Posts - PMRGCAuk | HealthUnlocked

PMRGCAuk

20,320 members • 38,060 posts

All posts for September 2016

Upcoming meetings

Hello everyone, Just a quick note to let you know about some group meetings taking place in the next few days. On 19 Sept, meetup groups are taking place in...

Hello everyone, Just a quick note to let you know about some group meetings taki...

Polywotsit

PMRGCAuk team member•8 years ago

4 Replies

Flu jab

Probably a silly question but am I OK to have my flu jab this year? I'm on 25 mg Prednisolone for GCA and just wondered if it would make a difference. Thanks...

Probably a silly question but am I OK to have my flu jab this year? I'm on 25 m...

Pat46

•8 years ago

9 Replies

Methotrexate

Hi All Sorry another query .... Briefly , started on 40mgs preds for PMR/GCA june 15, three or so flares. Got down to 10mgs last month but head pain...

Hi All Sorry another query .... Briefly , started on 40mgs preds for PMR/GCA jun...

lesley2015

•8 years ago

20 Replies

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RESEARCH PROJECT: 'Your Ears' - WE NEED YOUR HELP.

PMR&GCAuk North East Support. Charity Reg No 1138409. Polymyalgia Rheumatica Giant Cell Arteritis We are asking for your help! - We need at...

PMR&GCAuk North East Support. Charity Reg No 1138409. Polymyalgia Rheumatica ...

jinasc

•8 years ago

26 Replies

Can I exercise?

Yesterday instead of doing my 10 minute stretch with my DVD I opted for the 10 minute of strengthening. It was all floor based standing. No weights or...

Yesterday instead of doing my 10 minute stretch with my DVD I opted for the 10 m...

bunnymom

•8 years ago

8 Replies

Lupus, rash, prednisone

I've had lupus and have been on prednisone for almost 7 years. My lowest dose has been my current 15mg everyday. I suffer from chronic pain, terrible moon...

I've had lupus and have been on prednisone for almost 7 years. My lowest dose ha...

Saladbar

•8 years ago

3 Replies

Actemra verses Methotrexate

Has anyone been on both drugs and which worked better. Worst blood work in two years when was on 60 mg. and can't get below 32 without having a flare. Had...

Has anyone been on both drugs and which worked better. Worst blood work in two ...

cassey1879

•8 years ago

22 Replies

A little lost on the journey and unsure of dosage...

Well, as many of you know, while learning to "dance" with PMR recently, I broke my foot. Last visit to rheumy was just 2 days before the fall... I did labs...

Well, as many of you know, while learning to "dance" with PMR recently, I broke ...

Zacsmimi

•8 years ago

12 Replies

New to site and diagnosed with pmr 5 months ago.

Hi everyone So glad to find this site. I was diagnosed 5 months ago with pmr. Dr started me on 20 mg of pred for 5 days then 15 mg for 3 weeks . Then to taper...

Hi everyone So glad to find this site. I was diagnosed 5 months ago with pmr. D...

9lives

•8 years ago

19 Replies

Sucess at the Great North Run.

Team PMR&GCAuk North East Support all sucessfully completed the Great North Run on Sunday. Well done to Emma, Andrew, Gillian and John as due to their...

Team PMR&GCAuk North East Support all sucessfully completed the Great North Ru...

jinasc

•8 years ago

2 Replies

Anti inflammatory and pred

Hi, Quick question, I am down to 3 1/8mg of pred and I have pain in my hand. If I take enantyum 25mg liquid anti inflammatory, it makes it a lot better. The...

Hi, Quick question, I am down to 3 1/8mg of pred and I have pain in my hand. If...

Buenavista

•8 years ago

5 Replies

EFFECTS OF STEROIDS

Thanks to all those who gave advice on coping with the bruising caused by Pred. I hate those bruises on my arms particularly and it's going to be a while...

Thanks to all those who gave advice on coping with the bruising caused by Pred. ...

yos72

•8 years ago

5 Replies

HORNER'S SYNDROME AND GCA

A few days ago, I questioned new symptoms or perhaps side effects. Most evenings I am having flushing on the right side of face and neck. At the time, I...

A few days ago, I questioned new symptoms or perhaps side effects. Most evenings...

cjatthesea

•8 years ago

6 Replies

How much prednisilone to take on a relapse?

Hi, Ten days ago I had a relapse of GCA when I was going from 6mgs to 5.5mgs. When it started I don't think I moved up the scale quickly enough going to 7.5...

Hi, Ten days ago I had a relapse of GCA when I was going from 6mgs to 5.5mgs. Wh...

Stkeyna

•8 years ago

12 Replies

Appetite with preds

Can anyone give their experience at about what level of preds their appetite seemed to get more under control? I am working to keep weight gain under control...

Can anyone give their experience at about what level of preds their appetite see...

bunnymom

•8 years ago

12 Replies

Calcium!!!!are

Could anyone give me advice please? Have had to postpone taking Ad cal tabs for a while as they seem to be causing me dreadful constipation, a complaint I...

Could anyone give me advice please? Have had to postpone taking Ad cal tabs fo...

jayboy05

•8 years ago

9 Replies

steriods

hi my husbands taking flufloxicillian can he take prednisolone with them

oliverfelix

•8 years ago

4 Replies

POLYMYALGIA SUFFERER

what is the relationship between PMR, OA, and diabetes?

deltamesa

•8 years ago

2 Replies

Why such different reactions?

GCA was diagnosed in May of 2016. I was started on a regime of 60mgs.of prednisone, reduced by 10 mgs to 30 mgs in August of 2016. I thought I understood that...

GCA was diagnosed in May of 2016. I was started on a regime of 60mgs.of predniso...

Mgeorge

•8 years ago

2 Replies

PMR Journey

First of all, a massive thank you from the thousands like me who regularly look at this site and read the posts but who don’t usually post themselves. The...

First of all, a massive thank you from the thousands like me who regularly look ...

SandraMarric

•8 years ago

10 Replies

advice needed on reducing after being on 60mg for flare

I have been put on a reduction plan by Dr,having had a flare after getting down to 17.5mg after really bad headaches my Dr told me to go to go to 60mg 1 week...

I have been put on a reduction plan by Dr,having had a flare after getting down ...

denny-g

•8 years ago

3 Replies

Grange over Sands, Cumbria

A PMRGCAuk Meet Up is starting shortly in Grange over Sands, Cumbria. If you are interested in coming along please email info@pmrgcauk.com so that we can put...

A PMRGCAuk Meet Up is starting shortly in Grange over Sands, Cumbria. If you are...

pennyw

Administrator•8 years ago

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Coventry Meet Up

Coventry Meet Up has a great new venue in the Coventry Hilton. The next meet up is on Friday 30 September - details at...

Coventry Meet Up has a great new venue in the Coventry Hilton. The next meet up ...

pennyw

Administrator•8 years ago

2 Replies

What causes GCA

Hello My wife has been blind now for about 6 months having been diagnosed with GCA. She lost her sight suddenly in a day. She was admitted to hospital and...

Hello My wife has been blind now for about 6 months having been diagnosed with G...

mac66

•8 years ago

7 Replies

Remission

I've had GCA& PMR for 3 years started off on 60 mg preds, then within 3 months Dr. Reduced preds rapidly & put Me on Actemra infusion once monthly 5 months...

I've had GCA& PMR for 3 years started off on 60 mg preds, then within 3 months D...

beringer

•8 years ago

1 Reply

DSNS

DSNS - please tell me what this is someone? I am new ! Recently been diagnosed with PMR snd put on 15mg pred and after a month told to start reducing to 12.5....

DSNS - please tell me what this is someone? I am new ! Recently been diagnosed ...

kezzybabes

•8 years ago

5 Replies

Flaring

I think that after a while you feel that with your own personal experience and reading all these posts that you would have got things more sussed but the...

I think that after a while you feel that with your own personal experience and r...

Jackoh

•8 years ago

15 Replies

PMR gone into remission says consultant

Having been told by my consultant that PMR had gone into remission about a month ago I decided it was time to try to reduce the preds(I was on 5mg) I have...

Having been told by my consultant that PMR had gone into remission about a month...

kingharold11

•8 years ago

22 Replies

5 hours in A&E last night, diagnosed with GCA.

I was diagnosed with Polymyalgia rheumatica at the end of May and started taking prednisolone. I had one problem with dosage at 3-4 weeks but that was sorted...

I was diagnosed with Polymyalgia rheumatica at the end of May and started taking...

Judyliz

•8 years ago

16 Replies

New drug & different pred regime

Saw the rheumy yesterday and explained that I have not been able to get below 12mg of pred even whilst taking 10mg of leflunomide. In quite a bit of...

Saw the rheumy yesterday and explained that I have not been able to get below 12...

Griggser

•8 years ago

3 Replies

Posts - PMRGCAuk | HealthUnlocked

PMRGCAuk

All posts for September 2016

Upcoming meetings

Flu jab

Methotrexate

RESEARCH PROJECT: 'Your Ears' - WE NEED YOUR HELP.

Can I exercise?

Lupus, rash, prednisone

Actemra verses Methotrexate

A little lost on the journey and unsure of dosage...

New to site and diagnosed with pmr 5 months ago.

Sucess at the Great North Run.

Anti inflammatory and pred

EFFECTS OF STEROIDS

HORNER'S SYNDROME AND GCA

How much prednisilone to take on a relapse?

Appetite with preds

Calcium!!!!are

steriods

POLYMYALGIA SUFFERER

Why such different reactions?

PMR Journey

advice needed on reducing after being on 60mg for flare

Grange over Sands, Cumbria

Coventry Meet Up

What causes GCA

Remission

DSNS

Flaring

PMR gone into remission says consultant

5 hours in A&E last night, diagnosed with GCA.

New drug & different pred regime

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