
My daughter said she wouldn't be my friend if I started walking around with Nordic poles. She wants me to be young. haaha
• in reply towhitefishbay
We never want mums to get older but they do.
• in reply towhitefishbay
Oh my. My poles are stylish! They're what bonafide hikers use. Suggested first by a 70+ yo friend who had seen young and old using them everywhere. Even while walking in the neighborhood! Arms muscles are being used more as well. Tell daughter it's cool now. 😂
Gary1310• in reply to
Nice...what brand do you have?
whitefishbay• in reply to
I will tell her.
No different from using a pair of specs when your eyes aren't perfect is it?
True and I hate to say the next thing on my list is hearing aids. What you say!
• in reply towhitefishbay
🤣🤣🤣
I refused to accept that my hearing loss was real or a problem. Started wearing headphones to listen to television and realised just how much assistance I needed. Have now had hearing aids for a couple of years and can't believe the difference they make for everyday living. Real bonus is just how good live music really is - not only hear the top notes of the violin, but can even make out the triangle - never could before. And they even help on the squash court - you don't tend to think about the effect of hearing in that context.
Don't delay - it's a journey well taken.
I have made a GP apt for Monday. I work in two schools and always have to say ‘what?’ too often. Thanks for that.
• in reply towhitefishbay
You might be surprised bu how many young people you see picking out their hearing aids. Aids are SO much smaller and colorful than they used to be. Can even get clear ones. Barely noticeable. Hubs has some and wears when we go out and about, but not here where I am. Argh. The ear sweats some and he doesn't like that...uh-huh. 😂
Hi...I am sure mine is related to PMR or Prednisone. Whitefish Bay.....Wisconsin.??
Yes.
I was born in Kenosha on Lake Michigan, live in Escanaba, Mi....on Lake Michigan. My Rheumatologist is at Marshfield Clinic.....love him.
I grew up in Whitefish Bay but have lived mainly in London (and Greece briefly) since 1983. Wisconsin is a great state.
Yes it is, Michigan, too💕
Midwest - so underrated. People normal and lovely. Not entitled.
Agreed
• in reply toGary1310
Hi Gary... I loved visiting Escanaba several years back. I live downstate in the small town of Houghton Lake. 2 hrs south of the Big Mac. 😁
Gary1310• in reply to
Escanaba is a lovely town...only winters are troublesome. I hope to get to the beach this coming winter🌴😎..if I am 100% well and can walk.
• in reply toGary1310
We tried the Snowbird lifestyle last winter for a few months, just 2 mos after my diagnosis. It was SO much better than expected! I knew I had to keep my body moving and doing so here would mean walking on snow and ice. Funny, met a “Gary” from S Ste Marie who was also there to keep moving during winter. He ended up buying a winter place before he left. We stay in a small 55+ RV park with activities for all. Not an expensive park, thank goodness!
Gary1310• in reply to
All I want to do is sit under a Palm tree with sun on my face....no ice, except in my Margarita. I love the Gulf of Mexico. Hope to leave late Nov....till April. But need to feel 100% and able to walk. Gary was my late husband.
• in reply towhitefishbay
Go Pack!! 🏈 Yes, football fan here. 😉
Gary1310• in reply to
Yes, we are Green Bay Packer fans, too.
Ha, lived in Milwaukee, Waukesha actually for number of years. Then I moved to California and never looked back. My ex and son are still in Wisconsin. Winters and snow can be overwhelming.
In London snow is a rare treat. Only damp here which you get used to.
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That is great news and you have done well to be at 4mg after such a relatively short time. But don't be misled - 4mg is plenty to manage PMR, 1mg is enough for some people.
My Rheumatologist just said to taper 1mg per month. I forgot to ask him what do I do after 1month at 1mg......do I quit or do I continue on 1mg indefinitely? Thinking I will continue......at least till I see him again.
I don't think when I get there I will stop abruptly. I'll do a Dead Slow Nearly Stop taper with zero as my "new dose". You could try something like that.
Prednisone is a life saver.. when they given it to me for my asthma, my chronic pain goes away while taking it..
Good to hear your good news.
Thank you, hope it continues.
That's good to hear. I don't think I have too many problems walking except for the odd wobble and sometimes a strange feeling that my legs don't quite belong to me! It's good to know that things might improve one day.
• in reply toLouisepenygraig
Me too! Strange feeling indeed.
Louisepenygraig• in reply to
I'm glad I'm not the only one. It is strange isn't it, I can't quite work it out.
So far...2days🎉
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