Help please: Hello. May I ask if anyone gets oral... - PMRGCAuk

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Help please

123456Evita profile image
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Hello. May I ask if anyone gets oral thrush continually from the prednisilone. I am now on 15 mg and still have weakness in the legs and shakes. Have been on preds since octon2019 for GCA. Am also on Azothioprine 100mg for the last 6 weeks

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123456Evita
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PMRpro profile image
PMRproAmbassador

Thrush is not unusual amongst patients on immunosuppressant drugs - pred is enough for some people, adding aza will just increase the risk.

Ask your GP for suitable medication. Once the thrush is treated, immediately start using a new toothbrush as the fungus hangs around and will be reintroduced to your mouth. Some people sterilise their toothbrushes but I don't remember the details. Yoghurt often helps avoid thrush as well.

peace_lover profile image
peace_lover in reply to PMRpro

Baby bottle steriliser (eg Milton or store’s own brand) works for sterilising brushes. Useful for make up brushes too.

Thelmarina profile image
Thelmarina in reply to peace_lover

Also steradent! 😀

DorsetLady profile image
DorsetLadyPMRGCAuk volunteer

I did early days on high doses, but a couple of courses of medication sorted it out. Fortunately never returned.

As PMRpro advises - see doctor.

Hobbitses profile image
Hobbitses in reply to DorsetLady

I've tried Nystatin and a tablet treatment (can't remember which), also Corsodyl and Peroxyl... am on MXT as well as Pred. Fed up with grey-green tongue, dog breath and painful wheals on eating berries etc... ugh. Which meds sorted it out for you?

DorsetLady profile image
DorsetLadyPMRGCAuk volunteer in reply to Hobbitses

Hi

Nystatin- but it took a couple of treatment/bottles. However wasn’t on MTX - that may cause problems as well, I don’t know.

As others have suggested - probiotic drinks or tablets may help along with yogurt.

But it’s miserable whilst you have it - so hope it soon clears!

Hobbitses profile image
Hobbitses in reply to DorsetLady

Thanks DL, will try Nystatin again. Yes yogurt!

Hi, l’ve had very bad Thrush caused by Chemo Drugs & it lingered on long afterwards so l think the Pred was contributing to it as well.

I had every treatment, tablets, suspensions to swirl around my mouth, gels to slush around my mouth.

You definitely need something to clear it up from your GP & then follow your Meds with Live Yogurt everyday. Ditch your old toothbrush & change them often.

I eventually discovered the culprit & it was a ‘Sugar Free’ based Medication that was causing it!.......

I eat yogurt every morning after my Pred & other Meds.

You need to see the dr. Sometimes one hit will shift it but sometimes you need several if its really dug in. Make sure you have a prebiotic diet and probiotics to build up good environment.

healthline.com/nutrition/19...

123456Evita profile image
123456Evita in reply to

Thankyou

in reply to 123456Evita

If its flourishing in my throat and mouth i find its in my gut too. Hope its sorted soon.

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