Posts - PBC Foundation | HealthUnlocked

PBC Foundation

9,391 members • 8,002 posts

All posts for February 2017

Ursodexychokic acid

I read this today on the Australian and Nz pbc website and found it very informative with info I never understood so am sharing here URSODEOXYCHOLIC ACID...

I read this today on the Australian and Nz pbc website and found it very informa...

boneytoys

•7 years ago

25 Replies

Itching hives on neck & eyes

Hello. Just a quick check-in with my PBC community on an issue I've been having for a couple of weeks. In addition to my normal itching, which tends to...

Hello. Just a quick check-in with my PBC community on an issue I've been having...

Carol60

•7 years ago

19 Replies

Side effects of Ocaliva

I have PBC since the age of 34. I have been taking Urso 1000mg per day for 6years now and there has been no severe itching and I am leading a normal life so...

I have PBC since the age of 34. I have been taking Urso 1000mg per day for 6year...

Mg40

•7 years ago

22 Replies

Want to take advantage of all our features? Just log in!

So tired and itchy and tired of being itchy

Hi all, I was diagnosed with PBC last summer and put on 1500 mg of Urso a day, I also take cholestyramine in the mornings. They could not advise of what stage...

Hi all, I was diagnosed with PBC last summer and put on 1500 mg of Urso a day, I...

AllieCraw

•7 years ago

13 Replies

Very concerned

Can anyone help. It was found that I had a intrahepatic arterioportal shunt on an MRI in December I have waited till the 30th of Jan to see consultant about...

Can anyone help. It was found that I had a intrahepatic arterioportal shunt on a...

Kittyjack

•7 years ago

12 Replies

Bruised eyelid

I woke up this morning with a bruised eyelid. I haven't bashed my eye it just appeared. Anyone else have this happen to them ?

I woke up this morning with a bruised eyelid. I haven't bashed my eye it just ap...

Hidden

•7 years ago

14 Replies

Finally had Hepatology appt Today after 3 months of waiting.....

Hi all, I was diagnosed by my GI doc on 10/10/16 off of high LFT's including positive AMA- M2. Took URSO for 3 weeks and got really sick. Was taken off Nov....

Hi all, I was diagnosed by my GI doc on 10/10/16 off of high LFT's including po...

Ktltel

•7 years ago

32 Replies

Periods and PBC

Hi my fellow pbcers as I'm still so new to this I wanted to ask do any of the ladies notice their symptoms get worse around the time of their periods?

Hi my fellow pbcers as I'm still so new to this I wanted to ask do any of the la...

Sharilee59

•7 years ago

10 Replies

Ursofalk in pregnancy

Hi all, I gave birth in Nov 2015 to a baby boy after having obstetric cholestasis from 31 weeks. Since his birth my liver functioning has not gone back to...

Hi all, I gave birth in Nov 2015 to a baby boy after having obstetric cholestas...

lauralocks123

•7 years ago

7 Replies

Throat tightness

Hi im new to this forum my throat tightness is caused by sprays weather and stress also exercise if any of you are the same id love to here from you thanks...

Hi im new to this forum my throat tightness is caused by sprays weather and stre...

Hay133

•7 years ago

3 Replies

Work and PBC

This is only a question for UK suffers but are you obliged to tell your employer you have PBC. I haven't told mine as so far it hasn't effected my work. Any...

This is only a question for UK suffers but are you obliged to tell your employer...

Hidden

•7 years ago

10 Replies

Losing weight --pbc

do you lose weight with pbc? My husband has pbc symptoms for more than one year but recently diagnosed during this period he lost 23 pounds

do you lose weight with pbc? My husband has pbc symptoms for more than one year ...

Mysa1981

•7 years ago

11 Replies

Fatigue

I was diagnosed a year and a half ago and take urso since about six months before diagnosis. I experience all the regular symptoms i.e. itching, fatigue, and...

I was diagnosed a year and a half ago and take urso since about six months befor...

Cstar1079

•7 years ago

5 Replies

Wat te doen bij pijn

Heb even een vraagje,heb op dit moment een ontsteking in mijn schouder maar krijg hier geen medicatie voor omdat ik pbc heb. Wat nu graag jullie advied....

Heb even een vraagje,heb op dit moment een ontsteking in mijn schouder maar krij...

Peetje195

•7 years ago

7 Replies

Skin pigment changes

I was diagnosed with PBC in December 2016. My liver biopsy staged me at a 2. I started URSO early January of this year. I had horrible itching (how I got the...

I was diagnosed with PBC in December 2016. My liver biopsy staged me at a 2. I s...

marty102

•7 years ago

16 Replies

Does raised free kappa & lamdba come under PBC umbrella??

Before my dx last yr I had bloods drawn for bone disease...but come bck after Alkaline pros..Ama.Ana ..protein electrophoresis came bck raised and...

Before my dx last yr I had bloods drawn for bone disease...but come bck after Al...

Thyroidfighter

•7 years ago

1 Reply

Ocaliva

Just started a new drug Ocaliva I take 5mg daily. This is a new drug for people that have PBC that take URSO and it doesn't work for them. Just checking if...

Just started a new drug Ocaliva I take 5mg daily. This is a new drug for people...

Shirl5

•7 years ago

21 Replies

LFT's have returned to normal...do I still have PBC?

I was diagnosed with PBC back in Dec 2015 due to elevated LFT's, raised GGT and AMA of 10.5. I started on URSO immediately and since I have also been taking a...

I was diagnosed with PBC back in Dec 2015 due to elevated LFT's, raised GGT and ...

Hils67

•7 years ago

33 Replies

For everyone has pbc

I'm here for my husband who has pbc I read everyday your concern about symptoms that everyone has I just want to tell you all my opinion I lose too much hair...

I'm here for my husband who has pbc I read everyday your concern about symptoms ...

Mysa1981

•7 years ago

6 Replies

Gallbladder removal

Hi Hope everyone is feeling good this year! 💪🏻 I was diagnosed last year with PBC and last November had infection in gallbladder prompting consultant to...

Hi Hope everyone is feeling good this year! 💪🏻 I was diagnosed last year with ...

Starfish72

•7 years ago

12 Replies

Just been diagnosed

I'm 34 and have tested positive for AMA with a result of M2 +++. Not sure why I had this test done? I went in about my thyroid problem. I've had an underactice...

I'm 34 and have tested positive for AMA with a result of M2 +++. Not sure why I ...

Jhenderson

•7 years ago

11 Replies

Who can explain?sarcoidosis liver( granuloma) and pbc wich one cause the other

Who can explain? sarcoidosis liver( granuloma) and pbc wich one cause the other

Who can explain? sarcoidosis liver( granuloma) and pbc wich one cause the other...

Mysa1981

•7 years ago

5 Replies

Necklace

I ordered a necklace from this lady and not only did she include the 2nd ribbon for me but she sent an added gift (the keychain) with a personal handwritten...

I ordered a necklace from this lady and not only did she include the 2nd ribbon ...

Becca75

•7 years ago

11 Replies

More investigations.

Good Afternoon all. I hope January has been kind to you all and your all getting on ok. Back at the hospital again for me and after another endoscopy the...

Good Afternoon all. I hope January has been kind to you all and your all getting...

donnathompson

•7 years ago

3 Replies

Posts - PBC Foundation | HealthUnlocked

PBC Foundation

All posts for February 2017

Ursodexychokic acid

Itching hives on neck & eyes

Side effects of Ocaliva

So tired and itchy and tired of being itchy

Very concerned

Bruised eyelid

Finally had Hepatology appt Today after 3 months of waiting.....

Periods and PBC

Ursofalk in pregnancy

Throat tightness

Work and PBC

Losing weight --pbc

Fatigue

Wat te doen bij pijn

Skin pigment changes

Does raised free kappa & lamdba come under PBC umbrella??

Ocaliva

LFT's have returned to normal...do I still have PBC?

For everyone has pbc

Gallbladder removal

Just been diagnosed

Who can explain?sarcoidosis liver( granuloma) and pbc wich one cause the other

Necklace

More investigations.

Search posts

Pinned Posts

Latest poll

Where in the world are you? Please select an option, but feel free to tell us specifically which country you are in, if you would like. No more detail than that, however. Thank you.

Topics

Archive