Posts - PMRGCAuk | HealthUnlocked

PMRGCAuk

20,301 members • 38,032 posts

All posts for May 2015

recheck after flare up

I can now predict my high sed rate due to the exhaustion and pain I feel. it coincides when tapering off to 6 mg of Pred. luckily lab results confirm high...

I can now predict my high sed rate due to the exhaustion and pain I feel. it co...

Celestee

•9 years ago

2 Replies

Upset stomache and preds

Just gone on to antibiotics today for chest infection but now have an upset stomache will this affect my prednisilone dose. I am on 35mg for Gca and PMR

Just gone on to antibiotics today for chest infection but now have an upset stom...

Lilymaerose

•9 years ago

4 Replies

Breathless

Hi everyone, haven't posted for a while but right now I really need some advice. I've been reducing preds by 1/2 mg monthly and was fine until I got to 9 mg...

Hi everyone, haven't posted for a while but right now I really need some advice....

JJackdaw

•9 years ago

13 Replies

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Pains worsened when breathing in

After 3.5 month off sick, I returned a few weeks ago to work. Last week I was on holiday so took the opportunity to reduce Pred from 8 to 7.5mgs. That was 12...

After 3.5 month off sick, I returned a few weeks ago to work. Last week I was on...

Runrig01

•9 years ago

53 Replies

Update

Ok here's the story, got down to 13mg of preds and felt rotten. I was also on 2gm of Mycophenalate. Felt like crap so spoke with doc who advised to up the...

Ok here's the story, got down to 13mg of preds and felt rotten. I was also on 2g...

Griggser

•9 years ago

5 Replies

Needing advice please

Following PMR diagnosis in March I have been taking 15 mg of pred for 8 weeks which I needed to split, 5mg at 11pm then 10mg in the morning in order to...

Following PMR diagnosis in March I have been taking 15 mg of pred for 8 weeks ...

Patricia10

•9 years ago

3 Replies

Worsening symptoms

After successfully reducing my preds from 15mg down to 3.5 mg since being diagnosed 26 months ago. I experienced a return of symptoms (about 6 weeks ago) I...

After successfully reducing my preds from 15mg down to 3.5 mg since being diagno...

JOHNONE28

•9 years ago

15 Replies

Increasing preds if knowingly going to have a stress day

Hi there I have read that some of you have increased your preds if you know you are going to have a stressful day, can anyone explain to me how this works, how...

Hi there I have read that some of you have increased your preds if you know you ...

notnice

•9 years ago

5 Replies

Diabetes!

Hi guys. Am on my first week of 14mgs pred after7wks of 15mgs so am cautiously looking out for signs of withdrawal/return of symptoms. My doc insisted on me...

Hi guys. Am on my first week of 14mgs pred after7wks of 15mgs so am cautiously l...

Carrollee

•9 years ago

6 Replies

Prednisone dosage /split

I read this blog first thing every morning and I think that it it is responsible for my retaining my sanity. The advice given a while ago was to take the...

I read this blog first thing every morning and I think that it it is responsible...

30048

•9 years ago

7 Replies

Seasonal allergies lead to flare?

It's late spring here, and my seasonal allergies are back! It's my second spring season after PMR diagnosis, and a pattern is emerging! My first symptoms of...

It's late spring here, and my seasonal allergies are back! It's my second spring...

1Purplecrow

•9 years ago

12 Replies

How very annoying

I have diligently taken my calcium and vit d, and even my ale droning acid since starting on pred in September, and have as always eaten a healthy diet. I walk...

I have diligently taken my calcium and vit d, and even my ale droning acid since...

Rjw2014

•9 years ago

8 Replies

Whatever next, now my legs have gone

I can,t believe that after a roller coaster two years of suffering GCA and PMR with many flares I am back again on 20 mg of Prednisolone. I switched from 17 to...

I can,t believe that after a roller coaster two years of suffering GCA and PMR w...

Classicmichael

•9 years ago

3 Replies

Why am I so pale in my face since my PMR?

Am a fair skinned person anyway but can some one with medical knowledge explain what is happening with why I have taken on a very pale lifeless complexion...

Am a fair skinned person anyway but can some one with medical knowledge explain ...

Megams

•9 years ago

11 Replies

Meltdown

Hi Everyone, I feel like I'm having a meltdown at the moment. Today is the first time since I was diagnosed with PMR at the beginning of Dec 2015 that I've had...

Hi Everyone, I feel like I'm having a meltdown at the moment. Today is the first...

PJPS

•9 years ago

11 Replies

Question

Is there any research on the time it takes for GCA to burn out rather than just be suppressed by prednisone?

Is there any research on the time it takes for GCA to burn out rather than just ...

Hidden

•9 years ago

2 Replies

Question for those with GCA

Out of curiosity for those of you with GCA, have your headaches always been temporal, which is the most common for GCA, or have they been elsewhere in your...

Out of curiosity for those of you with GCA, have your headaches always been temp...

SweetSue

•9 years ago

11 Replies

Help please!

I have PMR and have been on steroids, 20mg daily, for just over a week. The stiffness and pain have improved but I still feel very poorly at times during the...

I have PMR and have been on steroids, 20mg daily, for just over a week. The stif...

Soosie56

•9 years ago

18 Replies

Mobility Design Project

Hi ! I am a product design student and I am currently starting a project to help improve mobility for elderly people, developing a special luggage. Not...

Hi ! I am a product design student and I am currently starting a project to help...

clslj

•9 years ago

12 Replies

Rheumy - finally

After four years, my GP made me an appointment with a rheumy because he was concerned about my yo-yoing inflammatory markers. I thought at the time that these...

After four years, my GP made me an appointment with a rheumy because he was conc...

Annodomini

•9 years ago

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Help

I was diagnosed with GCA and PMR in dec 2014 after 4 months of the worst headache of my life. Straight onto 60 mg prednisilone a day. Am now down to 35 mg a...

I was diagnosed with GCA and PMR in dec 2014 after 4 months of the worst headach...

Lilymaerose

•9 years ago

8 Replies

Avascular Necrosis

Has any one been diagnosed with Prednislone induced Avascular Necrosis? I have just been told I need a hip replacement.

Has any one been diagnosed with Prednislone induced Avascular Necrosis? I have j...

Carriacou1937

•9 years ago

5 Replies

Myopathy

Just come back from holiday to a letter from the hospital regarding an appointment with a rheumy 2 weeks ago. It was a locum Consultant Rheumatologist that I...

Just come back from holiday to a letter from the hospital regarding an appointme...

kingharold11

•9 years ago

9 Replies

Flare Up

Hi. I stopped taking Prednisolone in January after gradually reducing the dose. I have been on Merhotrexate for over a year. I have been under a lot of stress...

Hi. I stopped taking Prednisolone in January after gradually reducing the dose. ...

panda12

•9 years ago

8 Replies

Thyroid under active

Had appointment with doctor's to day Migraine looks like it is back going to carry on co- codamol as she is loathe to add more drugs Thyroid boarder line...

Had appointment with doctor's to day Migraine looks like it is back going to ca...

olive2709

•9 years ago

7 Replies

Advice on increasing preds

Hi there I have GCA and just decreased my press from 25mg to 22.5mg three days ago, everything has been fine then I got head pain during the night and all day...

Hi there I have GCA and just decreased my press from 25mg to 22.5mg three days a...

notnice

•9 years ago

9 Replies

Can steroids cause dementia?

Help! I have just been diagnosed with early dementia, which is bad news. But I am wondering - can it possibly be a side-effect of the steroids which I am on...

Help! I have just been diagnosed with early dementia, which is bad news. But I a...

Trenny

•9 years ago

11 Replies

Myofascial pain syndrome? & persistent knot in calf

I just posted this also on the Patient.co.uk/forum, but thought I would post it here too, so here goes: One of my first PMR symptoms was what I thought was a...

I just posted this also on the Patient.co.uk/forum, but thought I would post it ...

SweetSue

•9 years ago

30 Replies

Just been to the doctor.

Hi all. I have just been to see the doctor. Never seen this GP before. My ESR had gone down from 60 to 57 (I was on 12mg Pred when I had the bloods done.)...

Hi all. I have just been to see the doctor. Never seen this GP before. My ESR...

lynne99

•9 years ago

4 Replies

Missed dose and grandkids

Never again (well certainly not while I battle with this condition) will I willingly offer to take my 3 amazing grandchildren for the week again! (2 under 2...

Never again (well certainly not while I battle with this condition) will I willi...

sealine30

•9 years ago

8 Replies

Posts - PMRGCAuk | HealthUnlocked

PMRGCAuk

All posts for May 2015

recheck after flare up

Upset stomache and preds

Breathless

Pains worsened when breathing in

Update

Needing advice please

Worsening symptoms

Increasing preds if knowingly going to have a stress day

Diabetes!

Prednisone dosage /split

Seasonal allergies lead to flare?

How very annoying

Whatever next, now my legs have gone

Why am I so pale in my face since my PMR?

Meltdown

Question

Question for those with GCA

Help please!

Mobility Design Project

Rheumy - finally

Help

Avascular Necrosis

Myopathy

Flare Up

Thyroid under active

Advice on increasing preds

Can steroids cause dementia?

Myofascial pain syndrome? & persistent knot in calf

Just been to the doctor.

Missed dose and grandkids

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