After two years of being treated for GCA/PMR and suffering from pain I believe that I actually might have a mild case if Wegeners. Having more labs today. Anyone else have this happen???
Maybe I really have Wegeners Vasculitis!!! - PMRGCAuk
Maybe I really have Wegeners Vasculitis!!!
Written by
Aleish
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2 Replies
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Sorry Aleish I can't help you but I'm sure someone will be along who can. Best wishes.
PMRproAmbassador
About 1 in 6 diagnoses of PMR?GCA are likely to be revised at some point. The usual result is LORA but various other causes of similar symptoms can be on the list. When you look down the possible symptoms here:
emedicine.medscape.com/arti...
you can see that if you get certain things in the early stages it is not unlikely that PMR/GCA might be the answer a doctor comes up with. GPA is even more rare than GCA - so probably doesn't register on the radar until some of the very much more specific things appear.
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