Posts - PMRGCAuk | HealthUnlocked

PMRGCAuk

20,925 members • 39,411 posts

All posts for January 2019

It has started.

I went to collect my medication from the local pharmacy today to find they did not have my lisiniprol and that there was a problem getting it. Strangely they...

I went to collect my medication from the local pharmacy today to find they did n...

Koalajane

•6 years ago

9 Replies

BBC Start The Week programme about a book on Inflammation

Some of you will remember the BBC Start the week programme a while ago that discussed The Inflamed Mind by Edward Bullmore. This is an extract about the immune...

Some of you will remember the BBC Start the week programme a while ago that disc...

Omanain

•6 years ago

11 Replies

Get out there in your sweatpants

Now that Mamici and everyone else has all the info on where to buy comfortable jogging pants and sweatpants, why not get out there and Prancercize?...

Now that Mamici and everyone else has all the info on where to buy comfortable j...

coda123

•6 years ago

66 Replies

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Well well well!!

Had my follow up endoscopy on Tuesday. A very traumatic experience. It only took 5/10 minutes on previous ones but this took half an hour while 12 biopsies...

Had my follow up endoscopy on Tuesday. A very traumatic experience. It only took...

polymy

•6 years ago

14 Replies

Help! New PMR and need to travel- advice welcome

I'm 6 weeks in from diagnosis starting on 30mg pred I'm now down to 17.5mg and so far so good but I'm worried about some travel next week where I have to go to...

I'm 6 weeks in from diagnosis starting on 30mg pred I'm now down to 17.5mg and s...

Mikeysaab

•6 years ago

5 Replies

Recently Diagnosed with PMR

So happy to find information on your site! I woke up with a terrible neck ache. (7 days prior, I was moving a heavy drop leaffed table and I dropped it when I...

So happy to find information on your site! I woke up with a terrible neck ache. ...

Draperies

•6 years ago

19 Replies

Time zone travelling

This is sort of a reply to a couple of recent posts and also a report on my recent experiences and trip to Singapore to stay with our daughter. 8 hours time...

This is sort of a reply to a couple of recent posts and also a report on my rece...

Roltuba

•6 years ago

6 Replies

Pred reduction, or GCA 'grumble'?

Nearing second anniversary of diagnosis, and down to 6mg/day (had flare 9 months ago when back at 40mg/day for 5 weeks). Have been careful with 3 months at...

Nearing second anniversary of diagnosis, and down to 6mg/day (had flare 9 months...

MarkWin

•6 years ago

9 Replies

Spring cleaning..........

Job done 😂

CT-5012

•6 years ago

16 Replies

Lighter side water polo.

Watching one of my favourite quiz shows, the question "How many players in each team are in the water to start a water polo match." Numpty pred head me sat...

Watching one of my favourite quiz shows, the question "How many players in each ...

Dontwannabesick

•6 years ago

24 Replies

Growing Old Gracefully... Or Not!

Those that can't do... RANT! https://rantingsofamadwomanblog.com/2019/01/23/growing-old-gracefully-or-not/ Warning: Please note, the link is not related to...

Those that can't do... RANT! https://rantingsofamadwomanblog.com/2019/01/23/grow...

Hidden

•6 years ago

157 Replies

Nausea side effect

Hi, I’m new to this Forum - migrated from Patient Access, which was brilliant until it made improvements which didn’t work! Keep things simple I reckon 😀. I’m...

Hi, I’m new to this Forum - migrated from Patient Access, which was brilliant un...

Thelmarina

•6 years ago

12 Replies

Update after a very long week

I have not been able to see my GP since the negative TAB and the surgeon’s recommendation to still treat me clinically. I had a very bad week, terrible...

I have not been able to see my GP since the negative TAB and the surgeon’s recom...

Boozsa

•6 years ago

11 Replies

Reducing Prednisone

A week or two ago I reduced Prednisone from 9mg to 8 mg. (starting at 25mg 10 months ago for pmr) Two days after reducing to 8mg, I felt dreadful pmr pains,...

A week or two ago I reduced Prednisone from 9mg to 8 mg. (starting at 25mg 10 mo...

YuliK

•6 years ago

12 Replies

Another one new to PMR

Could not dress get in and out of the bath or on or off the loo with high C-RP Test. 24th Dec 2018 20mg of prednisolone 12 hours later 100% reduction of above...

Could not dress get in and out of the bath or on or off the loo with high C-RP T...

survivalist

•6 years ago

33 Replies

Should gca patients expect to be headache free?

I was diagnosed one year ago and still have headaches on a daily basis. This doesn't concern my rheumatologist but, it certainly does me! I felt good after...

I was diagnosed one year ago and still have headaches on a daily basis. This doe...

Blurry62

•6 years ago

19 Replies

Dog Kennel Cough Vaccine

OH was at Vet today ( with dog!! ) for annual vaccination and was told that if dog is having a kennel cough vaccine anyone who has a compromised immune system...

OH was at Vet today ( with dog!! ) for annual vaccination and was told that if d...

Pennythedug

•6 years ago

44 Replies

Pred and jet lag

Don't think my last post worked so.. On Friday we fly from Auckland to LA at 10pm, fly 10 hrs then land in LA at 5pm, 5 hrs before we left,! After 3 hrs in LA...

Don't think my last post worked so.. On Friday we fly from Auckland to LA at 10p...

Devonspinner

•6 years ago

7 Replies

3”Polys”

I have PMR, Seronegative Poly Arthritis and now Poly Neuropathy. Because of severe pain my doctor has suggested I take Tramadol. I’ve read the side effects...

I have PMR, Seronegative Poly Arthritis and now Poly Neuropathy. Because of seve...

Constance13

•6 years ago

40 Replies

Second opinion in Missouri USA

I need some referrals for a rheumatologist in central Missouri. Someone up on current literature, treatment etc... I don't feel like my current doc is...

I need some referrals for a rheumatologist in central Missouri. Someone up on cu...

Blurry62

•6 years ago

9 Replies

Gca and diet

GCA confirmed one year ago. Has anyone found any improvement with an anti inflammatory diet? I've decided to try it. I also have added tumeric and ginger to my...

GCA confirmed one year ago. Has anyone found any improvement with an anti inflam...

Blurry62

•6 years ago

5 Replies

The Challenge of Finding the 'Best' Diet - Vegan or .... ??

Hello Everyone I know this is a perennial question and there is SO much (often contradictory) info out there on the Net - from both more and less 'reputable'...

Hello Everyone I know this is a perennial question and there is SO much (often c...

Rimmy

•6 years ago

69 Replies

Rheumy visit today.

Learnt something new today at my appointment. I didn't know (or hadn't taken in) that as someone who is morbidly obese, I should not expect my CRP to get down...

Learnt something new today at my appointment. I didn't know (or hadn't taken in)...

IdasMum

•6 years ago

22 Replies

Advantage (and disadvantage ) of taking Pred between 5.00 &5.30 am

OH takes his Pred at that time - so dressed and took his camera outside front door. Crop from one of the handheld photos. Disadvantage was that having dressed,...

OH takes his Pred at that time - so dressed and took his camera outside front do...

Nuff1

•6 years ago

12 Replies

30 and worried about possible GCA please give me your thoughts.

Hello all! I’ll try to make this story as brief as possible. I am a 30 year old other wise healthy before this. In September 2018 I got a bad strep infection....

Hello all! I’ll try to make this story as brief as possible. I am a 30 year old ...

Natatat123

•6 years ago

30 Replies

Morning all

Well, after waiting months to have my tooth extracted (paperwork got ‘mislaid’ ), the day has arrived. My OH has had a real stinker of a cold and cough and I...

Well, after waiting months to have my tooth extracted (paperwork got ‘mislaid’ )...

Suet3942

•6 years ago

30 Replies

Cramps

Does any one get this ,I have a sort of cramp but not as intense as the usual cramp just sort of deadens my arms briefly ,minutes I would say and then passes...

Does any one get this ,I have a sort of cramp but not as intense as the usual c...

patriciawhite

•6 years ago

7 Replies

Hello,you helpful people...

I seem to have developed an eye infection today ,sore and somewhat gungy! It's in one eye at the moment but feels as if it's starting in the other eye too....

I seem to have developed an eye infection today ,sore and somewhat gungy! It's i...

monkeay

•6 years ago

23 Replies

Thank You One and All

Increasing my dosage ,feeling more confident after your advice. Happy New Year You Lovely People 👏

Increasing my dosage ,feeling more confident after your advice. Ha...

Seagu11

•6 years ago

5 Replies

Many thanks

Again many thanks for all your responses. New grandson is called Daniel. I'm looking forward to meeting him very soon. It's so nice to turn my attention to...

Again many thanks for all your responses. New grandson is called Daniel. I'm loo...

Trish21

•6 years ago

4 Replies

Posts - PMRGCAuk | HealthUnlocked

PMRGCAuk

All posts for January 2019

It has started.

BBC Start The Week programme about a book on Inflammation

Get out there in your sweatpants

Well well well!!

Help! New PMR and need to travel- advice welcome

Recently Diagnosed with PMR

Time zone travelling

Pred reduction, or GCA 'grumble'?

Spring cleaning..........

Lighter side water polo.

Growing Old Gracefully... Or Not!

Nausea side effect

Update after a very long week

Reducing Prednisone

Another one new to PMR

Should gca patients expect to be headache free?

Dog Kennel Cough Vaccine

Pred and jet lag

3”Polys”

Second opinion in Missouri USA

Gca and diet

The Challenge of Finding the 'Best' Diet - Vegan or .... ??

Rheumy visit today.

Advantage (and disadvantage ) of taking Pred between 5.00 &5.30 am

30 and worried about possible GCA please give me your thoughts.

Morning all

Cramps

Hello,you helpful people...

Thank You One and All

Many thanks

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