Need help

[Baileyw06]

What is the site that gives friends and family information on PMR

[pollyg263]

patient.co.uk there is a forum on this site for pmr

[DorsetLady PMRGCAuk volunteer]

The main PMRGCAuk site

pmrgca.co.uk/content/home-page

[SheffieldJane]

I don't think that there is one for friends and family but PMRPro, DorsetLady and others have posted useful links to clear information about what you are up against. There is one called something like " But you don't look ill". I hope they will be along to give you these links.

The general knowledge I have gained on here has helped me to articulate it if need be, but mostly it just helps me to be more self sufficient in managing the condition. My husband gets it. Nobody else really.

[Rugger]

My husband read Kate Gilbert's book - Polymyalgia Rheumatica and Giant Cell Arteritis: a survival guide - 2nd edition and found it very well written and helped him understand what's happening to me!

[jinasc]

A DVD 'You are NOT Alone' made specifically by Consultants, Opthamologists and Patients for family, friends, carers and employers. No jargon at all - plain English.

PMR&GCAuk North East Support made it. it costs £5 incl p&p if you are in the UK. Otherwise, postage information is sought for the destination address.

Over a thousand copies have been sold to date and it has gone over the pond, Scandianvian Countries, Ceylon, NZ, Aus, and India.

Some copies were given to Rheumatologists in the North East. When patients with PMR are asked to talk to Medical Students copies are given to those students who want them I gather sometimes they do and sometimes they don't.

So you can visit the website and take a look

www-pmr-gca-northeast.org.uk