First of all....this little one arrived 2 weeks ago today and I am impatiently waiting another 3 weeks to visit her in the UK. Her name is Thea.
So, tomorrow I begin the dead slow method taking me down to 11mg and onward. I am not looking forward to tapering as I haven't been brilliant on 12mg. I have a blood test due next Weds and will see Doc on the Friday to discuss results with him and how to manage my trip to UK.
I tripped and fell in the garden 2 weeks ago, hurting my already dodgy left foot. Nothing broken, slightly swollen for a couple of days, seemed to improve and then I have ended up limping on it and in pain. Yesterday evening particularly painful. Seems a little improved today....will see. On the basis that my walking is bad again and after reading a post from PMRpro somewhere on here, I decided to bite the bullet and book Special Assistance at Stansted as I know I would really struggle to walk the distance to boarding, along with luggage and most likely under pressure. Feels so odd book this for me and that my almost 70 husband will be walking
Last Thursday I had a humdinger of a migraine and realised my bad headaches in the past have not been true migraines. This one hurt so much I cried, would not relent and I threw quite a lot of pain meds at it. It lasted from around 5am to 2pm. I spent much of that time in bed just waiting for it to relent. I even took a very old Sumatriptin (10+ old) which gave me all the side effects but didn't remove the pain!) I woke up this morning with a headache and started to worry it would be another migraine, came down, took steroids, had a cuppa and then took Paracetamol and Ibuprofen in tandem which have always worked for my headaches. I became allergic to Ibp a year or so ago, but I don't care. I can put up with the allergy symptoms far easier than the headaches. I went back to bed for another hour or so and my headache is still around in the background but thankfully not a migraine.
I am beginning to worry that I won't know the difference between a migraine and onset of GCA! How will I know if and when to get a medical input?
Finally, chatting this morning with OH I discovered that he sees my illness as a chronic and forever illness! Me, I am hoping for it to go away but very frustrated that I have at least another year to go (if I am very lucky I know). It's odd, but somehow discovering how he feels about it feels reassuring.