I have PBC since the age of 34. I have been taking Urso 1000mg per day for 6years now and there has been no severe itching and I am leading a normal life so far. I have two young kids. I stopped working when my first child was born as I wanted to spend all my time with them unknowing of the fact that I will have PBC. My doc said consider it like another chronic condition like Asthma or Diebeties. He said a little life style change will help a long way. Which meant occoasional social drinking and less fatty food etc. My morals remain very high following my docs advice back in UK.
I am living in USA currently.
My Alt and proteins have always been higher than standard despite Urso but not too high. Latest liver biopsy showed inflammation to the liver. So my gastroenterologist prescribed Ocaliva 5mg daily along with 1000 Urso. I took it for two days and I am having some side effects. As soon I take Oca, I feel very sleepy. After sleeping for about two hours I feel very light headed and very low in energy. I felt little dizzy. Also I have the urge to empty my bladder quickly. The sleepiness goes away in about 6 hours but I remain low in energy.
I have been asked to stop taking it for a week as I am still recovering from liver Biopsy side effects which took place 15 days ago. Which is another story.
I am hoping that after a week when I take it again I don't get those side effects again.
Is there anyone who had Oca side effects like mine? I wanted to know if those are permanent side effects or will get better with time.
Should I be taking it before going bed so that I don't sleep during the day.
Any help is appreciated.