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PBC Foundation
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Dr visit today

Happy to say my dr is very pleased with my labs. I have another lab in one month & if still doing good I will start every 3 months. He said he watches ALP & bilirubin as they are the most important biomarkers in his patients who only have PBC. If AIH overlap, AST & ALT are the main biomarkers. The problem with my thyroid level may be due to PBC not allowing me to absorb the thyroid med. he also assured me I’m in good hands with him. He works closely with hepatologist in Dallas at Baylor Medical & UT Southwestern. If I should progress to cirrhosis in the future, he will put me where I need to be with a dr from one of those large hospitals. One of the hepatologist he works with from Dallas, comes to Tyler once a month. So apparently he skips over our local hepatologist & works with those of greater knowledge & experience. I’m content🤗

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Sounds like you are in pretty good shape for now! Yippee!

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Yes, I’m happy😊

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💖

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Gwillistexas,

Good news!! 🙌🙌🙌

So nice to hear. Enjoy.

Stella ❤

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That's awesome. After all you've been through, good to know you have a rapport with doctor & he meets your needs.

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Great news

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Great news

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yay good news xxx

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Interesting as I have read in liver newsletters UK that besides bilirubin, think it also albumin as a marker too.

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Peridot...it is all important but he strives to get ALP to 160 or below & I came down from 240 to 148. He watches albumin as well, & says common for bilirubin to fluctuate. As far as “2” markers , ALP & bilirubin. My albumin is still within normal range.

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Peridot...I get so freaking nervous when I go to the dr. I know albumin & bilirubin work side by side, if you will. Maybe he thought I knew this when he mentioned bilirubin. It’s all good😊

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If you made yourselfa member of PBC Foundation, look at page 21 of the Compendium. All 3 are mentioned (ALP, bilirubin and albumin).

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Yes I am a member. I’m not doubting about albumin. As I said earlier, I’m sure my GI knows that I know they are both important. He never excluded albumin but he stressed ALP & bilirubin.

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Glad you have access to good medical care and that you feel confident with the team. And thumbs up on the good lab results!

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Thank you. I’m not sure I’ll ever be able to relax with all this. Hope I can find a happy medium somewhere & enjoy life.

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Great report! So happy for you! 🤗

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Thanks!😊

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So happy for you.

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YADILURO...are you doing ok?

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Actually I am doing not so good. I've been with prednisone ana azatioprin for a month now and since a week ago I feel awful. I am náuseas vomiting some time and a very upset stomach. Just to think I am going for a few couple of month with this meds make me scared.

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I’m sorry. What is the prednisone for? I see several posts about taking it.

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I ALSO HAVE AUTOINMUNE HEPATITIS WITH PBC, THE OVERLAP SINDROME, SO I AM TAKING PREDNISONE, AZATIOPRIN AND URSO

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Ok. Yes, I understand. I will keep you in my prayers. My prayer list gets longer & longer😊🙏🏻🙏🏻🙏🏻🙏🏻🙏🏻

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THANK YOU SO MUCH, YOU MAKE ME FEEL SO MUCH BETTER

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You’re welcome. I’m so new with all this & I am at a loss for words a lot of times. Just know in your heart we all care about you & want you to be okay & feel better😉🌹❣️

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