I've had GCA& PMR for 3 years started off on 60 mg preds, then within 3 months Dr. Reduced preds rapidly & put Me on Actemra infusion once monthly 5 months into it I had a flare so we doubled the dose, all went fine then this last March I was in the hospital 2 weeks with Mrsa & Pneumonia then home to recuperate another 2 months went by & I missed My Actemra. I had no pain & no sign of either illness so Dr said Im in remission. I still feel good except if I get tired, it seams to effect My head & I have to stop & lay down, hard to explain, feels like My head swells or fills up with air, I just can't go any longer. I don't know if that's the GCA or what. While I was in the hospital & having many tests they found I have a 4.7 aorta thoracic ascending aneurysm caused by GCA, so everyone make sure Your Dr. tests You for that. Now I'm feeling so much better but scared silly about this Aneurysm. Would love to hear from someone with same. And after being in remission5 months now, can I have another flare or is it just over. Drs here in California don't know much about GCA. Anyone have any answers for Me? Thanks all. Don't know what I would do without this site...
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