I have had GCA for 1 1/2 years. And from the USA and on the actemra infusions monthly...my dosage is 386 a month. In 1 1/2 years I have found only one other person who has GCA so when I found this group they was a real blessing. I'm wondering if anyone else experiences a fair amount of light headedness/dizziness? Other than the weakness/ fatigue I m pretty much symptom free. But do lack a fair amount of strength.