I can,t believe that after a roller coaster two years of suffering GCA and PMR with many flares I am back again on 20 mg of Prednisolone.
I switched from 17 to 40 mg three weeks ago after a scary attack of temple pain which thankfully responded to the higher dose.
However I am completely dumbfounded by my PMR NOT responding to 20 mg of pred.
I have long been wandering why my pain is only located below the waist when all the classic signs are to do with the shoulders and arms. The last couple of days have given me so much pain in my hips,legs and knees that My walking gait resembles something between a penguin and John Wayne.
I am now beginning to suspect that this illness may be a bit more sinister than I thought as another new symptom is lack of sensation in my feet and legs, particularly after standing up from a seated position.
I am arranging an appointment with a Doctor this week and am due to see the Rhumatology in a couple of weeks when I expect that I will be asked to take methotrexate which is a drug that I have always resisted to try and lower the steroids.
I am now wondering if in fact I don't have PMR as the steroids are doing nothing for the chronic pain, so I am keeping an open mind on the possibility that this could be Rhumatoid arthritis (my wife suffers with it) or even MS.
I am expecting a level of contradiction from the medics when these issues are raised so in readiness for this I would greatly appreciate your views and opinions (after all you are the experts) as I am so fed up with lack of progress in getting down on these horrible steroids.