My wife has been blind now for about 6 months having been diagnosed with GCA. She lost her sight suddenly in a day. She was admitted to hospital and given large doses of steroids and when she was discharged after 10 days put on a reducing steroid regime, she is now on 12.5mg. We have had one meeting with the rheumatology consultant about 4 months ago who set out the reduction program. Before she went blind she had been unwell for several months spending most of her time asleep or in tears also not eating and I blame my self for not making her go to the doctors at the time but she was having treatment for anaemia and we put it down to that. What nobody has explained to us is what has caused her GCA and what the future holds for us. We have seem our GP but he was not much help as we are registered at a health centre with about a dozen doctors and you can never see the same doctor unless you can book appointments a month or more in advance so there is no continuity of treatment.
Sorry to waffle on but wanted to give a full picture. Joyce is very despondent with the situation not knowing what caused her blindness and want may happen in the future. So can anyone offer any advice or been through this before.