Posts - PMRGCAuk | HealthUnlocked

PMRGCAuk

20,759 members • 39,032 posts

All posts for January 2019

Where's me ganglion gone?

For 50 years I have had a ganglion on the inside of my right wrist. It has, over the years, resisted many well-meaning attempts to banish it with heavy books...

For 50 years I have had a ganglion on the inside of my right wrist. It has, over...

Dontwannabesick

•6 years ago

10 Replies

Flare

Hi. I need some advice. I’ve had PMR for a year and a bit and been managing well. Tapered from 15 mg down to 7.5 and was tapering to 7 over Christmas and...

Hi. I need some advice. I’ve had PMR for a year and a bit and been managing well...

Suedeshayes

•6 years ago

26 Replies

No wonder I have PMR.

I keep ‘catching’ myself in ‘high alert’ mode.I’ve started to try to calm myself down by taking deep breaths and telling myself that there is no need to rush....

I keep ‘catching’ myself in ‘high alert’ mode.I’ve started to try to calm myself...

Dewdrop456

•6 years ago

56 Replies

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How long before it’s ok?

Think I may need a bit of info/support here. Been on 20mg prednisolone since 1/1. The pains have just about gone, which is amazing, however, I’m still getting...

Think I may need a bit of info/support here. Been on 20mg prednisolone since 1/1...

Liskeard

•6 years ago

26 Replies

For The First Time In My Life I Am Feeling Totally Broken!

On 19th December I tripped over a pot hole whilst walking the dogs. I knew it was bad since I heard and felt my shoulder snap! I was admitted to hospital via...

On 19th December I tripped over a pot hole whilst walking the dogs. I knew it wa...

Marilyn1959

•6 years ago

68 Replies

GCA DIAGNOSED ONE YEAR AGO AND STRUGGLING...

Hello, I'm thrilled to have found this site. After a year of steroids, hospital visits, anxiety and fear , I am not the person I used to be. Though I have...

Hello, I'm thrilled to have found this site. After a year of steroids, hospital ...

Blurry62

•6 years ago

43 Replies

The Lighter Side: PMR / GCA and the Preds - Where are You on the NORMAL to BONKERS Scale? Do this Self-Assessment to Find Out... ;-)

Greetings to all PMR / GCA Survivors, Veterans, Newbies and old (or not so) Friends here. First: WARNING (seriously..)! This Post (a repeat of the original...

Greetings to all PMR / GCA Survivors, Veterans, Newbies and old (or not so) Frie...

markbenjamin57

•6 years ago

138 Replies

Is anybody out there?

Diagnosed GCA one year ago. Tapered steroids to 5mg from 60mg. Recently things gone pear shaped.Joint pain with soar throat and severe toothache.Same symptoms...

Diagnosed GCA one year ago. Tapered steroids to 5mg from 60mg. Recently things g...

Seagu11

•6 years ago

38 Replies

A warning about use of Lansoprazole (and possibly other PPIs)

Ballybiscuit posted a reply on another thread which we feel needs to be made more prominent: "I have taken them for 5 years. I have recently had a CT scan for...

Ballybiscuit posted a reply on another thread which we feel needs to be made mor...

PMRpro

Ambassador•6 years ago

131 Replies

Split Pred dosage

Hi all, I'm very interested in what some of you have mentioned about split Pred dosage. I take my pred with my breakfast and it sees me through the day and...

Hi all, I'm very interested in what some of you have mentioned about split Pred...

Oxford8

•6 years ago

17 Replies

Appointment with consultant

Had my Six monthly check up with my Rheumatologist yesterday in kiddiminster. Went over how I’d been fairing since my last appointment.said that I had a...

Had my Six monthly check up with my Rheumatologist yesterday in kiddiminster. ...

Flrchrs

•6 years ago

38 Replies

Good news/bad news

My newest grandson arrived on Thursday, 8lb 1oz of loveliness (good news). I start with my periodic swollen glands in neck, high fever and loss of voice on...

My newest grandson arrived on Thursday, 8lb 1oz of loveliness (good news). I sta...

Trish21

•6 years ago

22 Replies

Actemra and Managing Infections

I have been taking Actemra since June 2018. It allowed me to taper more quickly all through the summer; the Actemra side effects were manageable. In October it...

I have been taking Actemra since June 2018. It allowed me to taper more quickly ...

Lauren103

•6 years ago

4 Replies

Dexa scan numbers with pred dose added.

At my last Rhuemy appt we talked about my dexa scan numbers that my GP had. Rhuemy didn't have results in front of him but I told him all numbers had been...

At my last Rhuemy appt we talked about my dexa scan numbers that my GP had. Rhue...

bunnymom

•6 years ago

12 Replies

Tapering

Was wondering if some of you could write me briefly your tapering routine. I have GCA ( LV vasculitis ) PMR and PVD. E.g 60 mg - 6 weeks 50 mg - 4 weeks...

Was wondering if some of you could write me briefly your tapering routine. I hav...

aladymo

•6 years ago

8 Replies

Acid infusion

I am due to have a zolendronic acid infusion in few weeks. Can’t tolerate the tablets. Bit nervous about it . Anyone else had this treatment.? Hope no horror...

I am due to have a zolendronic acid infusion in few weeks. Can’t tolerate the ta...

SuziCutie

•6 years ago

10 Replies

How do I feel?

Morning all. As advised, taking it nice and slow with the pred tapering by gradually reducing from 35mg to 30mg. Finding it difficult to tell whether I feel...

Morning all. As advised, taking it nice and slow with the pred tapering by gradu...

Kael-gca

•6 years ago

20 Replies

PMR and a career

Dear friends, I have been on Pred since dec -17 after having typical pain and raised bloods for 2,5 months. Started Pred medication which works really well...

Dear friends, I have been on Pred since dec -17 after having typical pain and r...

Pirnilla

•6 years ago

21 Replies

Don't read - off topic - maybe

I was interested in the recent 'political' discussion on here but did not comment, not because I was not interested but because I was more interested in seeing...

I was interested in the recent 'political' discussion on here but did not commen...

Harbel

•6 years ago

15 Replies

Pill Cutter

Until PMRPro made me aware that there were such things as pill cutters I have managed (to various degrees) with a sharp knife. Now I have a new toy. Whilst...

Until PMRPro made me aware that there were such things as pill cutters I have ma...

prunus

•6 years ago

2 Replies

I’m practicing sending a photo hope it works. Mr Bojangle one of my Persian cats, sorry I know it’s not PMR related xx thanks everyone x

Can you see my pic ?

9lives

•6 years ago

46 Replies

My Life Before GCA/PMR...

I was interviewed earlier in the week by the Press Association, in London. They wanted to talk about my work as a "Soul Midwife," (aka End of Life...

I was interviewed earlier in the week by the Press Association, in London. They ...

Hidden

•6 years ago

108 Replies

I'm so flipping sorry

I'm so sorry that I started this debate about going 'off-piste' that the wonderful bleary-eyed has managed so well. On Monday morning I was formally...

I'm so sorry that I started this debate about going 'off-piste' that the wonderf...

Oxford8

•6 years ago

75 Replies

Sensitive teeth and scalloped tongue

Morning, all! Hope you are all well(ish!) Since just before Christmas, I've been suffering with sensitive teeth - one, in particular. My dentist has examined...

Morning, all! Hope you are all well(ish!) Since just before Christmas, I've been...

Mrsd12f

•6 years ago

23 Replies

Shortages

Does anyone know if it is going to become difficult to get prednisolone as I have just seen on the news that many drugs are in short supply.

Does anyone know if it is going to become difficult to get prednisolone as I hav...

Koalajane

•6 years ago

33 Replies

PMR Pain vs Markers

My wife has been tapering from prednisone very gradually. She was diagnosed with PMR 2 1/2 years ago, and was started on 15mg. Within 6 weeks her pain was...

My wife has been tapering from prednisone very gradually. She was diagnosed wit...

navejasjoe

•6 years ago

8 Replies

I had to start new post for Deer picture

So with a cup of ginger peach tea n sitting in a comfy chair watching mama’s n teens looking for something to graze on. I saw one at first and then they just...

So with a cup of ginger peach tea n sitting in a comfy chair watching mama’s n t...

Hidden

•6 years ago

38 Replies

WiFi finally..

Hi all you wonderful people... It took me two days to finally get my phone to let me have a hot spot to get WiFi. So today I feel wore out ... normally two...

Hi all you wonderful people... It took me two days to finally get my phone to le...

Hidden

•6 years ago

28 Replies

The Lighter Side: Let's Hear it For HU Member 'Blearyeyed' (Bee)? ;-)

Greetings All, whoever and wherever you are in the world. Unusually for me, this is a slightly more serious follow-up to, and endorsement of Bee's very...

Greetings All, whoever and wherever you are in the world. Unusually for me, this...

markbenjamin57

•6 years ago

127 Replies

dose pack of 4mg pred.

Recently I injured my ribs and surrounding muscles. Went to emergency and after blood test and X-rays, they gave me a muscle relaxer and a dose pack of 4mg...

Recently I injured my ribs and surrounding muscles. Went to emergency and after ...

Linny3

•6 years ago

5 Replies

Posts - PMRGCAuk | HealthUnlocked

PMRGCAuk

All posts for January 2019

Where's me ganglion gone?

Flare

No wonder I have PMR.

How long before it’s ok?

For The First Time In My Life I Am Feeling Totally Broken!

GCA DIAGNOSED ONE YEAR AGO AND STRUGGLING...

The Lighter Side: PMR / GCA and the Preds - Where are You on the NORMAL to BONKERS Scale? Do this Self-Assessment to Find Out... ;-)

Is anybody out there?

A warning about use of Lansoprazole (and possibly other PPIs)

Split Pred dosage

Appointment with consultant

Good news/bad news

Actemra and Managing Infections

Dexa scan numbers with pred dose added.

Tapering

Acid infusion

How do I feel?

PMR and a career

Don't read - off topic - maybe

Pill Cutter

I’m practicing sending a photo hope it works. Mr Bojangle one of my Persian cats, sorry I know it’s not PMR related xx thanks everyone x

My Life Before GCA/PMR...

I'm so flipping sorry

Sensitive teeth and scalloped tongue

Shortages

PMR Pain vs Markers

I had to start new post for Deer picture

WiFi finally..

The Lighter Side: Let's Hear it For HU Member 'Blearyeyed' (Bee)? ;-)

dose pack of 4mg pred.

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