Posts - PBC Foundation | HealthUnlocked

PBC Foundation

9,476 members•8,330 posts

All posts for December 2017

Worried and stressed out

I just delivered in August, but during the pregnancy I was diagnosed with pregnancy cholestasis. My liver enzyme Alk Phos. was elevated towards the end of the...

I just delivered in August, but during the pregnancy I was diagnosed with pregna...

Amodel2001

•7 years ago

18 Replies

Had my first Appointment with Hepatologist...

Went to Cleveland Clinic on Thursday.Everybody is so welcoming and caring there.Anyways,we talked a lot about PBC and basic questions plus new blood...

Went to Cleveland Clinic on Thursday.Everybody is so welcoming and caring there....

PBCTracy

•7 years ago

4 Replies

Editing profile pic

Have tried to change profile pic. Why does it chop you off & only see top of head...frustrating.

Have tried to change profile pic. Why does it chop you off & only see top of hea...

gwillistexas

•7 years ago

14 Replies

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Prednisone face.

This is me. The first photo was taken before diagnosis Maybe a year. The second photo I’m down to 10 mgs. My dr said that pbc is secondary to my aih. He’s...

This is me. The first photo was taken before diagnosis Maybe a year. The secon...

Hidden

•7 years ago

21 Replies

Worried!!!

Hi all. Previously on a one off blood test it was noticed I had raised AMA M2 of 29. Above 9 is raised! My LFTs normal. Had bloods repeated four months later...

Hi all. Previously on a one off blood test it was noticed I had raised AMA M2 of...

Flower-powr

•7 years ago

15 Replies

Current Labs and starting "real" URSO Forte Dec. 11th.

Hi PBCers, So my Alk-phos has been slowly climbing. Went from 134 to 174 in 3 months😕. Been on generic Ursodiol for 9 months. Many of you posted encouraging...

Hi PBCers, So my Alk-phos has been slowly climbing. Went from 134 to 174 in 3 m...

Ktltel

•7 years ago

18 Replies

Just diagnosed

I've just been diagnosed with pbc, after a positive Ana blood test and liver biopsy and I collect the Ursodeoxycholic acid tomorrow, i just wondered if there...

I've just been diagnosed with pbc, after a positive Ana blood test and liver bio...

Pinkcrush

•7 years ago

27 Replies

Dr visit today

Happy to say my dr is very pleased with my labs. I have another lab in one month & if still doing good I will start every 3 months. He said he watches ALP &...

Happy to say my dr is very pleased with my labs. I have another lab in one month...

gwillistexas

•7 years ago

25 Replies

I am back...

I was retested twice in 5 months my alt has stayed 53 and my ast 50 alt 113 I was negative for AMA my marker was 18 which was said to be negative. My ANA is...

I was retested twice in 5 months my alt has stayed 53 and my ast 50 alt 113 I wa...

mtk0925

•7 years ago

19 Replies

No more pain in arms and shoulders

After diagnosis of tendonitis in both arms by consultant persuaded my GP to give me the jabs and hey Preston no more pain! As a WASPI - no pension until 65...

After diagnosis of tendonitis in both arms by consultant persuaded my GP to give...

Gioielli

•7 years ago

14 Replies

Thyroid

Am curious if anyone on Urso or Ocalvia are having issues with TSH. In June my TSH was little above normal range so Dr increased levothyroxine. Had it checked...

Am curious if anyone on Urso or Ocalvia are having issues with TSH. In June my ...

gwillistexas

•7 years ago

39 Replies

Posts

For the last couple days, I have not been able to click on some of the posts to read plus the replies. Anyone else having problems with this? Sometimes when I...

For the last couple days, I have not been able to click on some of the posts to ...

gwillistexas

•7 years ago

9 Replies

Unsure if I have PBC, can you help me?

Hi there, I have never written on a forum like this. For the past 7 months I have felt unwell. Symptoms vary and have evolved. Sometimes lightheadedness. I...

Hi there, I have never written on a forum like this. For the past 7 months I ha...

Tfein

•7 years ago

16 Replies

In the hospital, frustrated, want to scream

So after the past weekend difficulties of trying to get my mother in the ER, I managed to somehow convince her to see her primary care physician at his...

So after the past weekend difficulties of trying to get my mother in the ER, I m...

Kaidozier

•7 years ago

11 Replies

Pbc

My name is anne i am 59 years old Have positive amas Referred to hepatologist for further investigation More blood tests done at the hospital Hepatologist...

My name is anne i am 59 years old Have positive amas Referred to hepatologist ...

Ballymahon2

•7 years ago

19 Replies

Keto diet

Hi all, I’m in desperate need of shifting a few pounds (stones really) after a broken ankle has left me not able to exercise for 4 months and was considering...

Hi all, I’m in desperate need of shifting a few pounds (stones really) after a ...

sylviaj

•7 years ago

3 Replies

Take a flu shot

Mom of 2 dies day after flu diagnosis - Fox Newshttps://apple.news/AwbBb7HtwQIi3L5mUFG3hAw

Mom of 2 dies day after flu diagnosis - Fox Newshttps://apple.news/AwbBb7HtwQIi3...

Sachin1234

•7 years ago

16 Replies

medication after knee replacement and pic

hi not been on here for a long time, i was diagnosed 9 years ago, my ALP GGT were high but ok ish with urso 2 months ago i had a knee replacement and at first...

hi not been on here for a long time, i was diagnosed 9 years ago, my ALP GGT wer...

silvi

•7 years ago

4 Replies

Multi country travel insurance

Any recommendations for UK insurers for my round the world sabbatical trip? I was diagnosed in August this year and my current travel company will not...

Any recommendations for UK insurers for my round the world sabbatical trip? I wa...

Looloojam

•7 years ago

6 Replies

PBC study

Hi all I'm New to group although been having a peek at posts was diagnosed last year wanted to know if anyone else in the UK has been approached to take part...

Hi all I'm New to group although been having a peek at posts was diagnosed last ...

1959L

•7 years ago

17 Replies

Hormone Replacement therapy (HRT)

My functional doctor recommended HRT for me and she thinks it helps with bone strength, joint pain, vascular disease, etc. She also said the bio-identical...

My functional doctor recommended HRT for me and she thinks it helps with bone st...

JaneIng

•7 years ago

28 Replies

Pat

I am so tired of being tired. I have had PBC since 2011, Dx. 2015. My old dr. Failed to Dx. Me correctly, chocked it up to depression. It seems like just when...

I am so tired of being tired. I have had PBC since 2011, Dx. 2015. My old dr. Fa...

KevinHall10_

•7 years ago

19 Replies

Family Ties

Anyone do any genealogy trying to connect the dots? Yesterday I spent some time doing just that! A lot of frustrations but found the LDS Geneology site and...

Anyone do any genealogy trying to connect the dots? Yesterday I spent some time...

tonia17

•7 years ago

4 Replies

Should I not be lifting

I decided to rejoin my gym and work at getting this prednisone weight off. 30 pounds to be exact is what I gained. I’m sure some or most is from food...

I decided to rejoin my gym and work at getting this prednisone weight off. 30 p...

Hidden

•7 years ago

5 Replies

Mother may have PBC & I’m scared + I need advice on her situation

Hi I’m new here but I’m hoping to get some help & learn about PBC. My story begins with my mother being extremely fatigued to the point where she’s been bed...

Hi I’m new here but I’m hoping to get some help & learn about PBC. My story be...

Kaidozier

•7 years ago

11 Replies

Raynards too now

Hi I have pbc now couple of years , I've not posted anything in a while but I've been reading other people's posts. I've recently been back to see Gp due to...

Hi I have pbc now couple of years , I've not posted anything in a while but I've...

Twinkle26

•7 years ago

11 Replies

Antibiotics

I have just been written a prescription for Minocycline an antibiotic for a skin infection. I’m worried about taking it due to the affect it will have on my...

I have just been written a prescription for Minocycline an antibiotic for a ski...

LorraineLouise

•7 years ago

5 Replies

Posts - PBC Foundation | HealthUnlocked

PBC Foundation

All posts for December 2017

Worried and stressed out

Had my first Appointment with Hepatologist...

Editing profile pic

Prednisone face.

Worried!!!

Current Labs and starting "real" URSO Forte Dec. 11th.

Just diagnosed

Dr visit today

I am back...

No more pain in arms and shoulders

Thyroid

Posts

Unsure if I have PBC, can you help me?

In the hospital, frustrated, want to scream

Pbc

Keto diet

Take a flu shot

medication after knee replacement and pic

Multi country travel insurance

PBC study

Hormone Replacement therapy (HRT)

Pat

Family Ties

Should I not be lifting

Mother may have PBC & I’m scared + I need advice on her situation

Raynards too now

Antibiotics

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