aasld.org This is the site for the American Association for the Study of Liver Diseases.
They make the AASLD Guidelines for the Diagnosis and Treatment of PBC. Every one should take the time to read this. Take a copy of it to your doctor as well. They should be familiar with - and following - these rules.
This website is full of information on liver disease. Be take the time to browse thru it time to time. Well worth your time....