Just this morning there was a post about questioning the legitimacy of a survey about itching - and receiving payment for completing it.
Some of you reached out to The PBC Foundation (as did I) to just make sure it was 'for real'.
I am just as hopeful that when any of you don't feel the care you receive from your doctor isn't 'quite right' that you will question it as well. That is why it is so important for each of us to be familiar with the Standards of Care published by EASL and AASLD - The European Association for the Study of Liver Disease and The American Association for the the Study of Liver Diseases. These are publishes as a result of many international liver experts who come together to discuss the correct way to diagnose and treat PBC. Every doctor who treats someone with PBC must be familiar with these standards as well.
Doesn't it make sense that each doctor who treats PBC gives us not only the best care but the RIGHT care that we all deserve?! Make sure you are familiar with these standards. I have posted the link to them here on the website.
EASLGuidelinesPublication.pdf (pbcfoundation,org.uk)
AASLD.org
To biopsy or not
New here! Question about Diagnosis 
Should I mentally prepare for the possibility..?
