Posts - PMRGCAuk | HealthUnlocked

PMRGCAuk

20,342 members • 38,113 posts

All posts for April 2019

What's next?

I just got over a bout with diverticulitis. I have my follow up appointment today. I had my annual mammogram a week ago Monday. Then got a call to come in for...

I just got over a bout with diverticulitis. I have my follow up appointment toda...

Lanakay

•5 years ago

14 Replies

Osteoporosis injections

Am weighing up options for treatment for osteoporosis. All medications look pretty dire. As far as I can make out possibly the lesser of the evils is annual or...

Am weighing up options for treatment for osteoporosis. All medications look pret...

Healthworrier

•5 years ago

16 Replies

The latest on my gca

My GP rang yesterday to say that even on 40mg pred my CRP is still high. My ESR is normal. My symptoms have disappeared so I thought all would be well. She...

My GP rang yesterday to say that even on 40mg pred my CRP is still high. My ESR ...

polymy

•5 years ago

22 Replies

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PMR

I felt like every bone of my skeleton hurt. Going to my chiropractor didn’t help. My usual go to med for OA ,Aleve, didn’t touch it. Had xrays and MRI....

I felt like every bone of my skeleton hurt. Going to my chiropractor didn’t hel...

29Pain00

•5 years ago

13 Replies

Pepcid AC and inflammation

I have pmr/gca for 8+ years. recently taken off Pepcid AC. Developed bad arthritis pain in elbow, nape of neck, feet. Went back on Pepcid AC. symptoms are...

I have pmr/gca for 8+ years. recently taken off Pepcid AC. Developed bad arthrit...

phebamom

•5 years ago

1 Reply

CBD again🤔

There is occasional discussion about CBD oil and if it could modulate our illness. I came across this research article and it looks like it has a definite...

There is occasional discussion about CBD oil and if it could modulate our illnes...

fmkkm

•5 years ago

54 Replies

Are we living in the dark ages?

I was reading the attached article and thinking that there are really no forward thinking doctors out there. I am supposedly going to a doctor who is expert in...

I was reading the attached article and thinking that there are really no forward...

fmkkm

•5 years ago

4 Replies

Warning about hot tubs and jacuzzis

Whilst on my daughters hen do 3 weeks ago we visited a spa and I used the jacuzzi. The next day I had a rash on my stomach which was itchy. After trying dry...

Whilst on my daughters hen do 3 weeks ago we visited a spa and I used the jacuzz...

Yellowbluebell

•5 years ago

134 Replies

My latest visit to a GP I haven't seen before.

I was sent a letter asking me to make a non urgent appointment about my blood sugar results. He said I am pre-diabetic at 5. 7 and need to change my diet, and...

I was sent a letter asking me to make a non urgent appointment about my blood su...

pmrgcavictim

•5 years ago

27 Replies

Hay fever and PMR

Good morning all, When the leaves start filling the trees, and I live high up amongst them, I get a sort of 'hay fever' wheezy chest blocked sinuses, sore...

Good morning all, When the leaves start filling the trees, and I live high up a...

Oxford8

•5 years ago

25 Replies

Two wisdom teeth extractions😱

Tomorrow, I go for 2 wisdom teeth extractions. I'm feeling horridly anxious, but know its gonna be over quickly.. nitrous oxide/ laughing gas helps. Plan to...

Tomorrow, I go for 2 wisdom teeth extractions. I'm feeling horridly anxious, bu...

Purplecrow

•5 years ago

14 Replies

Success travelling overseas!

Hello everyone. I just wanted to share with you how I've just had a very successful short break to Italy, and that for those wondering it IS possible to travel...

Hello everyone. I just wanted to share with you how I've just had a very success...

Lonsdalelass

•5 years ago

30 Replies

Good rheumatologist sought

Good rheumatologist for pmr in Hertfordshire/ Buckinghamshire area.

Linlang

•5 years ago

2 Replies

Question for the experts

I was doing well reducing prednisone slowly (was at 20.5 and then got bronchitis and things went down hill. Hung in there for two weeks but could barely...

I was doing well reducing prednisone slowly (was at 20.5 and then got bronchitis...

kellykel

•5 years ago

24 Replies

GOOD Rheumatologist Northampton area .

Looking for a good rheumatologist to help specifically for PMR treatment. Thanks

Looking for a good rheumatologist to help specifically for PMR treatment. Thank...

Silverfoxylady

•5 years ago

5 Replies

Advice required about my condition in particular Rheumy.

Hi. As per my previous note been on pred since feb 2017, I got down to 4mg beginning of this year but back up to 10mg and think this is not enough as still in...

Hi. As per my previous note been on pred since feb 2017, I got down to 4mg begin...

SRIXON

•5 years ago

4 Replies

For our GCAPro. Surgery/relapse

In February I had minor eye surgery. At 10 mg plus Actemra.I stopped Actemra two weeks prior and developed an ear infection at the third week. It was quite...

In February I had minor eye surgery. At 10 mg plus Actemra.I stopped Actemra two...

Nap1

•5 years ago

28 Replies

Happy Easter

Across the oceans across the sea years you have been my buddies for six years. I want to thank you and wish you happy Easter or a sweet Passover. What ever you...

Across the oceans across the sea years you have been my buddies for six years. I...

Nap1

•5 years ago

11 Replies

PMR Help

My mother who is 82 has been suffering withPMR for about 6 years . She has been up and down various doses of Pred trying to get off them due to bad side...

My mother who is 82 has been suffering withPMR for about 6 years . She has been ...

Silverfoxylady

•5 years ago

18 Replies

Help please

Hello. May I ask if anyone gets oral thrush continually from the prednisilone. I am now on 15 mg and still have weakness in the legs and shakes. Have been on...

Hello. May I ask if anyone gets oral thrush continually from the prednisilone. I...

123456Evita

•5 years ago

11 Replies

'WAKING UP'

Hello everyone Hope those of you who wish to celebrate around this time of year are having a great time !! On a contingent subject - the ability to have a...

Hello everyone Hope those of you who wish to celebrate around this time of year ...

Rimmy

•5 years ago

41 Replies

What is the meaning of life?

I found a great birthday card recently that says: "I think I've discovered the meaning of life--You just hang around until you get used to it." Charles...

I found a great birthday card recently that says: "I think I've discovered the ...

gaqke10

•5 years ago

6 Replies

Reducing symptoms?

Hi all have reduced pred to 5mg for a week now but have been having really painful back spasms & hands have been locking up is this because I’ve reduced ?...

Hi all have reduced pred to 5mg for a week now but have been having really painf...

Visby

•5 years ago

9 Replies

Bit of a GCA dilemma

Hello, as ever so grateful for this forum! Not sure anyone has been in a similar situation but here goes.... Diagnosed in 2011 with PMR, then GCA in 2017...

Hello, as ever so grateful for this forum! Not sure anyone has been in a similar...

PMR2011

•5 years ago

14 Replies

Why are docs so eager to get us off prednisone?

Is it possible they “want you off it” to avoid deterioration of hips and knees? My mom had PMR and got avascular necrosis and had a hip replaced. I cannot...

Is it possible they “want you off it” to avoid deterioration of hips and knees? ...

OutdoorsyGal

•5 years ago

32 Replies

Has anyone with GCA experienced teeth pain?

I'm having an arterial biopsy this Monday, 4/22/19. On 70 mg of prednisone, the gca isn't under control and symptoms are piling up. This morning amongst all if...

I'm having an arterial biopsy this Monday, 4/22/19. On 70 mg of prednisone, the ...

pollymarierose

•5 years ago

35 Replies

Precipitating factors

Maybe I’ve missed it, but I haven’t seen much discussion regarding what people think may have triggered their PMR. I realize I likely have the genetic make-up...

Maybe I’ve missed it, but I haven’t seen much discussion regarding what people t...

Joblow

•5 years ago

68 Replies

What's happening physiologically at 8mg.

Happy Easter toute le monde! This week I have been at 8mg all week after jumping down from the last rung of the ladder. I was on 5x9 2x8 and on Sunday...

Happy Easter toute le monde! This week I have been at 8mg all week after jumping...

IdasMum

•5 years ago

17 Replies

Hospital admittance update

I thought I did a post yesterday but I was in a bit of a state and can only use my phone in here. I was admitted to hospital as blood results were not good and...

I thought I did a post yesterday but I was in a bit of a state and can only use ...

mad-country-lover

•5 years ago

15 Replies

Addition to yesterday's post

First let me thank everyone for your good wishes.💐🍾🍸 Update: I did something today which I have never done in the 7 years of my PMR/Arthritis journey - I...

First let me thank everyone for your good wishes.💐🍾🍸 Update: I did something...

Constance13

•5 years ago

5 Replies

Posts - PMRGCAuk | HealthUnlocked

PMRGCAuk

All posts for April 2019

What's next?

Osteoporosis injections

The latest on my gca

PMR

Pepcid AC and inflammation

CBD again🤔

Are we living in the dark ages?

Warning about hot tubs and jacuzzis

My latest visit to a GP I haven't seen before.

Hay fever and PMR

Two wisdom teeth extractions😱

Success travelling overseas!

Good rheumatologist sought

Question for the experts

GOOD Rheumatologist Northampton area .

Advice required about my condition in particular Rheumy.

For our GCAPro. Surgery/relapse

Happy Easter

PMR Help

Help please

'WAKING UP'

What is the meaning of life?

Reducing symptoms?

Bit of a GCA dilemma

Why are docs so eager to get us off prednisone?

Has anyone with GCA experienced teeth pain?

Precipitating factors

What's happening physiologically at 8mg.

Hospital admittance update

Addition to yesterday's post

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