Posts - PBC Foundation | HealthUnlocked

PBC Foundation

9,391 members • 8,002 posts

All posts for July 2018

I've just been diagnosed with PBC - in last four months I've been taking urso 2x a day now I'm taking 2x250mg at bedtime- anyone like this?

Just wondered as i thought taking it at bedtime was for disolving gall stones. I didn't know about at change to the prescription until the pharmacist...

Just wondered as i thought taking it at bedtime was for disolving gall stones. I...

Bbbbbbbbbmmmm

•6 years ago

21 Replies

Ayrshire

Is there anyone on the site who lives in Ayrshire with PBC ? If so can you contact me?

Is there anyone on the site who lives in Ayrshire with PBC ? If so can you conta...

JaniceK

•6 years ago

Be the first to reply

Just been diagnosed with PBC

Is there anyone in the Lymington area or nearby who has PBC. I would very much like to be in contact with you.

Is there anyone in the Lymington area or nearby who has PBC. I would very much l...

MrsPearson

•6 years ago

12 Replies

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Skinny Liver - book by K. Kirkpatrick and I. Hanouneh

Has anyone read the book Skinny Liver? It’s written by a nutritionist and a doctor from the Cleveland Clinic. While the book is written for readers who suffer...

Has anyone read the book Skinny Liver? It’s written by a nutritionist and a doct...

Ottley3

•6 years ago

10 Replies

still dont know if i have pbc or

all blood work came back normal except i have the antibodies in my blood for pbc which was high i asked dr do i have it or do i still no diagnosis i dont know...

all blood work came back normal except i have the antibodies in my blood for pbc...

oreo2016

•6 years ago

3 Replies

Algae Cal for bone density

I have been diagnosed with osteopenia and after a couple of months of high dose vitamin D3 (it had been very low) I was put on Calceos. My sister has done...

I have been diagnosed with osteopenia and after a couple of months of high dose...

clvird

•6 years ago

7 Replies

Mixed feelings

OK so I see my gp today, and thanks to the news letter I asked what my alt is, as I have never been told, its 129, was 131 so I guess its good its going down...

OK so I see my gp today, and thanks to the news letter I asked what my alt is, a...

Pinkcrush

•6 years ago

1 Reply

Does anyone know if you can drink alcohol while taking Ocaliva?

I’ve not been told I can’t but the last 2 times I’ve had a few drinks the next day I come out with a horrible sun burn like rash on my chest???? Just wondered...

I’ve not been told I can’t but the last 2 times I’ve had a few drinks the next d...

Ktb32

•6 years ago

10 Replies

Cost of Ocaliva in the US.

Diagnosed last year with PBC. ALP was 755 and after a year on Urso only down to 540; been checked 3 times since diagnosis. Dr. is talking about adding...

Diagnosed last year with PBC. ALP was 755 and after a year on Urso only down to...

kp1234

•6 years ago

12 Replies

Vitamin D3 and Urso

Hi All, is it ok to take vitamin D3 and one of the 3 Urso capsules at the same time with food? I take synthroid on an empty stomach when I wake up wait an hour...

Hi All, is it ok to take vitamin D3 and one of the 3 Urso capsules at the same t...

Ellyne

•6 years ago

9 Replies

Newbie

Hi everyone, I'm new here, Just been diagnosed today, have a referral to a specialist and my form to have a liver ultrasound........

Hi everyone, I'm new here, Just been diagnosed today, have a referral to a speci...

Nitamarie66

•6 years ago

6 Replies

Researching and scared and confused

Hi I’m Jen just got my test results back last night AMA Positive /NASH Fatty liver disease positive I have a gastroenterologist appt the 25th just had an...

Hi I’m Jen just got my test results back last night AMA Positive /NASH Fatty liv...

Jenmorrow7771

•6 years ago

6 Replies

Try to reach Dr. PJ Chen

Dr. Robert Gish introduces me of Dr. PJ Chen who is located in Taiwan. Can anyone send a message if you know how to reach Dr. PJ Chen. My email address is...

Dr. Robert Gish introduces me of Dr. PJ Chen who is located in Taiwan. Can anyon...

Hidden

•6 years ago

5 Replies

Confused! Fibroscan versa elastograpy

Well last jan I had a elastgraphy at a private clinic for PBC . exam score was 22.7 kp with is equal to F4. Ultrasound technician said my liver was very patchy...

Well last jan I had a elastgraphy at a private clinic for PBC . exam score was 2...

Aussielouise

•6 years ago

43 Replies

Little discouraged 😕

My dr was happy in January when ALP came down to 132. In April it was still 132. Today it is 139. I find it ironic that between January lab & April, I was put...

My dr was happy in January when ALP came down to 132. In April it was still 132....

gwillistexas

•6 years ago

12 Replies

Confused :)

I was diagnosed with pbc but currantly being tested for connective tissue disease Looking via the Internet is very confusing but I did notice on my...

I was diagnosed with pbc but currantly being tested for connective tissue diseas...

Pinkcrush

•6 years ago

13 Replies

Anyone else cold?

Is anyone else having trouble staying warm? I am always cold, even when it's 80 degrees! It's maddening!

Is anyone else having trouble staying warm? I am always cold, even when it's 80 ...

ROprish

•6 years ago

18 Replies

Highly likely I have PBC and scared it’s stage 4

Hi everyone, I’m a newbie in need of some reassurance! I have raised liver enzymes which has been raised for 3 years but remained stable so my GP wasn’t too...

Hi everyone, I’m a newbie in need of some reassurance! I have raised liver enzy...

Rachie34

•6 years ago

22 Replies

Bezafibrate

Anyone taking bezafibrate to lower your enzyme numbers have side effects like very painful leg and feeling really low. Just started this drug three weeks ago .

Anyone taking bezafibrate to lower your enzyme numbers have side effects like ve...

flora

•6 years ago

6 Replies

Am 53 having horrendous menopause gynocologist says I have endometriosis now ! Gp is going to check which hrt I can go on with pbc ?

Continuous separate consultants gps etc .. only diagnosed with endometriosis now always had bad periods pmt and history of bad pregnancies ceaserians and...

Continuous separate consultants gps etc .. only diagnosed with endometriosis now...

tessiecat

•6 years ago

5 Replies

Age and Urso dosage if your over 70 does the dosage stay the same.

Has anyone had docter say the dosage should be less if your over 70

summer641946

•6 years ago

14 Replies

Gastro/Hep Specialist Makes me More Baffled

Hi, This weekend I went to a specialist in sunny San Diego. He is said to be an excellent doctor and knowledgeable with PBC. I went for a second opinion as to...

Hi, This weekend I went to a specialist in sunny San Diego. He is said to be an...

Sdone

•6 years ago

6 Replies

Baclofen/ Lioresal with PBC?

Has someone eaten a medicin called Baclofen or Lioresal? Is it allowed with PBC?

Has someone eaten a medicin called Baclofen or Lioresal? Is it allowed with PBC?...

saarima

•6 years ago

1 Reply

2018 PBC Conference-Houston, TX

I would love to share this but I’m not sure how. I was especially interested in Dr Gishs presentation & emailed it to myself. I feel everyone could benefit...

I would love to share this but I’m not sure how. I was especially interested in ...

gwillistexas

•6 years ago

16 Replies

Posts - PBC Foundation | HealthUnlocked

PBC Foundation

All posts for July 2018

I've just been diagnosed with PBC - in last four months I've been taking urso 2x a day now I'm taking 2x250mg at bedtime- anyone like this?

Ayrshire

Just been diagnosed with PBC

Skinny Liver - book by K. Kirkpatrick and I. Hanouneh

still dont know if i have pbc or

Algae Cal for bone density

Mixed feelings

Does anyone know if you can drink alcohol while taking Ocaliva?

Cost of Ocaliva in the US.

Vitamin D3 and Urso

Newbie

Researching and scared and confused

Try to reach Dr. PJ Chen

Confused! Fibroscan versa elastograpy

Little discouraged 😕

Confused :)

Anyone else cold?

Highly likely I have PBC and scared it’s stage 4

Bezafibrate

Am 53 having horrendous menopause gynocologist says I have endometriosis now ! Gp is going to check which hrt I can go on with pbc ?

Age and Urso dosage if your over 70 does the dosage stay the same.

Gastro/Hep Specialist Makes me More Baffled

Baclofen/ Lioresal with PBC?

2018 PBC Conference-Houston, TX

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