Been treated for GCA since November 2016. Slowly reduced by 2.5 mg at a time and got down to 25. Recently had a holiday where I felt the most like me I have done since the begin going if this journey and decided to reduce again to 22.5. I felt great. That was nine days ago. Two days ago the pain started. Temporal and eye pain. I am seeing my rheumatologist on Tuesday next week and took a blood test yesterday so I will have my results for the appointment. I have increased to 27.5 and the pain has eased somewhat but not gone.. will I have to go higher still?
Best wishes to all xx