Posts - PMRGCAuk | HealthUnlocked

PMRGCAuk

20,342 members • 38,113 posts

All posts for October 2017

reducing once again

Hi everybody. I am just starting to reduce pred again i got down to 5Mg but soon started to suffer eventually ended back at 10 mg again, I have stuck with 10...

Hi everybody. I am just starting to reduce pred again i got down to 5Mg but soon...

sailorman

•7 years ago

8 Replies

Thank you for helping!!!😨😴

Hi I'm Pam!!!...I joined the forum about 3weeks ago...I've been reading lots of what health problems you I have.What a relief,it's not only my body falling...

Hi I'm Pam!!!...I joined the forum about 3weeks ago...I've been reading lots of ...

Routy

•7 years ago

10 Replies

Any have dizziness/light headedness?

I have had GCA for 1 1/2 years. And from the USA and on the actemra infusions monthly...my dosage is 386 a month. In 1 1/2 years I have found only one other...

I have had GCA for 1 1/2 years. And from the USA and on the actemra infusions m...

Buddyk

•7 years ago

6 Replies

Want to take advantage of all our features? Just log in!

Need help

What is the site that gives friends and family information on PMR

Baileyw06

•7 years ago

5 Replies

Doctor is stumped (American for confused)

My Doctor just wrote to me after a consult with Rhuemetologist. Her n I feel my PMR is almost if not gone. BUT she said my labs are back up and she can't...

My Doctor just wrote to me after a consult with Rhuemetologist. Her n I feel my...

Hidden

•7 years ago

13 Replies

Really sore and swollen knees

Hello! This is my 1st post! I was diagnosed with PMR a year ago and started on Prednisone which magically took away my previous 3 months of pain within a......

Hello! This is my 1st post! I was diagnosed with PMR a year ago and started on ...

walker5

•7 years ago

10 Replies

GCA

Will I ever go back to work?

Belinda1963

•7 years ago

13 Replies

Something different. Blood pressure.

My wife as been diagnosed with high blood pressure How can she help herself. Diet and lifestyle. Has Not been to clinic yet We’re hoping she doesn’t need...

My wife as been diagnosed with high blood pressure How can she help herself. ...

Rocketronzy

•7 years ago

13 Replies

Salisbury meeting for October

The next meeting of the Salisbury Group of PMRGCAuk will be held on Tuesday 17th October between 11am & 1PM. Usual venue, which is: Edinburgh Wool Mill...

The next meeting of the Salisbury Group of PMRGCAuk will be held on Tuesday 17th...

podo

•7 years ago

1 Reply

Is Occipital neuralgia part of GCA

Had symptoms since October 2016 Diagnosed with GCA April 2017 {trying to do what was suggested in someones post} Had tapered down from 10 mg of preds to 5mg of...

Had symptoms since October 2016 Diagnosed with GCA April 2017 {trying to do what...

camerashy

•7 years ago

23 Replies

Flu vaccination

I received a text today from my surgery inviting me to have the flu vaccination. I've had this vaccination each year with no problems and realise that it's...

I received a text today from my surgery inviting me to have the flu vaccination....

Janann25

•7 years ago

20 Replies

PMR and rib pan

Hi all, My PMR started getting on for 3 years now and my main symptoms for the past year have been pain in my rib cage, collar bone and neck; rib cage pain in...

Hi all, My PMR started getting on for 3 years now and my main symptoms for the p...

David_H

•7 years ago

13 Replies

MUSCLE BIOPSY FOR PMR OR OTHER MYOPATHY

Has anyone experienced a muscle biopsy on their journey with PMR or other autoimmune condition?

Has anyone experienced a muscle biopsy on their journey with PMR or other autoi...

jwb43

•7 years ago

2 Replies

Delayed introduction of a not so newbie

Hello. I had my first GCA/PMR symptoms in early April this year and was finally diagnosed on 31st July. Since then I've been lurking shamelessly on this site,...

Hello. I had my first GCA/PMR symptoms in early April this year and was finally ...

Marijo1951

•7 years ago

15 Replies

Drug Interactions

I googled drug interactions as I was becoming concerned about the different medications I was being prescribed and their possible interactions. I found a tool...

I googled drug interactions as I was becoming concerned about the different medi...

SheffieldJane

•7 years ago

14 Replies

New Doctor absolutely fine. 👍👍😜

She seams to think as we do. Slowly ,everyone different,sometimes have to be kept on a maintenance dose. Also asked me if I was happy to drop another one...

She seams to think as we do. Slowly ,everyone different,sometimes have to be ke...

Rocketronzy

•7 years ago

16 Replies

Possible PMR diagnosis

I have shoulder / arm pain in both shoulders, about 6 weeks. I cant say it is worse at any time of day, it is just always there - worse down the arms at times...

I have shoulder / arm pain in both shoulders, about 6 weeks. I cant say it is wo...

alrk

•7 years ago

2 Replies

Alendronic Acid Side Effects

Hi Everyone Iam new to this forum but wanted to tell my tale of woe since I was prescribed AA , I went through the menopause early at 42/43 and had two breaks...

Hi Everyone Iam new to this forum but wanted to tell my tale of woe since I was ...

Rosssue

•7 years ago

18 Replies

Rheumy appt today

Just back from my 2nd Rheumy appt, (should have been Feb! for which she apologised). She was pleased that I have managed to get down from 10mg to 9mg Pred...

Just back from my 2nd Rheumy appt, (should have been Feb! for which she apologis...

Marcy47

•7 years ago

10 Replies

Methotrexate

Hi everyone, I follow the site quite regularly and have found it most helpful but wonder if anyone give me advice about taking methotrexate instead of daily...

Hi everyone, I follow the site quite regularly and have found it most helpful b...

Clementine15

•7 years ago

9 Replies

New PMR diagnosis and reducing inflammation through diet

Hi - This summer I was diagnosed with PMR and had a Magic Day of taking that first 15 mg prednisolone and having the pain disappear. Incredible. But I want to...

Hi - This summer I was diagnosed with PMR and had a Magic Day of taking that fir...

Linlin64

•7 years ago

38 Replies

Real Quickie.

Doc here declared biopsy showing no inflammation wants to reduce pred and test me for everything. I got on to 1 of a very few specialists to treat GCA here in...

Doc here declared biopsy showing no inflammation wants to reduce pred and test m...

Rowboat

•7 years ago

5 Replies

Can an MRI tell for sure if it’s PMR

Hello, I’m on 15mg pred...diagnosed March 2017 ... My left shoulder is still hurting very bad. I called my rheumatologist yesterday. She said try 20mg for 2...

Hello, I’m on 15mg pred...diagnosed March 2017 ... My left shoulder is still hur...

Judyp1203

•7 years ago

3 Replies

PMR / CRA assesment

I have had complete blood work up relative to a PMR ~ ESR 61 2-30mm/hr; LO Hemoglobin, Hematocrit, RBC, Albumin ~ HI Neutrophils, Leukocyte Esterase, Alpha 1...

I have had complete blood work up relative to a PMR ~ ESR 61 2-30mm/hr; LO Hemog...

hedgehog8

•7 years ago

4 Replies

OOh that hurts! Rogue surfboards and thoughts on rapid weight loss.

Litany of boring stuff first: Awoke at 4a.m. with painful headache/ eyeache which appeared out of the blue. I took a paracetamol to see if that would shift...

Litany of boring stuff first: Awoke at 4a.m. with painful headache/ eyeache wh...

Slowdown

•7 years ago

11 Replies

diet to re-regulate cortisol levels: interesting.

I've been wondering why I'm fine most of the day until 4-6pm when it is hard to keep going. But resting does not help. Actually, on the contrary, staying...

I've been wondering why I'm fine most of the day until 4-6pm when it is hard to ...

Hindags

•7 years ago

13 Replies

REPORT ON G P VISIT TODAY

Hi All, This morning I had my G P appointment where I had to confess to taking my s i l's Prednisone. He was surprisingly good about it and agrees that it is a...

Hi All, This morning I had my G P appointment where I had to confess to taking m...

Cheshy72

•7 years ago

24 Replies

Actemra and Prednisone and next reduction

So after 6 shots of Actemra down to 12.5 with an ESR of 5 and CRP of 1. For me it's a miracle. Been on each reduction 2 weeks. Following protocol. Love when...

So after 6 shots of Actemra down to 12.5 with an ESR of 5 and CRP of 1. For me i...

Nap1

•7 years ago

2 Replies

12 Days Prednisone Free

For those who have been following my post I've been reducing 5mg every two weeks. I was on 20mg for one year then started the reduction. I've been completely...

For those who have been following my post I've been reducing 5mg every two weeks...

Ligtocicar

•7 years ago

8 Replies

Prunes and bone density

I've just watched 'Superfoods' on Channel 4. Apparently research has shown that 5 prunes a day eaten over a year can increase bone density by up to 11%....

I've just watched 'Superfoods' on Channel 4. Apparently research has shown that ...

maria40

•7 years ago

22 Replies

Posts - PMRGCAuk | HealthUnlocked

PMRGCAuk

All posts for October 2017

reducing once again

Thank you for helping!!!😨😴

Any have dizziness/light headedness?

Need help

Doctor is stumped (American for confused)

Really sore and swollen knees

GCA

Something different. Blood pressure.

Salisbury meeting for October

Is Occipital neuralgia part of GCA

Flu vaccination

PMR and rib pan

MUSCLE BIOPSY FOR PMR OR OTHER MYOPATHY

Delayed introduction of a not so newbie

Drug Interactions

New Doctor absolutely fine. 👍👍😜

Possible PMR diagnosis

Alendronic Acid Side Effects

Rheumy appt today

Methotrexate

New PMR diagnosis and reducing inflammation through diet

Real Quickie.

Can an MRI tell for sure if it’s PMR

PMR / CRA assesment

OOh that hurts! Rogue surfboards and thoughts on rapid weight loss.

diet to re-regulate cortisol levels: interesting.

REPORT ON G P VISIT TODAY

Actemra and Prednisone and next reduction

12 Days Prednisone Free

Prunes and bone density

Search posts

Pinned Posts

Latest poll

A quick SURVEY on COVID-19 & PMR/GCA/LVV Since the start of the COVID-19 pandemic have you experienced any of the following? Part 2

Topics

Archive