Saw the rheumy yesterday and explained that I have not been able to get below 12mg of pred even whilst taking 10mg of leflunomide. In quite a bit of discomfort, hips and shoulders mainly. Low energy levels and apparently a bit grumpy!!
Been down the reduction route quite a few times over the last 3 years and always struggle at this 12mg and below mark. Had azathriprine (made me seriously ill), methotrexate (did nothing), mycophenalte (did nothing) and leflunomide which at 20mg a day gave me severe stomach pains.
Advised to now take 20mg of pred one day and 10mg the next alternating each day and to also take anew DMARD called hydroxyculroquine (not sure of dose yet).
I also had a long discussion on the merits of androlic acid and he is convinced I should remain on it for the time being. Lots of long scientific explanations with un-memorable names in the justification.
So time will tell, off to swallow the first dose of 20mg of pred, let's see if I feel any better at the end of today stroke tomorrow morning?