Posts - PMRGCAuk | HealthUnlocked

PMRGCAuk

20,342 members • 38,113 posts

All posts for July 2016

5 mg Pred when to taper again

Some time since I wrote here but need your advice again. I started on 15mg Pred in October 2015. Slowing cut down since and I am doing well on 5mg for the past...

Some time since I wrote here but need your advice again. I started on 15mg Pred ...

cassie1208

•8 years ago

22 Replies

Vision Problems

I have had PMR since April 2015. Started on 15mg Pred and now down to 7mg. I am taking it slowly as advised on this forum so as not to have a flare. I am...

I have had PMR since April 2015. Started on 15mg Pred and now down to 7mg. I am...

Patricia10

•8 years ago

14 Replies

GCA worries

The rheumy I saw went over the symptoms of GCA when she officially gave me the diagnosis of PMR this month. I worry about this constantly and would like to...

The rheumy I saw went over the symptoms of GCA when she officially gave me the d...

mo3go7

•8 years ago

10 Replies

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catch up after private rheumatologist appointment

It's been an interesting few weeks since I last posted. To recap, I was diagnosed with pmr several years ago, gca a year ago. On the advice of the doctor, I...

It's been an interesting few weeks since I last posted. To recap, I was diagnose...

annie_marie

•8 years ago

20 Replies

Angry feelings!

I'm not sure whether these angry feelings are coming from Polymyalgia Rheumatica, the sheer bad luck in getting it, just when life was finally looking up,...

I'm not sure whether these angry feelings are coming from Polymyalgia Rheumatica...

SheffieldJane

•8 years ago

11 Replies

Gca flare currently on 40 mg should I up my prednisone to 50 ? 60 ? Been on 40 2 months seeing rummy Thursday for 1st appt ??

Advice needed gca mega flare I've been on 40 prednisone for 2 months 1st appt with rummy this Thursday . Should I up pred to 50 ? Now

Advice needed gca mega flare I've been on 40 prednisone for 2 months 1st appt w...

Determineddebbie

•8 years ago

8 Replies

Sweating with steroids

I have just started i.v steroids in very high dose and now am on 40mg oral does anyone have a problem sleeping and sweating

I have just started i.v steroids in very high dose and now am on 40mg oral does ...

JJ47

•8 years ago

19 Replies

Good days bad days

Hi all I'm new on this site, three weeks ago it was confirmed that I had Polymyalgia Reumatica, is it normal to wake some mornings and not beable to move and...

Hi all I'm new on this site, three weeks ago it was confirmed that I had Polymya...

Billwizz

•8 years ago

13 Replies

Other pains returning.

Rather depressing after feeling so "well" and energetic over last few weeks to find some of my old pains coming back as I taper my Pred. I am down to 17.5mgs...

Rather depressing after feeling so "well" and energetic over last few weeks to f...

IdasMum

•8 years ago

7 Replies

Wobbly legs

My 76 year old mother has PMR and went from being a really independent lady to someone who needs to ask for help and needs a walking stick. She is much better...

My 76 year old mother has PMR and went from being a really independent lady to s...

ShellyC23

•8 years ago

8 Replies

Weening off Prednisone

Short version: 1 year of not being diagnosed utter hell. Then found out thru Internet the possible diagnosis of PMR. Told doctor who gave me prednisone told...

Short version: 1 year of not being diagnosed utter hell. Then found out thru In...

Hidden

•8 years ago

55 Replies

Blood results

Can anyone tell me what the normal ESP and CRP levels are I have just had blood tests and my ESR is 18 and CRP 6 .I have to make a ap to go back to docs .

Can anyone tell me what the normal ESP and CRP levels are I have just had blood...

jillianb

•8 years ago

5 Replies

Taking blood pressure doesn't have to be a nightmare.....

Up until my PMR symptoms appeared I had never had problems having my blood pressure taken. Well I say never had problems - I didn't enjoy it, but it was...

Up until my PMR symptoms appeared I had never had problems having my blood press...

Mish1920

•8 years ago

4 Replies

Hole in jaw bone - alendronic acid side effect?

Hi everyone. Am wondering if anyone has encountered this problem: 12 months ago the dentist took an xray when filling one of my teeth and it showed a hole in...

Hi everyone. Am wondering if anyone has encountered this problem: 12 months ago...

MaisieB

•8 years ago

6 Replies

PMR vs. Restless leg syndrome

I have had Restless leg syndrome for years. I have taken many different meds. and homeopathic alternatives through the years. Presently, I am taking Mirapex,...

I have had Restless leg syndrome for years. I have taken many different meds. an...

Joyful13

•8 years ago

10 Replies

Sharing on Facebook?

I have just noticed that there is a share button for FB and Twitter. I wonder what the protocol was for this....do people mind their stories being shared. I am...

I have just noticed that there is a share button for FB and Twitter. I wonder wh...

IdasMum

•8 years ago

18 Replies

Polymyalgia Rheumatica - and Me

Hi this is my first post but I have read many of yours and really appreciate the wealth of information that's shared through this forum. It's so incredibly...

Hi this is my first post but I have read many of yours and really appreciate the...

Mish1920

•8 years ago

50 Replies

Table Tennis doubles Saturday evening… don’t do it!!

The weekend was great; Friday evening I popped over to the fella’s place and dined on twiglets and a deliciously chilled Sancerre, I felt very relaxed and not...

The weekend was great; Friday evening I popped over to the fella’s place and di...

Anne-NRAS

•8 years ago

7 Replies

Ordering Pred.

Is it normal to have to phone the surgery every month to order my Pred. When I first started a year ago, they were automatically included on my repeat...

Is it normal to have to phone the surgery every month to order my Pred. When I f...

Pebble-Sue55

•8 years ago

16 Replies

Hot weather

Does anyone else feel worse with the hot weather? I've worn a hat in the sun but still experienced head pain and uncomfortable scalp. Bit worried cos just...

Does anyone else feel worse with the hot weather? I've worn a hat in the sun but...

Susanmod

•8 years ago

13 Replies

How is GCA diagnosed? I have Polymyalgia Rheumatica diagnosed a few weeks ago. The GP has not mentioned GCA.

I have had constant headaches for years, put down to Cervical Spondylitis. Now with PR I sometimes feel that my eyes are going to burst and get stabbing pains...

I have had constant headaches for years, put down to Cervical Spondylitis. Now w...

SheffieldJane

•8 years ago

18 Replies

Alendronic acid

Saw a different rheumy (at same hospital ) who was a bit cross with me for not starting alendronic acid, when I did not realise I should have been on it. (Last...

Saw a different rheumy (at same hospital ) who was a bit cross with me for not s...

Mary63

•8 years ago

28 Replies

Question regarding CRP and SED rates?

I saw my "new" rheumatologist yesterday and had some blood work done. This doctor initially increased my dosage two months ago as I was having some symptoms....

I saw my "new" rheumatologist yesterday and had some blood work done. This doct...

TooSore

•8 years ago

7 Replies

Waiting an extra week to taper

Hoping someone can advise me here, my Rheumy has me tapering by 2 mil every 4 weeks, this began on June 23 so I'm supposed to taper another 2 percent next week...

Hoping someone can advise me here, my Rheumy has me tapering by 2 mil every 4 we...

Shastring

•8 years ago

15 Replies

Good Rhuematologist in Midlands area?

Hi, Can anyone suggest good Rhuematologist in the Birmingham, Sutton Coldfield Area. I know is might be a long wait, but i am prepared to wait for a good...

Hi, Can anyone suggest good Rhuematologist in the Birmingham, Sutton Coldfield ...

Mamadona

•8 years ago

1 Reply

Myofascial Pain

After reading about this affliction on this forum, I realised that I was probably suffering from it. GP agreed that the pain was muscular but all routes to...

After reading about this affliction on this forum, I realised that I was probabl...

Annodomini

•8 years ago

14 Replies

New dosage!

I have had PMR and GCA for 6 years.Not posted before but have read all the posts .found out lots from this site.I am now on 10mg/5 mg on alternate days.I...

I have had PMR and GCA for 6 years.Not posted before but have read all the posts...

cheshirelass

•8 years ago

2 Replies

Hi I am new on the site even though have been following this site for a few years.HavePMR and GCA still on10mg /5mg on alternate days.

Have been on pred for 6 years for pmr and gca starting on 40mg been up and down .Now on 10mg one day 5mg next day. My rheumy favours this approach on this...

Have been on pred for 6 years for pmr and gca starting on 40mg been up and down...

cheshirelass

•8 years ago

1 Reply

Giant Cell Arteritis and Mycophenolate

I am a 64 year old male who has suffered from GCA for 6 years. I did manage to get down to 3.5mgs of prednisilone a day although would have relapses. My new...

I am a 64 year old male who has suffered from GCA for 6 years. I did manage to ...

Stkeyna

•8 years ago

5 Replies

When to start decreasing steroids

Was diagnosed with PMR and have been taking 10 mg steroids for about two months, 5mg in a.m. and 5mg in evening . Feel good, keeping the pain at bay, able to...

Was diagnosed with PMR and have been taking 10 mg steroids for about two months,...

Dwid

•8 years ago

11 Replies

Posts - PMRGCAuk | HealthUnlocked

PMRGCAuk

All posts for July 2016

5 mg Pred when to taper again

Vision Problems

GCA worries

catch up after private rheumatologist appointment

Angry feelings!

Gca flare currently on 40 mg should I up my prednisone to 50 ? 60 ? Been on 40 2 months seeing rummy Thursday for 1st appt ??

Sweating with steroids

Good days bad days

Other pains returning.

Wobbly legs

Weening off Prednisone

Blood results

Taking blood pressure doesn't have to be a nightmare.....

Hole in jaw bone - alendronic acid side effect?

PMR vs. Restless leg syndrome

Sharing on Facebook?

Polymyalgia Rheumatica - and Me

Table Tennis doubles Saturday evening… don’t do it!!

Ordering Pred.

Hot weather

How is GCA diagnosed? I have Polymyalgia Rheumatica diagnosed a few weeks ago. The GP has not mentioned GCA.

Alendronic acid

Question regarding CRP and SED rates?

Waiting an extra week to taper

Good Rhuematologist in Midlands area?

Myofascial Pain

New dosage!

Hi I am new on the site even though have been following this site for a few years.HavePMR and GCA still on10mg /5mg on alternate days.

Giant Cell Arteritis and Mycophenolate

When to start decreasing steroids

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