Posts - PMRGCAuk | HealthUnlocked

PMRGCAuk

20,307 members • 38,044 posts

All posts for June 2017

Exhaustion

I am newish to this site I have posted once before about exhaustion but it is really getting me down. I fall asleep as soon as I sit down and do not seem to...

I am newish to this site I have posted once before about exhaustion but it is re...

Seamusdog14

•7 years ago

8 Replies

Eye pain

Morning everyone. I was diagnosed with GCA a year ago and was initially on 60mg of Pred. Am now down to 10mg and have started to get "pain" in my eyes....

Morning everyone. I was diagnosed with GCA a year ago and was initially on 60mg ...

Rrmc

•7 years ago

7 Replies

Pred dose timing and travel

So here's a conundrum about considering my reductions with a holiday in mind. So, in 13 weeks I've got to 20mg. My last drop of 2.5mg was 2 days ago, so I...

So here's a conundrum about considering my reductions with a holiday in mind. S...

SnazzyD

•7 years ago

14 Replies

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Reducing too fast / too slowly?

Hi all, Apologies that this has been covered many times before but can I just run my own personal situation past you please. I started on 20mg Pred, dropping...

Hi all, Apologies that this has been covered many times before but can I just r...

DebbieF1603

•7 years ago

5 Replies

GCA -still pain in my temple, jaw, ear and head

Hi all, I was diagnosed with GCA in January and ever since I'm on Prednison (60 mg since March) and started to inject Methotrexate one month ago (60 syringe...

Hi all, I was diagnosed with GCA in January and ever since I'm on Prednison (60 ...

Akino

•7 years ago

17 Replies

2yrs post GCA biopsy

Hi folks. Sorry but I have 'silly' questions that I can't get my logical head round. Today I celebrate my 2 year anniversary of my GCA biopsy - result positive...

Hi folks. Sorry but I have 'silly' questions that I can't get my logical head ro...

granny-b

•7 years ago

6 Replies

How long does PMR last?

Now I know the answer to this is nobody knows and it varies from person to person but I wondered if there had been any analysis done and stats derived from...

Now I know the answer to this is nobody knows and it varies from person to perso...

David_H

•7 years ago

16 Replies

PMRGCA Charity Week 19th-25th June

Hi everyone Just to let you all know that I completed my 10 mile sponsored walk for PMRGCAuk this morning. The actual distance recorded on my phone was 10.8...

Hi everyone Just to let you all know that I completed my 10 mile sponsored walk ...

LizMitchell

•7 years ago

17 Replies

Sho sho

I am a whole different stage with gca than you as I am off prednisone for a year. But am on actemra infusions and am wondering how others on the infusions...

I am a whole different stage with gca than you as I am off prednisone for a year...

Buddyk

•7 years ago

4 Replies

Pray and ra

What are your concerns about actemra infusions?

Buddyk

•7 years ago

7 Replies

When does the fatigue end

m in the process of reducing my daily dose of pred from 40mg to 5mg. I am now down to 9.5mg and the brain fog and depression have now gone - thank goodness....

m in the process of reducing my daily dose of pred from 40mg to 5mg. I am now do...

Cobnut

•7 years ago

6 Replies

The Wili E Coyote or Road Runner Method of Tapering Predisolone

What a weird and strange existence it is when on Predisolone. Compared to most people on this site I reckon I've had a relatively mild dose of PMR. Just the...

What a weird and strange existence it is when on Predisolone. Compared to most p...

43tripandskip

•7 years ago

7 Replies

PMR & dry mouth

Hi, anyone know if there is a link between having PMR and a dry mouth? I seem to wake up in the morning with a very dry mouth. It's a lot better during the day...

Hi, anyone know if there is a link between having PMR and a dry mouth? I seem to...

David_H

•7 years ago

19 Replies

Jaw Pain is unrelentless.

13 days on 20 mgs. prednisone and no relief in jaw. Cannot chew. Assuming my dose will be raised on Weds appt. Should it resolve with higher dose? Very...

13 days on 20 mgs. prednisone and no relief in jaw. Cannot chew. Assuming my d...

Aleish

•7 years ago

14 Replies

Well it's Official Steroid induced diabetes has got me.

Thought I was doing great loosing weight on the blood sugar diet, but no every day my sugars would rocket and I felt dreadful, so I agreed to treatment, but...

Thought I was doing great loosing weight on the blood sugar diet, but no every d...

Tigger6717

•7 years ago

20 Replies

gca patients that are on infusions

Is there a place where only giant cell arteritis patients post that are done with prednisone and on actemra infusions? I only know one other person in that...

Is there a place where only giant cell arteritis patients post that are done wit...

Buddyk

•7 years ago

40 Replies

GCA & Exhaustion

Hi I'm new to this forum. My mum was diagnosed a couple weeks ago with GCA. She's terribly ill and her sight has been affected too. She is totally exhausted...

Hi I'm new to this forum. My mum was diagnosed a couple weeks ago with GCA. She'...

Mistyfleur

•7 years ago

7 Replies

suspected GCA

I wrote previously that the eye specialist was fairly certain that I do not have GCA but asked that I stay on 25mgpreds for a week and then do bloods...

I wrote previously that the eye specialist was fairly certain that I do not have...

blackstone1

•7 years ago

5 Replies

Giant cell arteritis

I just this minute signed up with healthunlocked. I am looking to talk with someone who has giant cell arteritis....particularly if you are experiencing...

I just this minute signed up with healthunlocked. I am looking to talk with s...

Buddyk

•7 years ago

9 Replies

Tapering and headaches

Could chronic morning headaches, upon rising, be a sign of too little cortisol? Thought it was weather, allergies or sinus, but now not so sure. Tapering...

Could chronic morning headaches, upon rising, be a sign of too little cortisol? ...

HeronNS

•7 years ago

23 Replies

Alternatives to Omeprazole?

I am 3 months into my PMR journey, currently on 21mg of Pred. My GP was very keen to start me on Omeprazole when I first started taking the steroids, but I...

I am 3 months into my PMR journey, currently on 21mg of Pred. My GP was very ke...

katie-w53

•7 years ago

35 Replies

synacthen test..............results.............horrified

This morning I received a bulky letter from the Consultant Physician for Endocrinology. As the results are above me, perhaps PMRpro. and others, would...

This morning I received a bulky letter from the Consultant Physician for Endocri...

karools16

•7 years ago

55 Replies

Very puffy below eyes.

On 20 mgs prednisone for two 12 days. GCA as far as 65 sed rate, tmj, some vision changed and periodic scalp soreness. Doc not good and will see new...

On 20 mgs prednisone for two 12 days. GCA as far as 65 sed rate, tmj, some vis...

Aleish

•7 years ago

7 Replies

Doctors appointment today (update)

Hi Everyone Well today was my first week in on steroids for the PMR, I have been writing more or less daily asking questions U finding answers, also...

Hi Everyone Well today was my first week in on steroids for the PMR, I have been...

skibarski2

•7 years ago

24 Replies

Cramp!

Help please. I'm currently reducing my steroid dosage by the very slow method recommend by many on this wonderful site. So far so good I'm down to 8. Were...

Help please. I'm currently reducing my steroid dosage by the very slow method re...

Jean56

•7 years ago

26 Replies

Not so idle questions?

There is so much cumulative experience, knowledge and wisdom here. I keep thinking we should do our own surveys, albeit informal, to answer questions that are...

There is so much cumulative experience, knowledge and wisdom here. I keep think...

Hindags

•7 years ago

10 Replies

Brief Introduction

Hi I live in Doncaster and have just joined the group. I was working full time but I am now on the sick and have been since November. I was diagnosed in Jan...

Hi I live in Doncaster and have just joined the group. I was working full time b...

Estellemac

•7 years ago

30 Replies

Confusing blood results.

Hello.... Some of you will recall that back in October last year I was off steroids at the behest of a new rheumy to enable her to diagnose. My blood test...

Hello.... Some of you will recall that back in October last year I was off stero...

IdasMum

•7 years ago

4 Replies

GCA and arterial stenosis

I am told I have arterial stenosis - caused buy GCA and Predisilone - I have two different blood pressures on each arm - 146 on one and 122 on the other....

I am told I have arterial stenosis - caused buy GCA and Predisilone - I have two...

christine2715

•7 years ago

3 Replies

Sweating!!

Has anyone else experienced profuse sweating from the pred. Ive just been put back up to 15mg and the sweats are horrendous. I read it may help to take half...

Has anyone else experienced profuse sweating from the pred. Ive just been put ba...

Janieb293

•7 years ago

16 Replies

Posts - PMRGCAuk | HealthUnlocked

PMRGCAuk

All posts for June 2017

Exhaustion

Eye pain

Pred dose timing and travel

Reducing too fast / too slowly?

GCA -still pain in my temple, jaw, ear and head

2yrs post GCA biopsy

How long does PMR last?

PMRGCA Charity Week 19th-25th June

Sho sho

Pray and ra

When does the fatigue end

The Wili E Coyote or Road Runner Method of Tapering Predisolone

PMR & dry mouth

Jaw Pain is unrelentless.

Well it's Official Steroid induced diabetes has got me.

gca patients that are on infusions

GCA & Exhaustion

suspected GCA

Giant cell arteritis

Tapering and headaches

Alternatives to Omeprazole?

synacthen test..............results.............horrified

Very puffy below eyes.

Doctors appointment today (update)

Cramp!

Not so idle questions?

Brief Introduction

Confusing blood results.

GCA and arterial stenosis

Sweating!!

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