Appointment with rheumatologist today. Not the same one I had seen on last two occasions. I started ny saying that though I had been initially diagnosed with polymyalgia rheumatica I felt my condition was more like palindromic rheumatism - which he ignored.
When he heard that I was still on 15 mg steroids after a bad flare just before Christmas he went ballistic. Much too high a dose he said, go down to 10mg tomorrow and then reduce by 1mg per month.
He them wrote a lengthy latter to my GP - probably accusing him of overprescribing steroids and prescribed a once a week bone strengthening tablet.
He then got me to have quite a bit of blood tests taken too.
To say I am not a happy bunny is quite an under-statement
EXTRA:- I am typing this whilst I can. Although the Rheumy told me to go straight to 10mg from 15mg, I just dropped to 12.5mg starting Wednesday 09th Jan.
So this morning I woke up about 5.30 absolutely freezing and went to the toilet - by the time I got there my body was shivering all over. I brought another blanket to lay on the duvet and turned on the heating, got back to bed and warmed up a wee bit.
So I got up and when getting dressed noticed mild pain on the outer part of my hands - the sides with the little finger. Oh oh I though, this is typical of the way flares start for me, a mild pain which grows to incapacitating pain and then returns to a mild pain again - when it may move to another part of my body.
So I drove to town for supplies - cause if the pain grows I will be unable to drive. Bought what I went for and noticed the pain increased whilst using the handbrake and gears. Got home and changed into elasticated trousers and slippers (just in case).
So sitting here typing and hoping it goes away. Still feeling feverish. Will continue this later ................................
Later - the pains in the side of the hand increased a wee bit and I waited for the flare and then the pain subsided. I did get aching dull pain in places where I flare - backs of hands, thumb pads, groin, shoulder, knees - but this was just minor pain, certainly not incapacitating. So there was I in my elasticated waisted trousers and slippers all ready for the flare and it didn't materialise,
This morning the backs of my hands and my groin are a bit niggly.