Posts - PMRGCAuk | HealthUnlocked

PMRGCAuk

20,758 members • 39,030 posts

All posts for January 2019

Christmas Rose in Flower. Well Ahead!!

Glimpse of Spring...Unusual here. ..Often much later! Don't get me going on Global Warming though! Or Brexit! Cough & snot for myself at the moment & a...

Glimpse of Spring...Unusual here. ..Often much later! Don't get me going on Glo...

Hidden

•6 years ago

63 Replies

Anyone with Tarlov cysts

would like to speak with anyone who has this debilitating pain

Wirral47

•6 years ago

27 Replies

Maybe Pred isn’t so bad?

I recently came across an article and have provided a link below, I have already shared it with a couple of forum members who found the information...

I recently came across an article and have provided a link below, I have alread...

JohnnyQ50

•6 years ago

22 Replies

Want to take advantage of all our features? Just log in!

Feel “Wooden Headed” after taking prednisone

I have GCA and PMR; I would like to try a change to my prednisone schedule. I have been taking it in the morning, after breakfast, for 27 months. I wake up...

I have GCA and PMR; I would like to try a change to my prednisone schedule. I ...

Lauren103

•6 years ago

35 Replies

Aching Biceps

Any clues on how to improve arm strength. I feel I’m doing relatively good under the circumstances, but my arms are very weak . Shoulders like everyone upon...

Any clues on how to improve arm strength. I feel I’m doing relatively good under...

Stifffingers

•6 years ago

20 Replies

One flu virus after another

Since starting prednisone treatment 10 months ago my immune system has taken a hammering, with one flu and bronchitis attack after another. I am at present on...

Since starting prednisone treatment 10 months ago my immune system has taken a ...

YuliK

•6 years ago

23 Replies

Message for Romy curl

Hi Romycurl Are you working in your shop next week? We are at Omokoroa with friends at moment. Going to Thames next week

Hi Romycurl Are you working in your shop next week? We are at Omokoroa with frie...

Devonspinner

•6 years ago

Be the first to reply

Recurrent thrush under bust and in groin.

Hi everyone, I am experiencing non stop attacks of horrible thrush under the boobs and in the groin. It is so bad that it is weeping and smelly. The Doctor...

Hi everyone, I am experiencing non stop attacks of horrible thrush under the boo...

Attic

•6 years ago

17 Replies

'Boasting' about being medication free !!

I see this subject has come up on another thread - and it is one which really irritates me so I thought I'd do a short post to expiate my 'bother': Many people...

I see this subject has come up on another thread - and it is one which really ir...

Rimmy

•6 years ago

47 Replies

Breaking News! A High Fibre Diet Is The Way To Go!!

It's official! The Lancet says a high fibre diet is the way to go!!! Phew!! We got to go with the flow on this one!! Just be careful out there!

It's official! The Lancet says a high fibre diet is the way to go!!! Phew!! We...

Hidden

•6 years ago

54 Replies

A question about your walking abilities?

Hi everyone, me again looking for some experiences if possible. Although I am much more flexible on Pred and the stiffness has gone, my walking has not...

Hi everyone, me again looking for some experiences if possible. Although I am mu...

Mic67

•6 years ago

150 Replies

GCA Novice

Just been diagnosed with GCA a month ago. Male and under 60, so a bit against the statistics. I joked that the doc might have given me an official diagnosis...

Just been diagnosed with GCA a month ago. Male and under 60, so a bit against t...

FowlerVF

•6 years ago

16 Replies

Steroid use, back issues

Has anyone heard or suffered from chronic low back ache after ending steroids for pmrgca? Four years on pred, eventually now steroid free for 6 months, one...

Has anyone heard or suffered from chronic low back ache after ending steroids fo...

Janniew

•6 years ago

5 Replies

Preds - help or hinder?

The Story so far..Part 4! As if GCA is not enough, I've developed a bladder infection linked to inflammation, now on my second set of antibiotics. Any advice...

The Story so far..Part 4! As if GCA is not enough, I've developed a bladder infe...

Kael-gca

•6 years ago

6 Replies

The Lighter Side: Going Off-Topic. What Is this Community Forum coming to..?! ;-)

Greetings All: and on a more serious note... Ohhh, what to say - and How to Say it..? First, thank you all for your mainly insightful responses to my recent...

Greetings All: and on a more serious note... Ohhh, what to say - and How to Say ...

markbenjamin57

•6 years ago

35 Replies

raw and fermented foods

As I understand it, raw and fermented foods such as raw milk, raw honey, yogurt, and kefir are supposed to be a no-no, while we are taking immuno-suppressive...

As I understand it, raw and fermented foods such as raw milk, raw honey, yogurt...

gtate1914

•6 years ago

48 Replies

Flare?

I have successfully reduced from 24mg down to 16mg after about 7 months. Now down to 15 and that dose does not control my symptoms of pain In legs and back....

I have successfully reduced from 24mg down to 16mg after about 7 months. Now dow...

Manchild

•6 years ago

21 Replies

Tooth extraction

I have a fracture in one of my upper back teeth that needs to come out. Because I have taken Alendronic acid in the past I was referred to a private clinic....

I have a fracture in one of my upper back teeth that needs to come out. Because ...

Suet3942

•6 years ago

23 Replies

Difficult Diagnosis PMR/GCA

Hi. If you go back and read my posts you will see that my symptoms are textbook I just don’t have the inflammatory markers to prove it. I am also 44 which...

Hi. If you go back and read my posts you will see that my symptoms are textbook ...

Boozsa

•6 years ago

13 Replies

The story so far...Part 3!

Up until I was diagnosed with GCA I used to be rather smug about not having to take any regular, long term drugs. It was something of a shock when I had to...

Up until I was diagnosed with GCA I used to be rather smug about not having to t...

Kael-gca

•6 years ago

15 Replies

Hmmm? Maybe not appropriate for this forum... but you decide.

Those that can't do... RANT! https://rantingsofamadwomanblog.com/2019/01/10/how-i-killed-my-brother/ Warning: The attached blog may be hard to read... it...

Those that can't do... RANT! https://rantingsofamadwomanblog.com/2019/01/10/how-...

Hidden

•6 years ago

80 Replies

One step forwards, two steps back!

Had my rheumy appointment on Monday. Should have had it in October but it was moved. Got down to 5mg of Pred for about 4 months over the summer but beginning...

Had my rheumy appointment on Monday. Should have had it in October but it was mo...

York54

•6 years ago

13 Replies

Breathless

Hello all, I looking for advice from anyone who is, or has been, very short of breath on exertion. I was doing fine on the dead slow taper and was at 15 mg,...

Hello all, I looking for advice from anyone who is, or has been, very short of ...

coda123

•6 years ago

12 Replies

Many thanks

As always many thanks for all your responses. I must admit receiving the letter was a bit of a curved ball and frankly worrying. I'm trying to get an...

As always many thanks for all your responses. I must admit receiving the letter ...

Trish21

•6 years ago

10 Replies

Should I worry?

So yesterday I received a copy of the letter sent to my gp from recent rheumatologist appointment which mentioned results of MRI scan showing chronic small...

So yesterday I received a copy of the letter sent to my gp from recent rheumatol...

Trish21

•6 years ago

19 Replies

Negative TAB

So the biopsy came back negative. I don’t really know what to say other than I still believe PMR/TA is what is wrong with me. The problem is I will never get...

So the biopsy came back negative. I don’t really know what to say other than I s...

Boozsa

•6 years ago

14 Replies

DL,,,ALL THE BEST TOMORROW....OP

Wishing you the very best outcome for your surgery tomorrow...is it your hip/knee? I remember you've had 1 of them done. You'll be hopping, skipping, jumping,...

Wishing you the very best outcome for your surgery tomorrow...is it your hip/kne...

karools16

•6 years ago

113 Replies

The kidney connection

Hi everybody Although I have not been heard from lately, I always follow what is going on in the GCA/PMR world. I thought I would share my latest happenings to...

Hi everybody Although I have not been heard from lately, I always follow what is...

Cobnut

•6 years ago

28 Replies

Going on with it

I posted earlier about going through a period of PMR pain because I hate prednisone. There is more to it. I was told I could not have bariatric surgery if I...

I posted earlier about going through a period of PMR pain because I hate prednis...

PJarret

•6 years ago

24 Replies

Personal security on this forum...Important to take notice

Privacy tips Your health experiences have the potential to help others in a similar situation and transform lives. Because this may involve you sharing...

Privacy tips Your health experiences have the potential to help others in a sim...

YuliK

•6 years ago

46 Replies

Posts - PMRGCAuk | HealthUnlocked

PMRGCAuk

All posts for January 2019

Christmas Rose in Flower. Well Ahead!!

Anyone with Tarlov cysts

Maybe Pred isn’t so bad?

Feel “Wooden Headed” after taking prednisone

Aching Biceps

One flu virus after another

Message for Romy curl

Recurrent thrush under bust and in groin.

'Boasting' about being medication free !!

Breaking News! A High Fibre Diet Is The Way To Go!!

A question about your walking abilities?

GCA Novice

Steroid use, back issues

Preds - help or hinder?

The Lighter Side: Going Off-Topic. What Is this Community Forum coming to..?! ;-)

raw and fermented foods

Flare?

Tooth extraction

Difficult Diagnosis PMR/GCA

The story so far...Part 3!

Hmmm? Maybe not appropriate for this forum... but you decide.

One step forwards, two steps back!

Breathless

Many thanks

Should I worry?

Negative TAB

DL,,,ALL THE BEST TOMORROW....OP

The kidney connection

Going on with it

Personal security on this forum...Important to take notice

Search posts

Pinned Posts

Latest poll

A quick SURVEY on COVID-19 & PMR/GCA/LVV Since the start of the COVID-19 pandemic have you experienced any of the following? Part 2

Topics

Archive